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Avatar universal

Can anyone explain what this means ?

When you have cardiomyopathy and CHF, CAD, COPD, leakey valves
periphral edema, lupus, gastric carditis, and lung nodules in both lungs.
You have a CRT-D, and on lisinopril, and metatoprolol.  Then you start
with these arrhythemas that last for hours on end, severe fatigue, and
tachycardia a few times a day.
Then they tell you this is normal when you are progressing.  
What does this mean ? ?  
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Avatar universal
Thank you for your help !   I have seen my electrophysiology cardiologist and my regular cardiologist. Also had an event report done, and they had me do a CT on my chest and abdomen.  No results on them yet.  
This has been going on for about 2 months now, and it has me so fatigued, and it happens all night and all day I only get a couple hours free every day from this....
I am sorry you have had them yourself, but glad you have been able to explain them to me.  All they told me was that my disease was progressing, and were waiting to see
what the CT said.  They really didnt explain much to me, the EP guy wanted me to have an echo done, because at one time my EF was less than 20 percent.   He was concerned that it had dropped again.  Aparently Medicare wont pay for me to have another one yet.....Anyway, my EF  was 70 % back in January which they said was a miracle.....I was told 3 years ago that I needed a heart transplant.....So, this is all very confusing to me....
I sure appreciate your help !  Thank you kindly ! ! !
Helpful - 0
187666 tn?1331173345
The doctors can interrogate your device to see what type of arrhythmia you're having now. Perhaps it's trigeminy - a PVC every third beat. Sometimes we can have PVC's and not feel them; other times they'll come with a heavy thud and a quick flush/rush to the head and chest. A lot depends on where in the cycle the premature signal hits.

The devices like ICD's or pacemakers are battery run. So the more it's used, the sooner it needs to be replaced - just like a flashlight. If you use it all night during a storm, it will need batteries by the next day.

If you are having PVC's I don't know of any way to stop them. Some medications give some relief, reduce the number and sensation, but don't stop them completely. Do ask your cardio to interrogate your device and see what's going on and what can be done.

I'm sorry you're having such a rough time with them. I had a period of 5 months where I was having strong PVC's and PAC's at 15-25 per minute for  hours on end without many breaks. Made it hard to get any sleep that way but it seems they eventually settle down again on their own.
Helpful - 0
Avatar universal
I forgot, I also have left bundle branch block....that was found 3 years ago, and is why the hurry to get the CRT-D.  The device is suposed to last 5-8 years, but mine works hard and will need replacing within the next 2 months or so.......Does this happen alot ? ?
Again, thank you kindly for your help ! !
Helpful - 0
Avatar universal
Hello, thank you for your response.  Yes, I have all of those that I mentioned.
The arrhythema has just started where I can feel it so much.  They told me it is
a 3rd beat with a pause, and my heart jerks and I feel a warm feeling in my
chest and up my throat, and it is nausiating.  It is really strong, and It will be
hard like that for hours, then lighten up for awhile, then be real hard again for
a few hours.  The 3 years I have been ill with all this heart stuff, I have never
had it like this up until about 2 months ago.  This is new for me.  My device is a CRT-D
with 3 wires that go into my heart.  It paces both lower chambers, kicks in when I
have bradycardia, then it shocks me lightly when needed, then with 830 volts when needed for v-fib or a-fib.  
Apparently I have had arrhythema all along, but didnt feel it, now it is very noticible, and
keeps me feeling bad and very sick to my stomach and a knot in my throat.....my heart jerks hard too which is weird.
Thank you for your help....
Helpful - 0
187666 tn?1331173345
So you have all those things you've mentioned? If so, having arrhythmias with CHF is not unusual. Do you have an ICD?
Helpful - 0
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