10 yr old with Aorta Stenosis

Posted By Veronica Trejo on August 24, 1998 at 19:42:46:







My 10 year old niece, Samantha, was diagnosed with Aorta Stenosis.  Her
valve is 50% closed but her doctors do not want to operate until it is
75% closed.  
For the past 2 years she's been having mild seizures every once in a while.
Lately, her seizures have become much stronger and occur much more
frequently (about every 2 days). We are terrified.  
The doctor can not confirm that the seizures are caused by her heart
problem.
Also, she has developed spots, like bruises, all over the left side
of her body (from neck to toes).  The spots are darker brown than her skin
and do not hurt.  The doctors have no idea what has caused this.
Can anyone shed some light??  We are scared and do not know whether to
trust these doctors who can not diagnose the problems.  Please help.
My work number is: 1-800-225-5693 ask the operator for extension 6783.