6 y.o. with BAV and aortic aneurism(aneurysm)

Hi there - my 6 year old son was diagnosed with bicuspid aortic valve at 9 month of age.  Several years ago his cardiologist started to notice dilation of the thorasic aortic artery.  Last week at his most recent appointment his cardiologist measured an increase in size of the dilation to 28 mm.  At this point it's still at the moderate stage, but it appears to be worsening.  I'm just curious if anyone has a child in this same situation (or were you in this same situation as a child), and what did you experience in terms of treatment; especially timeframe.  My understanding is this condition is fairly rare in children and in spite of having an excellent cardiologist, I just don't feel like I know what we can or should expect over the next 5 - 10 years.

[kenkeith]

You ask a very good question and you have a young son that has a medical  problem.  That forum has members who are interested in health issues for children and can identify with a parent's concern as they have had the same eperience. Thanks for your question.  You can cut and paste your questions, and post to
http://www.medhelp.org/forums/Pediatric-Cardiology/show/302