12 yr old with aortic regurgitation/biscuspid aortic valve

Very grateful for your time and for helping so many people. My son was just diagnosed with a bicuspid aortic valve. He has moderate aortic insufficiency with left ventricular dimensions at the upper limits of normal.  EEG shows a sinus rhythm with voltage criteria for left ventricle hypertrophy. No aortic stenosis.  Echo is scheduled for 6 mons to see how it's progressing.  My question:  How many children with this type of picture go on to needing surgery in childhood, young      hood,      hood?  We are very concerned and trying to understand our situation, short and long term, as best we can. Again, thank you.

[CCF-M.D.-MJM]

Hi Francie12,

I am sorry to hear about your son

[Rev1208]

I'm sorry to hear about your son.  I am a 25 year old with the same situation.  I was 22 when I was diagnosed with my bicuspid aortic valve as well as the regurgitation.  I get echo's every 6 months to a year and have pretty much not progressed.  I still workout with weights even though it is said to be "forbidden"  I have noticed that I get a few more PVC's here and there but that is about it.  i make sure sure my diet stays relitvely healthy and I supplement with  vitamins.
2000 mg Vitamin C
500 mg Magnesium
a Centrum Multi
120 mg co enzyme Q-10 (which I think is the most important)
I also take a low dosage high blood pressure med. I am not really sure at what rate a teenager would progress, but I would say keep him active, i.e. cardiovascular activites and moniter his diet.  Low sodium, fat, and cholstrol.  No matter what even if that valve needs to be replaced in the future you want him to have a healthy heart.  Best of Luck.