About four months ago I had surgery for
mitralMitral regurgitation - chronic
Mitral stenosis
Mitral valve prolapse valve replacement,
tricuspidTricuspid atresia ring and ablations in both atria. My EF is around 50-55%. I have clean coronaries. I have had an AV
nodeLymph node biopsy
Swollen glands
Swollen lymph nodes in the groin
Swollen lymph nodes under arm ablation for persistent and re-occuring
atrialAtrial fibrillation/flutter
Atrial myxoma
Left atrial myxoma
Right atrial myxoma fib/flutter so am totally
pacemaker dependent with VVVIR pacing. I am now on
amiodaroneAmiodarone
Amiodarone hydrochloride and have been for about two months. Soon I will be cardioverted one last time and if it works, they will repair my atrial lead which was damaged in surgery so that I can have AV sequential pacing etc.. I did well after this second surgery, was building up stamina, had very little peripheral edema. I was taking just 20 mg of demadex. About two weeks ago, I started experiencing increased periperal edema, now about 2+ up to my knees. Actually it is worse now than before surgery. My stamina has decreased and I feel very sluggish. I have increased the demadex to 40mg AM and 20 PM but there is still significant edema. The only other drugs I take are potassium, levoxyl, calcium and rocaltriol. My cardiologist states that he doesn't know why this happening. I wear TEDS for work, don't eat that much salt, no drinking etc. I exercise most every day though it is difficult for me. What tests should I ask to be done? Would an echo be helpfull at this point or a stress echo? or do I need to accept the fact that I will always have this edema thing? By the way, edema is painful and uncomfortable. I know we see it all the time but it is awful to experience. Anyway, any thoughts on this scenario would be appreciated.