cavermous hemangioma

[bluebelle56]

I'm 28 years old , I was born with a cavernous hemangioma ,on the outside of the left side of my head.The size was 4X4.5 x1 m.raised  It looked like a door nobe. I started getting headaches when I was 2 years old. I started loseing my hearing at age 5 . Now at 28 years old . I have lost 80% of my hearing. I can;t see the cavernous hemangioma anymore. But on the left side of my head were it was it feels different.My headaches are now migraines .I have be having migraines for about 5 years. they are getiing worse ,almost dailey. I went to a couple doctors and asked them if the cavernous hemangioma would cause hearing loss and migraines. They said no. And would not give me a cat scan or MRI. I have 2 beauitful girls and i would love to be able to hear them again. Do you think the the cavernous hemangioma at birth could be causeing these problems now . They get worst every year. Really driving my husband and children and me crazy. Please Help!!!

[ENTMD]

Assuming this hemangioma did not involve your ear, I agree that it's hard to imagine how IT would have harmed your hearing.  However, there must be a decent attempt made at diagnosing what did happen to your hearing.  You should have been seen by an ENT specialist, had your hearing tested by an Audiologist and any necessary tests/imaging ordered.