Hello Again! I want to thank you so much for giving us the oppurtunity to ask questions here and somebody actually listens. I posted a question here recently how I started taking
ToprolToprol-xl xl 25mg after having A-fib for the
firstFirst progesterone mc10
First progesterone mc5
First-progesterone vgs 100
First-progesterone vgs 200
First-progesterone vgs 25
First-progesterone vgs 400
First-progesterone vgs 50
First-testosterone
First-testosterone mc time. I had a large increase in palps. from my
normalNormal saline flush of 1-10 a day(ocassionally more and sometimes none!), to 200-300 a day and one day I had 2000+. So they switched me to Atenol 25mg. I was ok with a small amount of palps. for 2 wks and then they started to get worse again. I had alot of them yesterday and they triggered
tachycardiaArrhythmias
Multifocal atrial tachycardia
Paroxysmal supraventricular tachycardia (psvt)
Sick sinus syndrome
Ventricular tachycardia. I went to the ER and the Dr. there tells me that I would just like to think I would be better with no meds. but that I probably have just gotten worse over time. So I call my Dr. who is new to my case because of new insurance and he tells me "Beta- blockers will not do that." He told me to up my dose of Atenol to 50mg. I told him I was concerned because of all the palps and I think they will get worse. He says that can't happen. My resting heart rate at home is 60. How much lower can it go?
I've had palps for 6 1/2 yrs and they only got this bad after the a-fib incident and I started to take
ToprolToprol-xl. I don't know whether to increase the dose and see what happens or stop the meds and see if they slow down again. I'm worried either way. He did say it doesn't look like I have WPW. They think my palps just coincidently got worse after the a-fib.
I see another Dr. next Thurs. as long as they don't cancel my appt. again.
Thanks so much! Sue
Thanks
Thanks, Sue
Did they go over diet, exercise, heart tests ?
Sue
Have you had a tilt table test ?
I had this due to the b/p ?
Any heart disease in your family ?
Good for you following all the good heart tips.
Do you have mvp ?
By the way, all three EP docs diagnosed the same thing in my case: RVOT (pvcs/and nonsustained vt arising from the right ventricle outflow tract). It is very "ablatable" but all three docs say this is a totally safe condition (can you believe that?!) even w/ so many pvcs. So, although they will ablate any time I am ready, they would rather see me live with it if I can tolerate it because although there is a very low risk from ablation, there is no risk at all with my condition (my EF is high). For me, having (finally) seen electrophysiologists (instead of the cardiologists who know less about these things) has been the reassurance I have been looking for. I recommend being very proactive and finding doctors you feel comfortable with who will take the time to explore your concerns. Then, I recommend major mental overhaul and re-evaluation of your life, your fears, etc. Radical acceptance of pvcs is the best medicine. (I am also going to give meditation a shot, what the heck)
In December, the pvc's raised some concerns that I did not expect. During my annual echo, my EF dropped to 40 (it had dropped earlier in the year also), and a number of doctors suspected the pvcs to be the culprit. Because of the test results, they were able to determine that my MVP/MR was ot the problem, which led them to the pvcs! Hmmmm...."benign" just took on a whole new meaning for me. However, it is my under-standing that pvcs rarely cause this problem. To effectively assess their hypothesis, I was given flecainide and then rythmol (switched to rythmol because of side effects) to see if a decrease in pvcs would lead to an increase in EF...If not, I would need an ace inhibitor...UGH!!! After 3 months, the EF went up to 45 (~10%). Good news!! In July (6 months), I discussed the RX side effects with my EP and she reminded me that I could try an ablation (no guarantees). I asked about stopping the RX altogether and was told that was no longer an option (because of myopathic changes as a result of pvcs). WHOAH!! Long story short....Went for the RVOT ablation in August and so far, so good. It is wonderful to have more good days than bad! Although we are not certain if the procedure was entirely successful, it is wonderful to be less symptomatic. I do still have pvcs but they do not seem to be nearly as persistent. The doctor who performed the ablation said she noticed a remarkable drop in pvc frequency (EKG) immediately after she ablated the ROVT. She knows that I have other foci, but she was not able to trigger them at the precise moment that is necessary to ablate. I had really come to live with the pvcs (they were like my own shadow!!), but when it came to a change in the heart's pumping function, I got in line for the ablation. I was never really afraid of having a heart attack or anything, but I was scared when I heard about the persisten drop in EF! YIKES! For me, the ablation was the right decision. However, if someone can make the positive mind/body connection and deal with the pvcs in a less assertive manner, I say GO FOR IT!! I did that for a very long time, and I'm hear to tell everyone...once you know your situation is benign, relax and don't let your imagination run wild. Remember, you are probably getting at least yearly checkups and the docs are watching...So, relax, trust your doctor (or find one you can trust)and enjoy life! Mind over matter can be exhausting....
I've had these symptoms for 20 year but NOTHING like this before... I was wondering if it is possible that going off a low dose of beta blockers that I only took for one month could have produced a rebound effect like this?? Anyone know?
I've been off them a week now and surely this should go away if the rebound sensitivity to adrenaline is causing this. I can't do anything -- eat, move, stand, much less walk , without having jumps, skips, fast heartbeats, over and over. I am so tired of being afraid
As Mark Twain put it: "The key to longevity is to aquire a minor illness and to nurse it for a lifetime."
You seem very knowledgable in regards to the "heart" in general so I have a question for you. People talk about a-fib. I have read that some people don't even know they are in it. I would like to know exactly what the symptoms are. I have been woken up in the night with a very eratic heartbeat. I've clocked it at 220. It is very irregular, I mean all over the place. So much that it is hard to count. I can't believe that when I am feeling it that I'm not passed out. The wierd thing is that I do not feel like I will pass out or anything. It just beats like this for about 12 minutes or so, sometimes less. It only happens about twice a year. My doctor says it is probably a-fib but tells me not to worry. (I have had all the test, but no ep study). If that is a-fib how on earth to people not know they are in it? It is not a fast heart rate that you can slow down with breathing. It is "stuck" and just stops when it decides to stop. Any comments?
For some reason my palps have slowed way down this past week. Yesterday I didn't have any until 5:30pm. Then I only got 7-8 the rest of the day. They did that when I was on Toprol too, and then the next week I got 2000-3000. So I'm not celebrating yet. However I did change one thing. I have taken a vitamin supp. for years that has 60mg of iron in it. I always have just over the anemia level in my bloodwork. But I thought maybe too much red blood cells might make the heart work harder. I don't know, just reaching for the stars on that one!
Hope you continue to feel better!
Sue
Thank you for all your help. With all the knowledge I've gotten from this forum, I think I found a very caring and understanding Dr. I knew the right questions to ask thanks to everyone here.
Thanks for your help and I hope you continue to do well!
Sue