Aa
A
A
Close
Avatar universal
HLHS without Fontan
My grandson is almost three years old and has HLHS.  He had the Norwood procedure at 4 days and the Glenn at 5 months and thrived through both of them.  He went for a cath in August to determine when the Fontan would be done and they said everything looked good for him to come back in March and they would schedule his surgery for April.  His appointment was today and we got devastating news, they said his heart is too weak for the Fontan.  My questions is are there any other options and if not how much longer can we expect him to live?
Cancel
1 Answers
Page 1 of 1
367994 tn?1304957193
You have questions that can be better answered with pediatric forum.  There are members who have experienced a experienced similar circumstances.  A heart transplant may be the best option.
  Thanks for your question.  I wish you and your family well going forward.  Take care,

Ken
  http://www.medhelp.org/forums/Pediatric-Cardiology/show/302
Comment
Cancel
367994 tn?1304957193
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Top Heart Disease Answerers
159619 tn?1318997813
Blank
erijon
Salt Lake City, UT
11548417 tn?1440481484
Blank
Ger57
Netherlands
Avatar f tn
Blank
achillea
CA
Avatar m tn
Blank
tacolino
Ireland
Avatar m tn
Blank
Occupant
IL
144586 tn?1284669764
Blank
caregiver222
Blank
BloodPressure Tracker
Monitor Your Blood Pressure
Start Tracking Now
Blank
HeartRhythm Tracker
Track your Heart Condition
Start Tracking Now
Recent Activity
Avatar m tn
Blank
JCB1606 cautiously optimistic Comment
9 hrs ago
4522800 tn?1459192030
Blank
VICourageous commented on cast out
May 26
463897 tn?1448485050
Blank
MH Community Mgr commented on photo
May 25
Heart Disease Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1463449675
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Heart Disease Answerers
159619 tn?1318997813
Blank
erijon
Salt Lake City, UT
11548417 tn?1440481484
Blank
Ger57
Netherlands
Avatar f tn
Blank
achillea
CA
Avatar m tn
Blank
tacolino
Ireland
Avatar m tn
Blank
Occupant
IL
144586 tn?1284669764
Blank
caregiver222