I'm looking for some clarity and sanity. I turn 34 years old today, and the last 10 month have really been difficult.
Christmas 05 - I went to the ER with chest pain in the center of my chest. I had been having some arm and jaw pains with and without the chest pain. Brought on during stress at work. My BP was 250/150. I have high
cholesterolCholesterol
Cholesterol and diet
Cholesterol producers
Cholesterol test
Coronary risk profile
High blood cholesterol and triglycerides and am a bit overweight. Parents in their 50's, no known
CADCoronary heart disease. All tests came back fine - including a
thalliumThallium and sestamibi stress tests stress test with exercise.
April 06 - continued chest pains during stress and sometimes at rest, sometimes dead center, sometimes more of a "fullness" in my upper chest. Same jaw and arm pain. 64 slice CT ordered. NO calcium, no other
blockagesPeripheral artery disease seen.
Since May 06 I haven't had much of that center chest pain, however I developed PVC's that drive me nuts, and sometimes make me feel I'm winded. When I get the PVC's many times I get jaw,
shoulder shoulders intensive treatment
Shoulder arthroscopy
Shoulder pain,
neckCervical spondylosis
Head and neck glands
Herpes zoster (shingles) on the neck and cheek
Irritated seborrheic kerotosis - neck
Lymph tissue in the head and neck.
Melanoma - neck
Neck lump
Neck pain
Neck pulse
Neck x-ray
Oral cancer and arm pain with them. I ignored them for a while but finally went and got a stress echo (July 06) - again it was fine.
It's like I progressed from this dead center chest pain a few times over 5 months, to these PVC's. The jaw, neck, shoulder, and arm pain has continued to become more frequent and intense. In fact, my jaw hurts right now as I have PVC's. But, no center chest pain. The dead center chest pain was VERY Different than the PVC's. However I'm worried something was missed, or is progressing? Stress didn't CAUSE this, I'm stressed because of it.
Should I push for more tests - cardiac or otherwise (lyme? systemic?) I know so far, they say I'm clear.
My only other symptom is that if under heavy acute stress at work I'll get a tingling from my chest up through my jaw. BUT it does not last long - 10 seconds maybe? Again, only under acute stress. I could go run sprints in the street and not get that.
So, I understand pointing to stress, other than I took a 10 day vacation and had the same symptoms, and I've reduced a lot of other stress in my life because of this.
I still live my life, exercise, sex, playing with my kids etc. However those activities are a lot less enjoyable because of this. I'm worried the entire time something is going to happen.
I know my tests points towards something else, I accept that. I also feel because of my age it's not taken as seriously.
My ONLY real stress in life right now are these pains, pvc's and sometimes random chest pains. I've had a few days they are not there, and I feel GREAT, I'm completely myself if only for a few hours.
Most days I spent a large part of it with some sort of jaw, shoulder, or upper arm pains, mainly on the left but both.
I get PVC's and sometimes chest discomfort. I mean, I really am uncomfortable. After a bad bout of PVC's I feel physically tired.
I've been tested a lot I know, but I still feel bad and many of my symptoms, chest pain, jaw, shoulder, arm, and neck pain, PVC's really point to my heart. I have high cholesterol and elevated BP (take meds for both).
I just really don't know what to do. 12 months ago I felt GREAT life was good. Life is still good, outside of this ****. My PC doc says I'm a mystery and I figure he thinks it is just stress. BUT my PVC's are documented so that isn't NORMAL. But it's not the PVC's alone, it's the chest pain, jaw pain etc.
If it is not cardiac, I'm not sure where to look and neither is my PC.
I've spent a lot of money, and I don't care if I spend more. I simply want to feel normal again.
Thanks.
Hope you have Happy Birthday despite feeling unwell. I know the feeling. I've had/have those same symptoms, always had sinus tachy and PVCs, but the chest pain, very slight jaw and shoulder pain , even numbness and tingling in my hand and arms has been around since I was about 33/34, I'll be 42 in less than 2 months. Like you I never really made it interfere that much with my other enjoyments in life but it was always in the back of my mind what if. I had echos, EKGs too many to mention,holter monitor, and regular stress test, all essentially normal.I started getting all this testing back when I was 22 for PVCs and tachy and had several repeats since then. PVCs , PACs and even some sinus tach is normal and the vast majority if not everyone have them at sometime or the other whether they are aware of them or not.
I was finally diagnosed in 2000 with a connective tissue disease( ankylosing spondylitis) now classified as a connective autoimmune tissue disease which simply means its a little worse than once thought though rarely life threatening.
At least this finally explained the chest, shoulder, neck , jaw pain and numbness and tingling in my arms and fingers, in my opinion it is probably responsible for some of my other "cardiac symptoms" also. Just sharing my experience this might not apply to your symptoms at all, but it might be worth getting a muscloskeletal check up also, as nerves and compression in the neck can cause all sorts of symptoms in the jaw , shoulders, arms, and neck. Good luck and Have a great B/Day.
In the meantime, I'd suggest reading a lot--I mean a LOT--at this site. Type PVCs into the search box, and read how many of this experience these things, what we learn, and how we cope.
If your next consult and eval shows that you're healthy, and the possibility is raised that anxiety is a factor, it could help a great deal to have a session or two with a good shrink (they're medically trained) to discuss your emotional reactions to your symptoms, and how to deal with them. If go back through messages concerning PVCs, you'll see that some people have gotten their lives back via this route.
This sucks. It's DEFINITELY not just mental. I've got muscles spasming at times with nerve pain and palps. It seems to cycle every few weeks and get worse and better. I was hoping the Doc had maybe seen something like this before and had other thoughts on what it could be.
My BP was only up accutely, I take Altace and it generally runs 120/80.
Oh well.
1. Several studies confirm that plasma levels of potassium and magnesium do not always reflect what is happening at the cellular level. You can be seriously deficient in these ions and it will not show up in plasma, and yet no US doctors that i know of test Red Blood cells or a less enjoyable procedure.. muscle punch to establish cellular levels of these critical ions. These ions along with Calcium are absolutely critical for proper cardiac function. If I had it to do it all over I would stand on my head and scream until these ions were tested in RBCs (and pray that someone knew what they were doing as this test requires some skill) at the peak of my symptoms.
2. There is a study that shows that magnesium with potassium supplements can be very helpful in resolving arythmias in pts. who have normal potassium and sodium levels. No one knows exactly how Mg works... seems to act like a Ca channel blocker, why it is not tried FIRST Over a drug is beyond my understanding. You need Mg to help you hold K, otherwise with a dramatic shift in intracellular levels you will have a tough time holding on to it.
3. Taking potassium is tricky because of its impact on the heart, but not as tricky as represented by most medical professionals. The paranoia about K is costing us dearly. In a study of 4000 patients being treated for hypertension with K+, complications were seen in less that 150 and the DEATH rate was .14%. This is in Compromised patients. It is more than reasonable to believe that people with relatively normal kidneys will be more than ok with some K suppmentation. table salt is high in Sodium. WE are NOT getting enough potassium in our diets... period. And mark my words as you read them on this web site: Potassium will be shown (if it hasn't already) with Ca and Mg to be absolutely essential for maintaining bone (preventing osteoperosis). and by the way, a recent alert to pharmacists just came out that some drugs to treat Osteo will cause bone to deposit Ca crystals in the wrong orientation, and this harmful structural situation IS IRREVERSABLE.
4. resolution will take time because once your acid base and electrolyte balance in the cells shift and you get a build up of ions like Ca in the cell, it can take time for the proper equilibrium to be re-established.
So.. every day I have fewer and fewer palps because this weekend I finally got the ER doc to give me K and Mg. It's like my whole body relaxes about 40 min after I take them. and I take it every day. The beauty of this plan is that my sense of wellbeing has also made a dramatic improvement, even though I am having symptoms (less frequent and reduced intensity with each day). I will not tell you how much to take, because you need to work it out with your doctor and they need to make sure that nothing else is going on. A hint is it will probably will take about half of what they would normally perscribe in the ER for an oral does of K or Mg. It will not be easy, you will have to insist, because they will not believe you. Just search medline like I did or the internet, and you will quickly find the same articles I did. bring the abstracts to you doctor. Like the one called Magnesium in Cardiology. I spread the pills out over the day because these pills can be hard on your stomach/cause diarhea (diarrhea). I also take Calcium in between, the Mg/K dose. Now I eat an excellent diet of raw veggies, fruit and small amounts of high quality protein (fish, grass fed beef). Take omega fatty acids, Vit E, bioflavinoids/anti oxidants, and 2-3 x 1000 mgs of Vitamin C. Drink lots of water, but put a pinch of sea salt in it.. it is better absorbed with a little salt according sports physiologists. You must, must must have food intake that nurtures your cells, and that is high in the essential elements K and Mg. So that means dump the processed carbs and fats. They will compete with "good fats" that are so essential to heart health. Good fats are Olive oil, extra virgin coconut (best to cook with this oil), and butter (organic... in moderate amounts and the omega fatty acids. Butter in moderation is NOT bad for you and is FAR better than margarine... the pesticides and other hormones in it from non-organic sources will collect in your fat cells and give you a different set of problems.
If you can not take K, there is a study that showed that Mg alone can make a difference... just will take more time is my guess. Go to store, get Mg/Ca combo pills and take as directed. And eat a ton of FRESH food high in potassium. Raisins helped me. I think K has been important for my recovery. I'll keep you posted.
cmiller
Here's a link for you about magnesium.
http://askwaltstollmd.com/archives/cardiac.html
The more I read, the more convinced I am that Mg and K are the key. This site only confirms what I have read before. BTW, my doctor agreed to the RBC K test...even though she said "have never had one done in 20 years" when I went to a major university lab... they said we don't know how to do this!! This link gives some sources!! And now I know that intracellular Mg is even more important than K+. Also this doc talks about relaxation being key as well. I think he is right.
In my humble opinion, the studies on electrolytes in cardiology are a mess- most test plasma only and studies use a single form of potassium or magnesium supplements and then have the audacity to say that the electrolyte was not effective in effecting change. It is clear that different forms of these ions (citrate, orotate, gluconate, chloride) can have different effects with different people or conditions. I've noticed that myself as I respond quickly to K gluconate, whereas KCl seemed to take a lot longer.
Keep me posted on how you are doing. Cmiller
I hope many people will stop and listen to your words they are so true! I also grind my own wheat and make my own fresh bread, eat those fresh yummy veggies and cook with the e-virgin olive oil, and coconut oil(so good) also red palm oil is great for losing fat around the middle! great for frying with or just eat a teaspoon aday! what we put in our bodies is so important! Our bodies are crying out for good nutrition, we need to start listening. And lastly WATER! I started drinking lots of water, this keeps the body flushed and running smoothly too! I try to stay stress free too hard at times with homeschooling 6 children from teenagers to toddlers but praying, relaxation, and exercising is key in managing my stress. I used to get panic attacks and sometimes I wonder if that is what gave my heart a electrical change from being on high alert all the time with panic and hence causeing me to have palps. I guess we'll never know but our heart does speak to us and I believe there is a reason it does what it does. For example a year ago I lost a baby with a late m/c and hemmoraged. My heart went into a sinus tachy. My heart was beating so fast when alls I would do is stand up. It would go from 90 bpm at rest to 160bpm. when I would stand up and thats because it was beating fast from the loss of blood to make up the difference it had to beat fast so my body could recieve more oxygen. So sometimes what makes us feel like its not right really our hearts are doing exactly what they are suppose to do! Anyway didnt want to get off track but thanks for sharing your info. with everyone its so good!
Blessings~Debbie
Bless you all....and me too!
Angie
Hang in there!!! Here's what you have to do... STAND ON YOUR HEAD. Hop up and down until you get what you need. I mean it, until you find a doctor and say... look... I need to find a way to do this because what is happening now AIN"T working. So your question is not "can I do this", it is WHEN I DO THIS, HOW CAN I DO THIS with the MOST safely? and unless they can demonstrate to you that there is NO WAY this can work, then they have to help you figure out a way to do it. Ok the other thing I guess I would do is stand on my head until they agree to do a RBC Mg and K level. The trick is they may have no clue how to do it. you mgith need to find an independent lab... not sure.
these people can do it: http://www.exatest.com/. Also go to this web site: http://www.lef.org/quest-com.html . call their help line... maybe they can offer suggestions on how to talk your doctor into this.
I went to a complementary medicine specialist on monday this week... how refreshing. It was almost hilarious because he was trying to convince me that taking Mg and K supplments were ok AND that you really couldn't tell Mg levels from plasma... you needed to do RBCs. This after I had been screaming for a month begging for salts and saying the same thing to my other doctors! It was too absurd, but at least it gives me hope that someone might be open to the options. Dispite this I still don't have a full plan of how to get back to health.... I mean I feel great... maybe a little heat in over the heart like now... so how do I make sure I'm at homeostasis? I guess I have to figure it out for myself. Plus he is giving me the stress factor thing too, which can certainly be part of it, except man, when you feel how good it feels when you get the right Mg and K in your body... you will feel the change, like I did IMHO.
Debbie- thanks for the confirmation... we need to sing the praises of ca mg k supplementation... I keep getting better every day!! (except hot flashes at night as I am starting peri menopause..according to my doctor of course that is impossible since I have not missed a period. remind me to give my ovaries a good hard talking to about all of this because apparently they have not read the manual)
We need to get this spread across this forum. It may not help everyone, AND I KNOW it will help a lot. If I can ever get a question posted on the forum, I'm going to ask the cleveland clinic md's about it.
Thank you,
Angie
Well, girlfriend... best give you an update first before you take my advice. Had two VERY difficult nights the past few days. Not much sleep and a lot of palpitations and weakness... I think three factors contributed. 1. I worked out 2 days before - 30 laps in pool... while I can do it and feel good while doing it.. my body may not yet have capacity to recover yet, 2. was feeling so good started to pare down the K and Mg dose, and 3. also ate a large amount of carbohydrates each evening - pasta or cerial. Interestingly, in my case I found that if I crawled around on the flood or otherwise kept moving it seemed to help. Also do breathing... draw in 5 sec, hold 20 sec, blow out 4 sec, repeat as needed.
And yet today, with so little sleep I feel amazingly good... just a little tired, but not as tired as I might in the past with so little sleep over a two day period. I am REALLY surprised. Heart is whisper quiet. Also I've found that i am calmer overall, so I think Mg (whether you find out you are low intercellularly or not) will probably help you too. You just need to be really careful because I do not know about all the other meds you are taking and how they might interact. What I've learned (I think) is: This is going to take a longer time than I think.. I also learned a few things about mg at this site which make sense as far as how much, what type, how often:
http://www.krispin.com/magnes.html
I think it will give you some idea of how much to take. I think on another part of this web I talked about making a bone soup... you might want to consider that. I made one today and it could also be what is contributing to how I feel now.
Here's more info:
http://askwaltstollmd.com/archives/mg/109308.html#109575
here's another web site.... I have so many of the symptoms, it is scary... so scary in fact I am afraid I have been having TIAs at night (when I was saying I was waking in trance).
http://mdheal.org/magnesiu1.htm
I finally called my Primary doc and said I want to meet with an endocrinologist- one specializing in mineral metabolism. Have not yet heard back yet. I am going to get my RBC Mg done somehow, if for no other reason than baseline. I wish they would measure it at 4 am when I'm feeling like hell. You can tell from the papers that even if you are deficient, they can't always tell. and there is no way I am ever agreeing to an EMG ever again. (where they do muscle conductance... have to stick big pins in you to do it... no damn way)
I know doctors care, and at the same time I feel so much on my own in this. believe me, even this small connection is a big blessing. I have no intention of going forward without resolving this. wish I had more to say. by the way, I have read also that bromelain can be wonderful for generating a feeling of well being (reduce anxiety), as well as Kava kava. I bought some bromelain and will try kava at some point. you might want to research those on line too.
cmiller
during our last update I talked about feeling great since Mg, then followed by two nights from hell (after working out and eating carbs). Underneith it all I can tell the Mg is helping- I am calm and happier... So I dutifully took my Mg/K as usual the next day and added a couple things to the protocol-
Cooked up our bone broth/stew as described elsewhere on this forum and drank that all day along with eating tons of fresh fruits and veggies. to get those darned trace minerals.
Mg can be absorbed through the skin, so I poured a big bath of epson salts, added a cup of baking soda (sodium bicarbonate). (found this recipe on a web link on this forum). for good measure I added some Potassium bicarbonate (in non aluminum baking powder) so I could get some potassium, too.
went to sleep early, woke up in the middle of the night with the weirdest sensation in my neck,, almost this spasmotic opening of the blood vessels... could feel more blood moving to my brain... in waves... I was a little disconcerted, to say the least because it felt so strange and I'm waiting for the other shoe to drop, until I noticed my heart was silent and my whole body was relaxing. my breath was deep and easy... oh fabulous. It felt so good I couldn't sleep because I was in such a state of enjoyment about how good I feel in every cell (except my stomach, which probably didn't like the magnesium and K supplments). I could feel the blood moving into different parts of my body... warm and tingly. Anyway, I can begin to tell you how good it felt or how good I feel now. Holy smokes. Mg is absolutely key. my heart is wisper quiet.... like the old days. not even there. I was yawning and realized I hadn't yawned in DAYS if not weeks... as the tension released from my body.
I'm realizing that this takes time..maybe months. and that I may be susceptible to easy loss for quite some time so have to keep it up and watch carefully what i eat. And oh my gosh this is worth everything I have done so far. It is such a travesty that Mg is not given more to people with Palps. do the research on the net and you'll be a believer, too. I am so relaxed today... oh fabulous. I would so want this for every person on this forum. Some people may be content to live with palps for years, and I may have to... but I don't think so. If I can get to hold Mg, I will stay 'silent".
Oh yes, for all those of you that think palps mean nothing, make sure you see if you have any other Mg deficiency symptoms. because if you do, the long term can be ugly, including TIA (mini strokes). and your doctors will not catch it because they will only test your plasma Mg levels, and not RBC levels, which are critical.
http://mdheal.org/magnesiu1.htm
cmiller
Thank you,
Angie
This web is a MUST read for anyone having Atrial Fibs. Talks mostly about "lone" Atrial Fibs...which is what I have, AND anyone with Atrial Fibs should read....
http://magnesiumresearchlab.com/Mg-and-Potassium-in-Lone-Atrial-Fibrillation-9-11-03.htm. I realize that from a lay person's review it might mean overwhelm because it is very technical.
some show stoppers:
1. How MSG (monosodium glutamate) causes atrial Fibs by impacting taurine... that makes eating out a risk. I ate out tonite BEFORE reading this and asked if anything had MSG in it. they swore that the rolls I had didn't... but I think they did and I just hope I don't have any problems tonite!!
2. MSG also can trigger PACs (which I have).
Why are they allowed to use this STUFF??? why aren't our doctors warning us about this!!??? I am petrified now that I might have eaten the stuff. I'm going to buy some taurine. I ate a swab of peanut butter (high in Mg and protein) Foods high in taurine... fresh fish and meat... I'm going to cook some NOW. I do not want an episode.
Other- vitamin D increases Mg absorption
here's stuff on MSG:
http://www.msgtruth.org/remedies.htm
This is CRAZY!!
By the way, watch the amount of Calcium you are taking... don't want to have too much you won't get the benefit from Mg.
also, Zinc may be important, but it can strip copper.. another element important in cardiac health. supplementation is VERY tricky. the best way to get this is in food...as much as possible.
CMiller
Good luck.
Anyone who keeps getting : no problem with PAC, PVCs needs to read her post. This CAN be a sign that something else is going on. We've got to quick sweeping this stuff under the rug just because docs can't figure out what something is, doesn't mean it is OK. I want to see that study that looks at long term effects of PACs and says they are "no problem". What did they look at specifically?
CMiller
I have never tried Rolfing, however, I did have my first deep tissue massage earlier this year. It hurt so bad. I felt so sick afterwards and probably shouldn't have driven home. After I got home, I vomited and my body hurt for weeks after. Needless to say I haven't done that again. I also went to my local health food store and I talked to a knowledgeable sales person there. She told me that I probably had a magnesium deficiency. She sold me some effervescent magnesium (I don't remember the brand) as well as inositol. I starting experiencing the tingling and numbness after taking this for a while so I stopped. But the tingling and numbness continued. Hence the visit to the neurologist. Like I said, I have seen so many doctors and, for a while, just gave up with the medical profession altogether. I feel like they just don't care. I know within minutes whether I'll get the care I need or just a prescription. You have approximately 30 seconds in your initial address to capture their attention and then you get the all-knowing glazed-over look that says, "this lady is depressed and needs to be on xxxx SSRI". That may be the case now, but it wasn't when I first started my quest for good health over twelve years ago. Two doctors (a neurologist and a rheumatologist) both told me to pick out what was bothering me the most and they would prescribe medication for that. I need a qualified, caring physician to look at my ENTIRE makeup and make a diagnosis from that instead of picking out parts. I wish I had kept all of those prescriptions that I have been giving over the years because I would probably be on fifty different medications right now.
I have stranded from this thread and for that I apologize. I do have the same thudding, rattling, shaking sensation in my chest on occasion mentioned in the postings above and I do experience chest pain, shortness of breath and needed some education regarding this frightening condition and what the possible cause could be. I think educating yourself is a very powerful tool and look forward to learning even more from my peers.