Fatigue with biscuspid aortic valve

My 5yo child developed SVT after a hernia repair when he was 3. He was treated with digoxin at that time. As time progressed his care was transferred to a children's hospital. They replaced his dig with atenenol but he started having "break through" spells so dig was added back. He was experiencing lots of side effeccts from the meds so a heart cath was done this summer followed by a successful ablation. His pre op echo showed probable bicuspid aortic valve with enlarged aorta. Dr. confirmed this while doing ablation. My son has always seemed tired but now he is extremely fatigued. He goes to bed between 6:30-7:00 and sleeps through the night. He is fairly perky in the morning but by noon starts yawning and showing signs of fatigue. He even talks about how tired he is. His physical stamina is low. Do you think his fatigue is due to less than perfect pumping? He has another echo scheduled in December and at that time they will start monitoring the size of his aorta.

[shahsa]

Hi there.......your post caught my eye......My 4 year old son was diagnosed with bicuspid aortic valve this year......I have been desperatley looking for someone to talk to and hear their story......if you don't mind I would really love to hear about your son- I have been so upset since
I got the news about my son and would really love to hear from someone else with a child that has this issue-
By the way - is your son very active during the time he is awake- is he in school? I would totally run this by the cardiologist before Dec. just to be sure all is fine-
Hope to hear from you
Sharon