I am 45 ys young, and was hospitalized in August from an ER visit for
arrhythmiasArrhythmias and
panicPanic disorder
Panic disorder with agoraphobia/anxiety that would not calm down. I am now currently taking 50mg
toprolToprol-xl xl, 200 mg
amiodaroneAmiodarone
Amiodarone hydrochloride dailyDaily combo
Daily multiple for men 50+
Daily multiple for women
Daily multiple for women 50+
Daily multiple vitamins
Daily vite
Daily-vite men's formula
Daily-vite weight control, and as needed, 5 mg
diazepam. I seem to feel better, but still have off days. I am not sure what to expect long term for the particular meds I am taking. I had a 24 hour IV of Amiodarone in the hospital after an MRI and echocardiogram of my heart showed no structural abnormality. I believe the IV was to see how I responded to such a strong anti-arrhythmia medicine.
I am a worrier and have lived with the PVC's and PAC's since my early 20's. I have been seen by several cardiologists over the last 20 yrs. I have been told as ALL the others here at this site, that I have nothing to worry about, yet as I have aged, it has gotten worse. I am anxious, but it is from the feelings in my chest and often labored breathing that bring it on. My new cardiolgist is very caring and open to some alternative therapies too...but right now, until we get to a better place, he wants me to take these meds. My QUESTION: Am I in danger from taking the anti-arrhthmia drug? I want to do what ever is best for me and my children in the long run of course. This forum is very helpful, seems to calm me when I read all the posts. I am very happy to finally have the chance to post a question. I am concerned about the long term effects of the drugs and probably worry too much. On good days, I feel normal, and some days there's a weird anxious feeling, I worry about side effects being the cause. Thank you
Just a brief history, PVCs since I can't remember, probably a child since my sister always blamed me for shaking the bed. But I didn't see a doctor for skipped beats until I was 18. It took until age 30 to get a doctor to "listen" to me. Back then a holter showed on average 400/hr. For a few years I struggled with the anxiety of it all. I think I lost a lot of life to worry. Seemed to go away for a little while (didn't notice them), then wham they kicked up to about 1200/hr on average at age 40(ish). Struggled with anxiety again. Hence coming to this forum almost daily.
I agree 100%, 100%, 100%, 100% with the doctor's response. Take nothing or try a beta-blocker, anti-arrythmics are potent. I tried the beta-blocker route (toperol and inderol) but I didn't ever shake that "good day" "bad day" sense and it didn't change the frequency one bit. I don't think there is a single person out there who knows any better than a PVC sufferer what a "bad day" really is. Doom. The sky appears black.
I have tried lots of natural things, and I know I can't say too much on this board, but I've found I was extremely deficient in Vitamin B complex and minerals. AND synthetic Vitamin B over the counter actually made things worse for me. It has to be natural source. My frequency is slightly decreased, but the awareness of the PVCs is 99% gone. I am blessed. I still get high frequency but I can't remember the last time I realized it. Truly. I can now feel, and allow myself to feel, safe and confident and strong again.
I have been on this regime for three or four months. If I get kicked off this board now, so be it, but I got my information on the cardio regime from Health Alert 800-231-8063. I am not promoting anything and have nothing to benefit. Hope you all experience more good days than bad.
God Bless and thanks again.
I'm reading through these because I think I have an arrhythmia too but I can never seem to get a post up in time. For all of you that have been diagnosed this may sound stupid, but what does it mean if I get an irregular pulse (2 quick beats, pause, beat, pause, quick beat beat beat.. etc) when I get up from sitting for a while, run up the stairs, even walk briskly? The beats I feel are pretty hard. Does that sound like anything any of you have experienced? I just don't know what to do and thought some of you might have insight. Even resting it seems to go faster then slower once in a while, just not nearly as noticible. Im a 22 year old female. Thanks all of you so much if you have any insight, sorry to intrude on your post and good luck finding answers yourselves!
Just keep reading here and you will gain an insight that might help you feel much better about what you are feeling.
Best wishes to you and everyone!
Angie
Why should you be kicked out for what you said?? It's very interesting. It doesn't mean taking vitamins will help everyone with PVCs, but it could be another thing to look into. How did you find out you were deficient in some vitamins? I wonder why tests to look for such deficiencies are never ordered.
Personally now I'm doing extremely well with Inderal but it would be interesting to check my vitamin level.
Thanks
Fran
Two days after returning home, was back in the hospital with bad,(and I mean bad when I say bad) chest pains. Vacationed there for 2 days and had an echo done. Was sent home with a supply of xanax. Visited my cardiologist 4 days later who stated,"Your cardiac enzimes where high while you were in the hospital, you had chest pains, and your ejection fraction has dropped from 60% to 45%. Why didn't the EP do a cardiac cath on you to ascertain if there was heart damage." I took the xaxax out of my pocket, held it up for him to see, and swallowed it without water. (a new experience for me.) I was also sent over to the hospital for testing to rule out a pulmonary embolism (clot) due to history in my family. No clot found, but I nearly stroked from fear. Had the cath performed. Apparently the pacemaker alters the EF on an echo and all was well after MD measured all the goodies in my heart.
Presently I am on 25mg of Tenormin 2x/day and Flecainide 100mg every 12 hours. I still have pvc's, but not as frequent. I don't have side effects from the Flecainide, but do concern myself about taking this med. Tried to reduce the med, but PVC's became stronger and more frequent. My cardiologist may send me for a second opinion at one of the bigger university hospitals in the Philadelphia, NY area. The EP who performed the procedure did inform us that PVC's were difficult to ablate. But with the pacemaker in place I do feel better although I am the youngest in the office by 20 years when I go for my pacer check. Now taking Klonopin 0.25 2x/day to help with the anxiety. Tried an SSRI (Lexapro) and had insomnia, increased pvc's, and I was extremely irritable. (Although my husband said he didn't notice any changes) The Klonopin is longer acting than xanax and no rebound effect from this med as of yet.
I have that fear of the unknown like all of you. We never know if our hearts are going to be good to us, or fickle with us. I believe there is a direct connection with anxiety and worsening of the PVC's. I would just love to have my old life back and live without fear of the heart.
I could use a nice cold Pinot Grigio right about now, but with the Klonopin, I'll have to pass and drink cold water. I return to work on Monday as a Hopice RN. It may be time to change. Maybe someday when things are better....Good luck to you all and keep the faith!
I sure was thinking of you. I'm so sorry your ablation didn't work. The last time I had heard from you things were going well. I'm glad the antiarrhythmic is making you feel better - it probably is the antiarrhythmic.
I'm doing very well taking 20 mg Inderal once a day. I'm worried that the good effect might lessen with time. My cardio says it can happen, though on the internet I read it shouldn't happen. Maybe I might try posting this question.
Good luck to all!
I am grateful to read about your experiences. Thank you for sharing them, as frustrating and worrisome as they are. I am still taking the anti-arrhythmic drug 100mg every 12 hours and 50mg of Toprol XL in the evening. I have also added calcium and magnesium regularly, and I can tell the supplement DOES have a calming effect....at times my heart will feel agitated and "unruly" and I believe the mg really does help. I was reading that even if your CBC count shows normal range for Mg, most of us are deficient in the cellular levels, and well, the electrical cells of our hearts may misfire due to that deficiency of multiple minerals, especially the Mg. Supplementation can't hurt and I am finding it makes me feel even better than just using the meds. I take the supplements throughout the day in hopes of better absorbtion. I will see my Cardiologist again on the 20th of Oct, and I hope to maybe reduce the amiodarone to even less. I will not lower it on my own, as the adverse reactions that could happen, but maybe if I am asked to reduce it by him, my anxiety will not be as apparent.
I think it is safe to say, we all have the panic/anxiety in common too. It is nearly impossible to prove to someone that does not experience anxiety AND arrhythmias that the irregular beats set the stage and make it impossible not to let the fear run away with you. I have generic Valium on hand in case a meal or weird beat sets me off. I sure would like to be free from this as it is like a plague.....I feel you all agree. I do wish for us all to find relief very soon. Bless you all,
Angie
If your heart study comes out fine and you are wondering whether you have "anxiety".... it is just amazing how much like anxiety a deficiency in Magnesium is. I've been taking Mg for about three weeks now, and it is amazing how much it has helped with the AF AND how calm what a much improved sense of well being I have. Perhaps you would find this of value?
If you want to know what will decrease (or increase your palps)
These web sites are for you:
http://magnesiumresearchlab.com/Mg-and-Potassium-in-Lone-Atrial-Fibrillation-9-11-03.htm
http://mdheal.org/magnesiu1.htm
I hope to ask the MD's here on this forum to comment on these papers, unfortunately so far I have not been able to post a question to them (the board is always filled).
There is much more on Mg on the web if you do some searching.
Good luck,
CMiller
I am a 36 year old female whose just been diagnosed with PVC's, PAC's and Supraventricular Tachycardia. At times, it feels like my heart stops for a few long seconds, once it catches a beat it goes about 150 bpm then it slows back down fairly quickly. It is such a scary feeling. My Cardiologist prescribed Toprol XL 50 mg a day but after researching the med I don't feel comfortable taking it. I'm already exhausted from chasing 3 small children around the house and need not to feel any more sluggish than I already am. This condition has brought a lot of anxiety to me and depression is another side effect I want to stay away from. My Echo came back normal and the Cardiologist said that, in my case, I would be okay either taking the med or not. My question is: Has anyone tried to take a more holistic approach to this problem. I heard that fish oil has been used in heart patients to reduce the frequecies of arrhythmias. I know that mainstream meds save people and have nothing against them, but, can anyone shed some light into this subject? Do any of you use supplements (with or without meds)and how do they work for you?
Sorry you are feeling the pesky and worrisome beats. Please re-read the posts in this thread again. There's a pretty in- depth commentary regarding Magnesium deficency and supplementation in here. It has helped several of us feel better. I would love to be able to do research to get the common factors between all of us that have irregular heart beats. I beg to know what causes them....and if I could I would solve the mystery! We should get a grant and study this. I'd much rather take Magnesium and Calcium with a spot of potassium from time to time too.
I can only hope physicians will take heed in the deficiencies being culprit to MANY conditions that do not require prescription drugs. It is almost controversial if ya think about it.
Best wishes and keep reading here, it really does help.
Angie
More good stuff for you!!
Use of taurine and arginine
http://george-eby-research.com/html/taurine.html
http://george-eby-research.com/html/taurine-l-arginine-arrhythmias.html
1. Make sure you do NOT take Mg in glutamate or aspartate form.
2. AVOID MSG or free glutamate- this will increase palps.
3. Watch the ratio of Mg and Ca.... some indication of too high Ca is what is causing our problems and it may be best just to use Mg for awhile.
4. some folks may have Candida- fungal infection causing arrythmias.... here is something that helps.
Potassium and Mg in Afib... I think I might have posted this elsewhere.
http://magnesiumresearchlab.com/Mg-and-Potassium-in-Lone-Atrial-Fibrillation-9-11-03.htm
This is BEAUTIFUL Stuff, guys.
I'm sorry to hear that after going through an ablation, it didn't quite do the trick for you. And yes, only a sufferer knows what it is to live with such an enemy every day.
I don't think there is any standard labortaory test out there to tell that you are deficient in vitamins or minerals. So how do you know? I guess trial and error (just like they use with prescription medications, lowest dose and raise it, or try a different medication!). I just did the same with vitamins and minerals.
But after awhile found that there was a difference between synthetic vitamins and minerals and those from whole foods. You know, the difference between vitamin C as ascorbic acid and eating an orange! There are so many cofactors in an orange that makes the vitamin C work better.
I sure don't want anyone to chase something that doesn't work, but the Standard Process cardio supplements (and even increasing my iodine levels) worked for me. SP uses "whole food" supplements. I only want to suggest that everyone keep trying, something, because at 20,000+PVCs/day, if I feel better, I hope and pray the same for everyone else.
There is one more thing I'd like to add. While the cardio supplements helped eliminate the sensation of PVCs, I think the minerals found in them have almost completely eliminated the anxiety/panic attacks as well. It was a vicious circle that appears to be broken.
I quit drinking coffee, don't drink sodas, and don't drink alcohol. I had another episode the other night which caused me to get out of bed (4:30 a.m.). It lasted 2 hours!...uggh!! I was able to semi-control it by the use of vagal maneuvers (coughing, and cold water to the face). I am now going out to the store to pick up some magnesium which I hope will help...thanks for the help.
I am sorry that so many of you are experiencing the same thing, but it truly helps me in knowing that I am not alone. Thank you so much for sharing.
Jeanithbug
I am glad to hear finally that a doctor admits there is a lack of oxygen issue with bigeminy. How could there not be. My GP always said no. But there was nothing else to explain the shortness of breath and momentary dizziness.
So glad to hear you are out of pain and now able to get about. AND very glad to hear you still have a sense of humour (it helps that your doctor does too).
ps, my absence was mostly due to not wanting to "jinx" myself by saying how much better I felt, and then go into another tail-spin. So far so good.
I still can't say enough how much good a chemical free diet (food additives) is for you. Like the above poster, macro foods, whole foods are best. Did you know "hydrolzyed plant protien" yum, sounds like it should be good for you, it's plant protein! after all, but it's just another form of MSG. Yikes.
Keep on having good days (and read those food labels).
Sorry, have not been on the forum for a few days. Thanksf or yoru kind words. Have been feeling very great lately. amazing in fact. that is until today, when I went on a 15 mile bike ride. felt great the WHOLE way, and now a few hours later, I can tell that I have to be really careful or I will be up all night with weakness/palps. No palps yet, but I am learning to detect the symptoms. I can tell in my case this is Magnesium and potassium and I'm ahving a hard time keeping it in balance. Once you loose your magnesium balance a the cellular level, it can be VERY hard to get it back. May need IV injections, which I may have to talk to my doctor about this week. Most conventional docs won't help you with that, so I may have to find someone in alternative field who is willing to do it. Search the web: Walt Stoll- magnesium, and you can dig through the archives. takes time and there is good info. Most of what I have learned I have dug up on the web, read many,many abstracts on med line. if you search this forum you will also come across many of the links I have found most helpful. You will find that I do believe in high grade quality beef - go to www.mercola.com and read about beef and soy for the truth.
Here are some of my favorite links:
http://mdheal.org/magnesiu1.htm
http://george-eby-research.com/html/taurine-l-arginine-arrhythmias.html
http://www.krispin.com/magnes.html
I need to go eat some raisins.
:)
Will keep you posted. Please let me know how you are doing.
Cmiller
In conclusion, I would highly recommend a skilled accupuncturist, someone from mainland china with high acclamations.