Well I have had neuro symptoms for about 7 years, hearing issuesnstarted last April.
I have trigeminal neuralgia on my left side, so originally I (and the ER doc) thought my hearing issues were related to that. I had just moved here to SW FL, so I didn't have a neuro here yet.Here is what happened:
-April two episodes of sponataneous hearing loss, lasted about 30 mins, only in left ear. Like a switched was flipped off then back on. FREAKY!
-Since then I get a numb sensation in my inner ear, sometimes pain, which I thought was genicualte neuralgia but mayo doc said it didn't seem like it. Along with this my hemifacial spasm may or may not flare on that side which results in my cheek "snarling", amusing, huh? haha
-In August I had a consult with ENT. Auditory MRI didn't show acoustic neuromas. Went to an audiologist- hearing report was withing normal limits.
-Just this last novemeber I woke up with the sound of a train in both ears, bouncing between ears, then focused in left ear. it lasted 5 days. During this time if I bent my head down or side to side it took a few seconds for my eyes to catch up and I got SOOOO dizzy. Not spinning so much but more like I was swaying. I did trip sideways a few times. As the train sound calmed down I had high pitched ring for a day then nothing. Thankfully my PRN valium and benadryl mix helped some(similar concoction to typical vertigo med).
So, in Jan I had a BAER (brainstem auditory evoked potential). Have you had one yet? I saw my electronic records at Mayo and it says my results were abnormal. That my waves 1 were slow and wave 3-5 were fused bilaterally. From what I can read online this usually points towards plaques at the brainstem level creating sensioneural hearing loss. Structurally my hearing is intact, but neurologically it is wearing down. I see the mayo neuro monday for full report.
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