Spinal Cord Injury! Help! Please! Child!

Help!  Please!  Child!
We are so Worried!!!
Herniated Disc and Impingement of Spinal Nerve Root - MRI - looks scarey!
We are hearing - nucleus pulposus, annulus fibrosus, spinal nerve root compression, disc bulging, spinous processes, dura mater (thecal sac) and cauda equina compression.
We are told the LP needle and catheter  so many time and VERY force full - over shot the dura mater (?) Childs was sedated - out! for approx. 2 week. After being airlift / ems ground transported. Transported to a 2nd hospital an IV caffeine drip and 3/5 days later - 2 blood patches the Anesthesiologist said he couldn’t do anything more to help child, that it was something more serious than he could fix!
He seemed very concerned!
Unbelievably, we were the next am released from the hospital for what they wrote - discharged for syncope!!!!  OMG!
Crazy - right! ok!
Child has been bed ridden, doesn't walk barely stands - pain is very bad! Some symptoms Back, legs, tingle, numb at times, Bladder leaks and sometimes says has to go and can't! The scariest for me is when body gets COLD! knee to feet - feet ice cold and elbow to hands , hands freezing cold and sometimes child mid area too! We use the electric blanket 24 / 7!  I took her back to ER - even though they seem afraid to move child - they send us away saying not life or death and go to a specialist. We don’t know what to do! Other than not to move child much until we can find a Dr. to look and listen to the details of the injury. Instead of looking at a discharge paper that says syncope!

We have some records, MRI pics show bulge, herniation and stuff protruding out.

We were told not to let anyone pressure child to do anything that hurts (including physical therapy) being as child is bed ridden still, UNTIL we have some definitive answers as to the injury - as not to cause child more, or possibly irreversible permanent damage!

If you have any advice or suggestions please reply!      Thank You

[ku111]

Has a Neurologist been involved?  Sounds like you might one as another opinion and to help you further.  I am sorry this is happening.  My son was 11 when he had brain and spinal lesions.  Couldn't walk, talk or urinate.  Thank gosh for our Neurologist.  He is now 12 and stable but definately had some damage.  ((many hugs))  I am here is you need to talk.  I really do understand how scary and helpless you can feel.  Make sure her bladder gets empty.  She may have to urinate and then stand up, wait 1 minute and try again.  The bladder is so very important.  

[scihelp]

Thank You, we are doing the best we can. Weare trying to deal with insurance and the mis information in the records. A spinal cord injury is alot different than syncope! As they stated ER was for syncope. We are looking for a Dr. in ( trauma ) Neuro ( ? ) insurance wants a Dr.  in our county but our referrals we have are for out of area and insurance co.'s can be very difficult. We may soon become a cash pay again! Tired today it was a long one. Thank you again ...and hugs are great gettin us through this stuff Thanks again heres a big hug back and good luck to you and your family too.

[ku111]

I am thinking about you.  Lots of hugs your way!  We went to ER and they told us our son was depressed and needed Prozac.  Couldn't walk, talk or urinate but needed Prozac.  Whatever!  They caused my son so much more damage.  I worry about the care we receive but they sure keep the bills coming.  Just keep working to get her better and then we can talk more.  Is there a children's hospital close?  Call and see what their payment policy is.  Sometimes they will take a little or nothing at all.  Might be better to go back through ER for them to evaluate again and then submit the right information.