Thank you so much for your reply. I am so very sorry to hear about your precious daughter. Keep the faith. I will keep her in my prayers.
Welcome back. I was so happy to hear back from you that your son was perfectly healthy!! At the moment, my daughter is in chronic heart failure again. (transplants aren't a cure, they only afford you more time) They may or may not relist her for another heart so I just have to cherish every moment. Thank you for asking. take care and my best to you! :)
Dear Grendslori,
Thank you so much for your reply to my questions, I truly appreciate your time and all the valuable information you passed on. My son had an echocardiogram, another ECG and saw the pediatric cardiologist yesterday. Good news, all tests came back normal. The cardiologist said that the ECG was not the most accurate test and that is why they followed up with an echo. My son's heart is fine. Praise God! My goodness, you have been through a lot with your little girl. How is she doing now? I pray she has good health. Thanks again.
Hello again. One of the most important things for you to think about here is the word: probable. This is not a definite prognosis yet. The EKG records primarily the electrical activity of the heart; sometimes it can record a hypertrophy if the hypertrophy has reached a certain size. There are two basic types of hypertrophy with the heart and you do not say which one your doctor thinks it is; you should ask him which it is. One type is where the wall are too thin and the chamber is too large, the other is where the walls are too thick and the chamber size is reduced. For the most part the first form is caused by a virus and the second form is caused by a genectic issue. The right ventricle receives the blood coming back into the heart from around the body; it is not the main pumping chamber, that is the left ventrical. The fact that your son's right ventricle is possibly affected, is actually better news than if the left ventricle was affected. Neither is good, but if it came down to a choice, your son is actually sitting better than a child with a left ventricle problem. That child would have an issue with the blood leaving the heart and reaching the brain, thay would also have a lot of problems with breathing. The EKG has nothing to do with the seizures. To truely diagnose this problem, the EKG may be a starting point, but it is not a definite; the echo is much more reliable because it measures the heart walls and chambers and looks at the actual functioning of the heart. Your son will have an echo done when he sees the pediatric cardiologist to determine if he actually has this problem. You asked about this your son having this problem and having it not noticed before now, if that is possible. Yes, it is and it certainly could be missed because it involves the right side of the heart. Had it been the left side, he would have been dealing with a whole different set of cards and you certainly would have known there was a problem. My own daughter had a severe form of cardiomyopathy which destroyed both the right as well as the left side of her heart and we only found that as a fluke when she was hospitized at the age of six; she eventually needed a heart transplant. Keep us posted and also, there is a Pediatric Cardiology Forum here on the Medhelp site for the support of parents and families; you may want to jump over to that forum as well. take care
I hate it when I lose everything I wrote and now I have to leave for awhile!!! I'll be back later to answer your question...hang in there. In the meantime, you may want to look up: the Children's Cardiomyopathy Foundation as well.