6 Ablations Later

Hello,My Name is John and IM a young 49yr old,maybe I can get some sympathy, advice,help and understanding. I am a Veteran now of 6 EP ablations and EP Studies in about 9 years and have had 4 in the past 2 1/2 years and 2 in the last 3 mo. including a trans-ceptal PVI attempt which was not necessary in february I think I spelled that right. My last ablation was about a month ago on June 10 and it appears that the ablations was a nightmare and my last one as it appears my Dr. was ablating close to the SN and the doctor fells that maybe some of the burns have caused some damage he said they did about 60 burns all in the upper Q around the SN and I probably fell in the supposed 20% Of those who have post provedure problem. As I now appear to have Sick Sinus Syndrome or SSD. or Sinus Nodfe Dysfunction Im not sure.

Here is a whats happened after the ablation my base HR after the procedure was 108 this was on Tuesday morning it stayed that way until I was awoke on Thursday morning by the nurse becase my HR had suddenly dropped to 40 well I paniced after bing in the 110's for the past few days (yes for me the world was comming to an end) my base rate stayed at 50 or so for another 5 days, After I went home I had 3 days of low HR in the 40 - 60 total. I got up on thursday and all of a sudded in was at 93 it has now been in the hi 80's to about 110 at rest,mostly sitting about 90 on top of that they had stopped my med which consisted of lopressor and flecinide, and Im getting alot of PAC skipps or pauses I should say that at the hospital the Dr. origonall wanted to put a pacemake

[CCF-M.D.-RCJ]

John,

Thanks for the post.  Sorry to read of your ordeal.

A second opinion at a large center might make sense at this point -- I'm not sure what your question was going to be, but I can pretty safely say that your case is quite complex and may need someone to "start over".

Fill in with a comment if I didn't cover what you needed.

Good luck.

[John Morales]

Hi thanks for the reply, I was being trated at the University Of Pennsylvania which IM told and appears to be one of the biggest facilities in the country..

One of My Questions to you  is consideing it appears I may never see Normal sinus again. What is the downside to having irregular rythums comstantly I mean I get up in the morning and my HR is 80 in the afternoon it may sit in the 120's down to 80 up to 120 include skip beats and ocasional PAC/PVC thsi is all day everyday..

Can someone live with this type of irratic HR Rythum or is it something someone is gonna have to work to correct. I am now seeign a second opinion in the next few weeks at NYU....

Thanks in advance

John

[John Morales]

Anyway im pretty much resigned to the fact that what I have now Im gonna have there is pretty much noithign left to burn in my Atrium and it will pretty much take a guarantte from god to let anyone else in there.

Now that Ive said that here are my questions since there are many knowledgeable people here as well as well as many who suffer like me.

As it appears I may never see Normal sinus again. What is the
downside to having irregular rhythms constantly I mean I get up in the morning and my HR is sometimes 80, 120, 50 in the afternoon it may sit in the 120s down to 80 up to 120 include skip beats and occasional PAC/PVC this is all day everyday, the Dr. tells me it's not gonna kill me and 'll have to get used to it...Which is not easy as the Rate changes I sometimes get light headed and get this foggy fleeing in my head.

Can someone live with these type of erratic HR Rhythm does anyone here suffer with anything like this or is it something Im gonan have to work to correct.

Can someone live with this type of erratic HR Rhythm or is it
something someone is gonna have to work to correct.

I am in the process of seeking a second opinion in the next few weeks but with my History,Im sure it's too late, I guess I want someone to tell me that my present Dr. is doing the right things and that I can live with this condition,....I am trated at the University Of Pennsylvania which IM told is one of the biggest facilities in the country

Thanks in advance to all who takle the time to read I look forward to all opinions and suggestions..

John