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Heart Disease (Expert Forum)
15 year old daughter with orthostatic hypotension needs help please!
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15 year old daughter with orthostatic hypotension needs help please!
by Lisa-B, Jan 01, 1995 12:00AM
Posted By Lisa B on February 07, 1999 at 01:13:26:
My 15 year old daughter was diagnosed by a cardiologist in October with Idiopathic Orthostatic Hypotension. She was prescribed Florinef .1 mg x 1/day + Sudafed 120 mg x 1/day + high salt diet. Over 12 week period, meds were increased to 4 Florinef/day and 2 Sudafed/day - no change in condition. As of last week, her blood pressure still dropped more than 30 points going from a lying/sitting to standing position (it has been as low as 72/58) and her heart rate at times doubled. She also has dizziness/light headedness, momentary vision loss or spotty vision; numbness/tingling in her limbs and face; flushing in her face and neck. She had mono in Sept. but has otherwise been healthy besides this problem. An ECG showed normal heart function, EKG showed Bradycardia with a rate of 55. The cardiologist referred her to a neurologist. An MRI and EEG were normal. The EMG was "questionably" normal. Leads on her hand produced normal respose, one to her foot had microscopic response. Test was repeated 3 times, lead even switched. Third doctor came in and said it was within the range and not to worry with it. So I received a call from the neurologist's nurse Friday telling me all tests were normal and he was referring her back to the cardiologist. One of my questions is could this minimal response even if perhaps within the range be indicative of something that warrants further investigation - if so, what? We've been seeing a pediatric cardiologist but for all practical purposes, my daughter is a mature young woman. Should we perhaps switch to a reg. cardiologist. This one has never suggested any other medication, but it appears there is another - Midodrine? Any others? Outside of weekly allergy shots and low iron requiring a daily suppliment, my daughter has been healthy and very athletic. 1 1/2 years ago she stretched and tore tendons and ligaments and labrum in her right shoulder. She had to have surgury 7/97 and 5/98 for repair. Could her decrease in physical activity also be a factor or could that have masked an existing problem heretofore? Family history if pertinent: My husband takes medication for high blood pressure as does most of his family; both sets of his grandparents died of heart attacks; his mother has high bp and pernicious anemia; his father had Multiple Sclerosis and died at 46 w/complications; my family is predisposed to low blood pressure (90/60 normal for me); I was diagnosed with Hodgkins Disease when I was pregnant with my daughter. Please tell me what you would do if she were your daughter. We honesty don't know where to turn. All these physicians who've seen her are at Bowman Gray/Baptist Hospital - but who do we go to or go back to next? I thank you from the bottom of my heart for your help.
My 15 year old daughter was diagnosed by a cardiologist in October with Idiopathic Orthostatic Hypotension. She was prescribed Florinef .1 mg x 1/day + Sudafed 120 mg x 1/day + high salt diet. Over 12 week period, meds were increased to 4 Florinef/day and 2 Sudafed/day - no change in condition. As of last week, her blood pressure still dropped more than 30 points going from a lying/sitting to standing position (it has been as low as 72/58) and her heart rate at times doubled. She also has dizziness/light headedness, momentary vision loss or spotty vision; numbness/tingling in her limbs and face; flushing in her face and neck. She had mono in Sept. but has otherwise been healthy besides this problem. An ECG showed normal heart function, EKG showed Bradycardia with a rate of 55. The cardiologist referred her to a neurologist. An MRI and EEG were normal. The EMG was "questionably" normal. Leads on her hand produced normal respose, one to her foot had microscopic response. Test was repeated 3 times, lead even switched. Third doctor came in and said it was within the range and not to worry with it. So I received a call from the neurologist's nurse Friday telling me all tests were normal and he was referring her back to the cardiologist. One of my questions is could this minimal response even if perhaps within the range be indicative of something that warrants further investigation - if so, what? We've been seeing a pediatric cardiologist but for all practical purposes, my daughter is a mature young woman. Should we perhaps switch to a reg. cardiologist. This one has never suggested any other medication, but it appears there is another - Midodrine? Any others? Outside of weekly allergy shots and low iron requiring a daily suppliment, my daughter has been healthy and very athletic. 1 1/2 years ago she stretched and tore tendons and ligaments and labrum in her right shoulder. She had to have surgury 7/97 and 5/98 for repair. Could her decrease in physical activity also be a factor or could that have masked an existing problem heretofore? Family history if pertinent: My husband takes medication for high blood pressure as does most of his family; both sets of his grandparents died of heart attacks; his mother has high bp and pernicious anemia; his father had Multiple Sclerosis and died at 46 w/complications; my family is predisposed to low blood pressure (90/60 normal for me); I was diagnosed with Hodgkins Disease when I was pregnant with my daughter. Please tell me what you would do if she were your daughter. We honesty don't know where to turn. All these physicians who've seen her are at Bowman Gray/Baptist Hospital - but who do we go to or go back to next? I thank you from the bottom of my heart for your help.
