My grandson is almost three years old and has HLHS. He had the Norwood procedure at 4 days and the Glenn at 5 months and thrived through both of them. He went for a cath in August to determine when the Fontan would be done and they said everything looked good for him to come back in March and they would schedule his surgery for April. His appointment was today and we got devastating news, they said his heart is too weak for the Fontan. My questions is are there any other options and if not how much longer can we expect him to live?
You have questions that can be better answered with pediatric forum. There are members who have experienced a experienced similar circumstances. A heart transplant may be the best option.
Thanks for your question. I wish you and your family well going forward. Take care,
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.