Odds of HIV with extremely high risk exposure and many symptoms

[Sotiredoffeelingtired]

Made the biggest mistake of my life by having receptive anal sex with a transsexual escort.  At one point during the sex I noticed they had taken the condom off.  I freaked out and made them put it back on.  At the very end, I am not sure but I think that they again took the condom off to finish inside me.  The very next day I had a warm sensation in my stomach and just felt tired.  I questioned the escort and they told me they didn't have HIV and told me to not contact them again, but I think they lied.  At 66 hours I started PEP, truvada and isentress.  About 5 hours after starting PEP (so on the 3rd day post exposure) I started getting muscle cramps in my calf muscles and pain in my knees making it hard to walk.  At night my elbows would hurt from my sleep position.  I also started having very soft stool and twice had watery diarrhea.  On days 6, 9 and 10 post exposure I took the early detection RNA test, all of which came back negative.  More symptoms have occurred including occasional night sweats, headache, back of scalp very itchy, excessive sweating, just not feeling well constantly.  I have had a dry mouth since about day 3 and have noticed more tooth decay.  I had 2 black dots inside my inner cheek that lasted a day.  I had a slight low grade fever for a bit. I have pimple like dots on the backs of my shoulders (I've always had bad acne on my back and my dermatologist and hiv specialist say it isn't HIV rash).  I had bad insomnia for about a month and a half while taking the PEP.  My PCP put me on Cymbalta 60mg.  Eventually I also ended up on Trazodone 50mg and Temazepam 30mg to fall asleep at night.  I have since stopped the cymbalta and my dry mouth isn't as bad.  My finger and toe nails are all curving causing ingrown nails.  I tested negative a 4 weeks post exposure at the end of PEP on 4th gen duo test.  I also tested negative on duo 2 weeks post PEP.  During the first month I have had a couple times waking up and having tingling feet.  Red dots have appeared on the top of my feet (petechia possibly).  I feel warm sensations often in my elbows, knees and feet.  My body feels like it is on fire, yet I have no fever (actually sometimes quite lower than 98.6).  HIV specialist didn't want to do duo test at 9 weeks post exposure, just did antibody test which came back negative.  HIV specialist says I most likely don't have HIV, but I just don't believe that I don't have this disease.  Given all my symptoms I just don't see how I don't have this.  Most of these symptoms have now lasted about 2 months.  All tests have been negative.  Negative for hep a, b, c; gonorrhea, chlamydia, syphilis, herpes simplex 2.  I now have sharp pain when defecating that has lasted for almost 2 weeks now.  Just looking for any advice and some motivation to keep on living.

[Sotiredoffeelingtired]

Post pep follow up test taken at 14 weeks post pep was negative. Assuming this is now considered conclusive.

[Sotiredoffeelingtired]

The past 5 days I've had temperature around 99.6 degrees. Still feel tired all the time. Very concerned.

[RubyWitch]

I am sorry you do not trust you HIV Specialist.

IF you have HIV clinics available, I would strongly suggest you speak with one of their counselors and get your care back on track.

You should have a POST PEP follow up test at 3 months which will be conclusive. You CAN test again at 6 months, which is purely precautionary, but excellent for peace of mind.

In all of the cases of high risk exposure where PEP was administered and the POST PEP results at 12 weeks were negative, I know of no case where that result later changed to positive    *** without any additional high risk exposures***

[Sotiredoffeelingtired]

I was incorrect that the doctor just did antibody test at 5 weeks post pep (68 days post exposure).  It was a Human Immunodeficiency Virus 1/O/2 (HIV-1/O/2) Antigen/Antibody (Fourth Generation) Preliminary Test With Cascade Reflex to Supplementary Testing.  Have you ever seen any results turn positive after my testing timeframe?

[RubyWitch]

Test at 3 months post PEP for conclusive results. It is also highly recommended to retest at 6 months strictly for precautionary measures. It is highly unlikely your status will change but the only way to know is to test.    

[Sotiredoffeelingtired]

The hiv specialist set my 3 months up post exposure. I tested negative again at 6 weeks post pep. Feeling like crap though.

[Sotiredoffeelingtired]

According to some articles, it seems that it is >95% chance I don't have it.

[RubyWitch]

Since you are being followed by an HIV Specialist, I would put my trust in him..........unfortunately, it doesn't sound like you do.

All of your post PEP tests have been negative.......so my question would be why are you NOT accepting this? I understand you have many symptoms which I'm sure are being addressed and I definitely hope anxiety is being considered.

The CDC recommendations for post-PEP HIV testing are six weeks, three months and six months from the date of exposure. This is a recommendation, but I would follow the testing time frame of the specialist taking care of you.

I would also recommend you have a long discussion with him about your general health as soon as possible. Symptoms are never used to diagnose HIV and personally I think your anxiety is getting the better of you.

I wish you the very best outcome

[Sotiredoffeelingtired]

Thank you for your response.  No, I don't really trust the hiv specialist.  I only saw him 1 time, and had to wait a month to see the hiv specialist.  He said I most likely don't have it and that being un-diagnosed for a month wouldn't make a difference.  But yeah, I still feel like crap, and most of my symptoms have been unaddressed by my regular PCP.