Heart Disease Community
Congenital heart defect
About This Community:

This patient support community is for discussions relating to angina, angioplasty, arrhythmia, bypass surgery, cardiomyopathy, coronary artery disease, defibrillator, heart attack, heart disease, mitral valve, pacemaker, PAD, stenosis, and stress tests.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Congenital heart defect

My niece was recently diagnosed with a congenital heart defect.  Because I don't live close by, I am getting my information on what is going on from my mum, who is having trouble remembering all the details and the name of the condition.  I obviously don't want to bother my sister at the moment - se is at the hospital all the time and has enought to worry about, but I do want to know exactly what is going on.

From what my mum said, she was born with only one ventricle and will need a series of heart operations which will leave her with one ventricle and one atrium and change the way the blood goes around the body, and that later on she will probablt need a heart transplant.

From a bit of googling it sounds like hypoplastic left (or right) heart syndrome, and I have got a lot of information about that.  The only thing that confuses me is that the websites all say this condition caues the baby to be in critical condition in the first few days or a week and that it is usually diagnosed either prenatally or on the first week.  My niece wasn't diagnosed until she was two months (after suffering weight loss and a urine infection) - is this possible with HLHS?

Hope someone can help.
Related Discussions
Post a Comment
To
Top Heart Disease Answerers
976897_tn?1379171202
Blank
ed34
watford, United Kingdom
159619_tn?1318997813
Blank
erijon
Salt Lake City, UT
63984_tn?1385441539
Blank
Flycaster305
97303, OR
Avatar_f_tn
Blank
skydnsr
612551_tn?1247839157
Blank
Jerry_NJ
NJ
212161_tn?1410016711
Blank
heartfluttersflyawayplz
hoschton, GA
MedHelp Health Answers
Blank
BloodPressure Tracker
Monitor Your Blood Pressure
Start Tracking Now
Blank
HeartRhythm Tracker
Track your Heart Condition
Start Tracking Now
Recent Activity
1755089_tn?1376057155
Blank
drewlevas uploaded new photos
2 hrs ago
1236893_tn?1408490528
Blank
Alzheimer's Prevention
7 hrs ago by gymdandee
1236893_tn?1408490528
Blank
The Dark Side of 'Healthy'...
8 hrs ago by gymdandee
Heart Disease Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
Top Heart Disease Answerers
976897_tn?1379171202
Blank
ed34
watford, United Kingdom
159619_tn?1318997813
Blank
erijon
Salt Lake City, UT
63984_tn?1385441539
Blank
Flycaster305
97303, OR
Avatar_f_tn
Blank
skydnsr
612551_tn?1247839157
Blank
Jerry_NJ
NJ
212161_tn?1410016711
Blank
heartfluttersflyawayplz
hoschton, GA