I am 25 yrs old , 112lbs 5' 2, at 7 wks old had surgery for a Patent Ductus Ligation, they then discovered my BAV. The Dr's told my parents would eventually need it replaced when she is 50-60. At the age of 20 I had an 4.5 Ascending Aortic Aneurysm repaired with Valve sparing surgery. Im followed by Duke University Medical Center every 6months.
After my surgery my Surgeon Dr Jaggers told me and my parents that I had an Transverse arch Aortic Aneursym that was about 3.5cm and also a Coarctation of the Aorta. Within a year my Aneurysm grew to 4.5cm and the Coarctation stayed the same.I also have mod aortic stenosis Last June when I went for my regular checkup with my Cardiologist Dr. Bashore he informed us that my heart was enlarged and that my left ventricle was dilated to 6.2cm. EF of 45%. My aneursym was now at 4.8cm and the coarctation was 1.2cm.
I've been having alot of sx lately alot of chest pain, shortness of breath with activity, I constantly have nosebleeds atleast 4-5 a week, I've had to sleep with mutiple pillows almost to the point of sitting up because I cant hardly breath at night, Im constantly waking up at night trying to catch my breath. My question is when does the point finally happend when I need surgery??? I talked to my surgeon and he informed me that once your left ventricle dilates to 6.3 or greater you are considered almost congestive heart failure. Im 25yrs old. Im not ready for that. Also with everything I have would I every be able to carry and child to term safely without risk to me or the baby??
Does anyone else have anything else they could offer ??? If so they would be great...sorry for everything being jumbled just along history...
Thanks,
Shelly