Hi MM,
Sorry to hear about your medical problems. Obstruction of the outflow tract without HOCM is indeed rare. We when see a case, it is always presented at one of our conferences. Usually the ejection fraction is more affected (yours is normal at 60%). An obstructive gradient at rest of 30 mmHg is mild. We would typical try to provoke a higher gradient by having you breathe in amyl nitrate. Decreased preload, blood flowing into the heart before each beat, would increase the obstruction is probably why you are so symptotic with atrial fibrillation.
It may be worth a trip to a larger medical center for a second opintion. If you come to the CC, Dr. Harry Lever, Thamilarison, Williams, Askari, among others would be very willing to help if they can. Again, I am only familiar with our internal people and don't know where you live, else I would try to recommend someone near you if I new someone. If your note sure you are being managed correctly, obtain a second opinion from someone that sees the condition more often. Your doctor may be right, but it is worth checking.
I hope this helps. Good luck and thanks for posting.
Thanks so much for this, doctor.
Do you guys help folks who are uninsured, my local Cardiologists will not see me because I am uninsured, I have six great kids a wife and a Suburban, but no insurance, I must say one of my local Cardiologists did say he will see me but bring 800.00 up front, Doc I know the guy needs to make a living and needs to pay his staff but man Thats bold, I guess thats what I get for for being an Indigent, did I spell that correct.
It looks like I will be taking a bus to NYC to get treated, I used to work at Montifiore hospital maybe someone will help there my sister still works there.
Stuart Brandt
I live in a small town in Virginia, the local non profit hospital was just purchased for over 190 million dollars, by Lifepoint Hospitals a for profit Corp.
They have told me dont come back unless you are having chest pains or a heart attack or whatever, I still cant get a stress test, They told me to call DUKE which is about 60 miles from me.
Stuart Brandt