My son (10 years), 33 kgs is BAV. 2 years back he has been through balloon valvuloplasty to open his aorta valve. The procedure went off well. During a recent regular checkup, his ascending aorta was found to have gone up from 3.0 cm (6 months back) to 3.5 cm. We have been told to be ready for surgery in future. As of now we need to go for next review in 6 months time (July, 2012) to find out how is it progressing.
At what size of Aorta would the surgery be required ?
Usually the recommendations for adult patients with bicuspid aortic valve is to have surgery when the ascending aorta diameter had grown to 4.4-5.0cm. IF there is valve disease along with the aneurysm (such as your son's case), recommendation is to do replacement of valve+ascending aorta at diameter 4.0-5.0cm. At your son's current state, he should have at least yearly CT or MRI to track the aorta diameter, and should strongly consider surgery as soon as the diameter has reached 4.0cm since he seems to have an aggressive increase in diameter. Also remember NO HEAVY LIFTING due to strain to the aorta. Good Luck.
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