HEART DISEASE COMMUNITY
Growing out of neurocardiogenic syncope?

Growing out of neurocardiogenic syncope?

Hey, I'm 16 years old and I was diagnosed with neurocardiogenic syncope a year ago, after that I was taking a medication called florinef, I was hoping it would get me back to normal enough to get back to school. It wasn't enough though I still had several symptoms like heart racing, stinging in the head, swelling legs, ringing in the ears and of course dizziness. Its too much of a problem to deal with since I can't relax or have a good time when I have to go out anywhere. I don't need an explanation of what neurocardiogenic syncope is so don't explain it, I actually researched everything about it including all the treatments. Anyway its impossible for me to go out without having to panic and once I do panic it just triggers me to faint eventually, I just need to know if I'll ever grow out of this disease someday and what would increase my chances, I'm kinda helpless and unsure what to do about it anymore, getting to a doctor is already hard enough to do, but no medication is going to get me back to normal either, I just wish there was a perfect solution instead of doing nothing about it.
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My 16 year old daughter has been diagnosed with vasovagal syncope...she has these episodes almost daily. She has to take salt tablets and is currenttly on Midodrine,,,She is a junior in high school and so far has managed to stay in schooll..its hard. We do not know what triggers it... It was exercise at first now just anything can cause it heat, lack of sleep ,not eating ,, laughing to much, getting upset ,just about anything!! She can't be alone she cant hold a babay she cant drive she cant play volleyball she cant ride any kind of ride. we have also researched everything... I dont know all the answers... Just wanted you to know your not alone!!
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