Ok, I am starting to lose it. I have done the best I can to channel information regarding the deteriation of my health. I have been through quite a bit in the past, but the past few months have seemed surreal. Someone please awaken me and tell me that this has truly been a nightmare.
I had always taken care of myself. Ran, weekly workout routine for years (not a builder, just tone). Relatively low cholesterol (170-ish), BP 110/70, HR 60, 6'3, 190 lbs ( at one time body fat under 10%). After a serious MVA had long rehab and relearn limitations. My body took a hell of a beating.
As of Dec 2007, I was helping my brother renovate his new home. (everything from framing, sheetrocking etc, - very strenuous work). Looking back, I realize that I was blaming many symptoms on past injuries and just trying to work through pain/etc, which I had learned for yrs. Sensations of passing out I blamed on severe pain (neck) etc.
I go to ER with abdominal pain. MY HELL THUS BEGAN.....
After learning that I had a bad gall bladder, the hits just kept coming. Dr informs me that I have a bad heart. Each test and new info was worse, it seemed than the last. Each dx was prefaced with severe... ( severely enlarged heart, severe heart failure, severe hypokiness, severly abnormal arrythmias.) Told that I have CHF, DCM, very enlarged LV, very low EF... many secondaries associated with such ( MVR, TVR, S3,S4, ). Told I had to have ICD, which I needed more time due to being overwhelmed.
11-12 days in hosp, included; 6 runs of V-tach, BP 70/30, HR from 38- 212, EF anywhere from 15-30 (cath, Echo, stress), depending on test. Nothing to fix, as cath revealed clean coronaries.
Return home with regimine of drugs which knock me on my Butt. Low BP, HR, no energy, concentration, etc...
My continued tests upon returning home; holter reveals 6,000 Pvcs, 289 couplets. Event monitor stopped 10 days into planned 30 due to daily V-tachs and EP Dr said could no longer delay ICD. It was needed for low EF, Dilated Cardiomyopathy AND deadly V-Tach. Went in for pre-op next day.
Icd implanted last thurs and Dr adds amiodarone to my list of meds. THe toxicity of this drug on the body and organs is devistating. I would have to be on my death bed to agree to these side effects and potential for permanent damage. I try to go for a walk with my wife on sat and last FIVE houses, and have to go back home.
How in the world is it possible for my health to have taken a nose-dive so quickly. Within 4 months I go from being productive to being reduced to being predominantly bedridden. I feel like @%$* (crud). My ICD was 'low voltage' pacing for 20 mins this afternoon. After talk with EP, I'm advised that if I refuse to take amiodarone, then I have to go back in hosp for 2-3 days to go on sotalol.
I have done the best I can to deal with this devistation, but how in the world does one's body fall apart overnight? I've had enough.
Does anyone have any personal experience with amiodarone? From what I have read it is a last resort for deadly arrythmias. Thanks for any info...