Severe symptoms but all tests negative

[tiredofmyillness]

Resp doctor

I am a 52 year male. I was foolish enough to go to a soap massage parlor in Bangkok. The lady glided over me with soap on her body. Then we both entered into a bath tub with plain water. After about 10 minutes we got out of the tub and I remember I wiped my wet hands on my face and probably the water went in my eyes.

One week later I had flu like symptoms.
Two weeks later I had physical contact with my wife.
After one week my wife had uncontrolled diahorrea.
After three and half months I had severe rash on my chest, upper arms, shoulders, back and lower back. My wife at the same time had bleeding from nose and had lip sore.

After one month I had severe burning sensation on palm and sole.

I had two blisters on my penis.
My doctor gave me itraconazole 100 mg for fourteen days. In next three months the rashes disappeared but the fungal infection was not cleared completely.
I am now 18 months post exposure. I have swollen lymph nodes in the neck. My palm and soles are still burning. I have burning sensation on my whole body except face and scalp.

EIA test at 3, 6, 9, 12, and 15 months were all negative. EIA WITH P24 at 18 months is negative. HIV1 RNA PCR at 18 months is not detectable.  
ORAQUICK with finger prick blood for my wife at 12 months was negative.

Please let me know what is my status and what should I do.

Thanks

[jacksenior]

it infects and my friend has it

[tiredofmyillness]

XMRV is non existent. it does not infect human beings.

[jacksenior]

we need to test for mycoplasma
well, man ! i have found some positive tests i have made! 1: ureaplasma infection 1 million copy/ml " the test was semen culture " and i have read a lot about ureaplasma that it is one of the mycoplasma family the smallest organism of bacteria ever, and it attacks and lives in the immune white blood cells too and it does not have a cover it means normal antibiotics don't help. i have found positive cmv IgG.
have you checked your cd4 and cd8? also many people like us suffer from the same problem. they have all symptoms of hiv but negative test results which lead me to say that hiv is not the only cause of what we have.
please, check for xmrv virus " hiv-like virus"  and htlv.

[123495summer]

119 millions test in 2012 n 98.6 % were negative .   N message girls r checkedfor hiv one every three month

[123495summer]

R we living in 1999....it's 2014 n labs n etc had improved a lot .. I guess u should stop surf internet n accept your test result ....leave the test result accept that u were not in risk...I was reading that in 2012 119 test were conduct and 98.6 % of result were negative n 1.4 % positive ...u must understand for number that it's a hard virus to transfer to other people n your at no risk.....accept it or stay worried it's your call ...

[tiredofmyillness]

This report describes the field and laboratory investigation of eight patients who had clinical evidence of HIV infection, but repeatedly negative HIV-1 antibody screening results in the course of their clinical care. In all patients, HIV infection was proven [sic] by other diagnostic methods [PCR/viral load, p24 antigen and culture techniques]...Patient 2...HIV EIA result was negative during admission, but HIV infection was identified by HIV p24 antigen testing and DNA PCR...His wife was tested for HIV infection by HIV EIA and DNA PCR; the results of both tests were negative ”  Sullivan PS, Schable C. Persistently negative HIV-1 antibody enzyme immunoassay screening results for patients with HIV-1 infection and AIDS: serologic, clinical, and virologic results. AIDS. 1999 Jan 14;13(1):89-96.  “This report describes the field and laboratory investigation of eight patients who had clinical evidence of HIV infection, but repeatedly negative HIV-1 antibody screening results in the course of their clinical care. In all patients, HIV infection was proven [sic] by other diagnostic methods [PCR/viral load, p24 antigen and culture techniques]...Patient 3...HIV-1 EIA and an HIV-1/2 combination test administered 1 month [after hospital admission] were negative...HIV-1 p24 antigen tests were positive...The diagnosis of HIV infection was confirmed by HIV-1 DNA PCR.   During the following 27 months, the patient had eight negative HIV EIA results; 3 HIV-1 DNA PCR tests and 3 HIV-1 RT PCR tests were positive ” Sullivan PS, Schable C. Persistently negative HIV-1 antibody enzyme immunoassay screening results for patients with HIV-1 infection and AIDS: serologic, clinical, and virologic results. AIDS. 1999 Jan 14;13(1):89-96.  “This report describes the field and laboratory investigation of eight patients who had clinical evidence of HIV infection, but repeatedly negative HIV-1 antibody screening results in the course of their clinical care. In all patients, HIV infection was proven [sic] by other diagnostic methods [PCR/viral load, p24 antigen and culture techniques]...Patient 4...first HIV EIA, performed at the time of diagnosis of oral thrush 4 months [after persistent high fever], was negative...[8 months later, after worsening health problems] an HIV EIA result was negative...[but] specimens were positive by DNA PCR and p24 antigen tests...In the 11 months following the positive PCR and antigen tests at CDC, the patient had 3 negative HIV EIA results ”  Sullivan PS, Schable C. Persistently negative HIV-1 antibody enzyme immunoassay screening results for patients with HIV-1 infection and AIDS: serologic, clinical, and virologic results. AIDS. 1999 Jan 14;13(1):89-96.  “This report describes the field and laboratory investigation of eight patients who had clinical evidence of HIV infection, but repeatedly negative HIV-1 antibody screening results in the course of their clinical care. In all patients, HIV infection was proven [sic] by other diagnostic methods [PCR/viral load, p24 antigen and culture techniques]...Patient 5...results of two HIV EIA performed during the initial evaluation [for acute respiratory distress] were negative, although two quantitative RT-PCR tests were positive...Viral culture was positive; however, a later blood sample...was negative by HIV EIA and positive by p24 antigen EIA...The patient had 4 children...All were tested by HIV EIA, p24 antigen EIA, and RNA PCR with negative results ”  Sullivan PS, Schable C. Persistently negative HIV-1 antibody enzyme immunoassay screening results for patients with HIV-1 infection and AIDS: serologic, clinical, and virologic results. AIDS. 1999 Jan 14;13(1):89-96.  “This report describes the field and laboratory investigation of eight patients who had clinical evidence of HIV infection, but repeatedly negative HIV-1 antibody screening results in the course of their clinical care. In all patients, HIV infection was proven [sic] by other diagnostic methods [PCR/viral load, p24 antigen and culture techniques]...Patient 6...became acutely ill after vaccination for measles, mumps and rubella...[she had a] negative HIV EIA on 2 occasions, a positive HIV-1 p24 antigen result, and a positive HIV-1 DNA PCR result. Prior HIV EIA results were negative 2 years, 1 year and 2 weeks before hospitalization...Of her 17 lifetime sexual partners, four were tested at CDC by HIV EIA and HIV-1 DNA PCR; all test results were negative ”  

[morgan896]

Explain your symptoms to your doctor who may arrange for blood testing if he can not diagnose it. One thing is for certain, it is not HIV.

[tiredofmyillness]

i am still not relieved of fungal infection ( pityrosporum folliculitis) despite aggressive treatment with oral and topical azoles. my wife has another breakout of herpes on cheek.

i do not know what is happening to me and my wife. everybody say that i do not have Hiv because my test are negative. if it is not Hiv than is it HTLV,EBV,CMV or some other virus that creating havoc.  i am unable to find an answer.

God is great.

[tiredofmyillness]

Thanks Vance
I am now able to track down my ailment. The rashes were due to malassezia pityrosis foliculitis which improved by initial treatment with itraconazole. This infection might have been triggered by the use of minoxidil. Because minoxidil also suppresses the immune system. the infection was not cured fully. Now I am using ketoconazole 2% shampoo on by body and clotrimazole 1% ointment. This has given me relief. The doctors in my area are foolish. One doctor told me that burning sensation is due to dry skin and prescribed me to apply olive oil which aggravated the fungal infection.

But this does not explain the swelling of the lymph nodes in the neck. Lately I am noticing one 3-4 mm hard ball like thing at centre of my right arm. Can this be due to fungal infection only.

[Vance2335]

Reread what Howard wrote.

[tiredofmyillness]

Hi

For past few months i have been noticing clear skin growths  under my tongue. Today i googled and was worried that this is also pointing towards secondary syphlis. I have tested VDRL and TPHA  three four times and all are negative. I have also learnt from internet that if a person is HIV + his VDRL and TPHA can be false negative.  So in distant possiblity can my HIV tests be false negative.

[tiredofmyillness]

Thanks vance for your support and guidance

[Vance2335]

No it has nothing to do with it, follow up with your Dr.

[tiredofmyillness]

Any response

[tiredofmyillness]

Hi
Thanks HowardH & Teak

I am relieved by your expert evaluation but one thing is still terryfying me. My doctor in his diagnosis has written "AID".  Now i do not know what does he mean by it. Does he mean "Acquired immune deficiency" or "Auto immune disorder".

I forgot to mention in my earlier post that i had started using "Minoxidil 10%" for hair regrowth two weeks before the rashes stareted. I had immediately stopped using it after the rashes. Does it have any connection with it.

Thanks

[Teak]

You never had an exposure.

[tiredofmyillness]

Hi
Thanks

Do you know what is the maximum recorded time for a person to show positive antibody after exposure.

Thanks

[HowardH]

Your test results prove your symptoms are not due to HIV, and the exposure you describe was no risk for HIV anyway.  Work with your doctor to learn the cause of your symptoms.