Congenital Heart Defect with Abdominal Situs Inversus

Hi All,

My boyfriend was born with congenital heart disease and later on they discovered that he also has abdominal situs inversus. He is 25 yrs old and had a pacemaker fitted 11 years ago. Since then he has had much better health but suffers from pins and needles, mucus in the lungs and some shortness of breath and tightness of the chest. Since I have only recently started reading about his condition I am hoping you can share your thoughts on it. Do you know of anyone with the same conditions? I am concerned about his life expectancy, quality of life and if we have children will they be affected or carriers? I have read that there is a 50% chance our child would be affected if i was a carrier. I do not think I am a carrier but have not been tested yet.

I would appreciate any advice on this matter as it is all relatively new to me and i do not work in the medical profession.

Thanks.