I Need Help

[poohbowen]

In August 2012 my son had a seizure and stopped breathing. I am not sure how long he was down before I was notified. By the time I got to him he was blue and no one started rescue breathing. I breathed for him for about 10 minutes before the ambulance got there. The ambulance worked on him for about 30 minutes before finally getting him to the flight crew. The flight crew worked on him for about an hour before getting him to the hospital. I know that this can cause some damage. About a month after my son left the hospital he started having an issue with rage. He goes into a rage about small things. When he is like this his eyes look blank and the pupils are enlarged. During the rage he hits, bites, screams, kicks, throws things, and sometimes even tries to hurt himself. He has also said that he wished he would die during the rage. He has been to counseling and everyone seems to think that I am just over reacting even though he tells them how bad he is during the episodes. When he comes out of it he immediately starts apologizing. I know there is something going on with him but how do I get the doctors to help me figure out what it is?

[poohbowen]

He has a neurologist, has been to UK hospital to see neurologists, and has had multiple eeg's but because the episodes are not showing up when they see him then they tell me that I am over reacting. I wish that was all it was because I am afraid that someone is going to get hurt during the rage episodes because he seems to have no control over what he is doing. I don't know how to make the doctors listen and help me. It seems like they hear what they want to and that's all they listen to.

[ILADVOCATE]

   Some of what you are describing as happening during the rage like episodes given there are physical changes sounds similar to a partial seizure or some other type of seizure. However only a doctor would
understand the clinical specifics. The best thing to do is to make an appointment with a neurologist who can run tests such as an eeg to see if he is experiencing any changes in brain activity during these episodes. Then they can decide what the appropriate follow up would be. Be sure to bring a copy of full medical records from throughout his life, especially since he had the seizure episode where he stopped breathing as you described.