Happy Healthy...or so I thought...RA young adult User Group
How long?
About This Group:

I am wondering if i am alone out here. As anyone else with Rheumatoid Arthritis I have a laundry list of ailments and medications all managed by my fabulous Rheumatologist...*insert thank you note here** I have gone through some phases so far of this disease: Denial (which was silly and quickly had 3 Dr.s all agreeing that I need to start RA meds), Confusion, resolved with Education, Depression (caused by the Education), now I am nearing Acceptance. Anyone else out there? I am only 27.. just doesn't seem fair. I know neither is life, however, why is it that no one understands my constant pain? Why do people think i am in a bad mood when i forget to wear my mask? its not that i promise it's only the 10 new nodules on my hands, the redness, the fevers, sleepless nights, the swelling, the embarrassment of not being able to move my hands or feet or shoulder or neck! Cant they see I tried to put on my mask today, its just that my hands stopped working half way to the finish line! Please if I am not alone here I'd love to hear your story of your mask that you put on everyday.

Founded by Addy569 on December 27, 2009
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How long?

I've only begun my journey, I was given a "tentative" diagnoses of RA in December 2009, so only about a month and a half ago.  This seemed to come on suddenly.  I was fine and then my hands started having problems and I had nodules pop up on my thumbs seemingly overnight.  How long have you had RA?  I admit, I don't even know where to start as far as treatment, there are so many it makes my head spin.  What do I do???
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I have it for about 3 years, however I refused RA medication up until Sept of 09. I wanted to try everything else prior to starting the meds. I tried modifying my diet, physical therapy, herbal supplements, allergy testing, you name it i tried it! Then when the reality hit me that i was no longer able to get out of bed for at least 2 hours after waking up...i knew i had to do something! i went to the Dr and they ran the gambit as far as testing to confirm that it was RA (MRI's, xrays, blood work, etc...) Then once I had the testing confirmed then I went to two other Dr.s to get 2nd and 3rd opinions...Then after all that I went back to my Rheumatologist and she said that if i didn't start meds soon i would be disabled in a year. I immediately began the medicine. Right now I am taking Methotrexate 17.5mg (chemotherapy drug to stop the 'bad' cells from reproducing), Prednisone 10mg daily (steroid used to control the inflammation), Folic Acid, Vicoprophen (Vicodin with IBProphen to control pain when needed). My next appt i am planning to talk to Dr. about Embril because I have heard a lot of good things about that!

Your Dr. should be able to get you on the right meds but make sure to see a Rheumatologist they are the ones that have specific training in dealing with RA and they will be able to rule out any other possible causes.

The drugs that are used to treat RA are very serious drugs and the decision to take them  should never be taken lightly.
With that said, since you have only received a tentative diagnosis I would insist to have the docs do more testing to confirm and or rule out anything else before proceeding with treatment. The tricky thing is that you have to start treating it in the early stages to prevent damage however the Dr.s can only get a definite diagnosis with seeing at least some damage occur...~ Catch 22...I hope that i answered  your questions and please let me know what you find out! ~Addy
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