Heart Disease Community
HLHS without Fontan
About This Community:

A community of people with Heart Disease to guide and support your heart-health journey. Ask a question, join a conversation, share experiences: symptoms, nutrition, and management.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

HLHS without Fontan

My grandson is almost three years old and has HLHS.  He had the Norwood procedure at 4 days and the Glenn at 5 months and thrived through both of them.  He went for a cath in August to determine when the Fontan would be done and they said everything looked good for him to come back in March and they would schedule his surgery for April.  His appointment was today and we got devastating news, they said his heart is too weak for the Fontan.  My questions is are there any other options and if not how much longer can we expect him to live?
Related Discussions
3 Comments Post a Comment
Blank
367994_tn?1304957193
You have questions that can be better answered with pediatric forum.  There are members who have experienced a experienced similar circumstances.  A heart transplant may be the best option.
  Thanks for your question.  I wish you and your family well going forward.  Take care,

Ken
  http://www.medhelp.org/forums/Pediatric-Cardiology/show/302
Blank
Post a Comment
To
Blank
BloodPressure Tracker
Monitor Your Blood Pressure
Start Tracking Now
Blank
HeartRhythm Tracker
Track your Heart Condition
Start Tracking Now
Recent Activity
Avatar_f_tn
Blank
aauntamy commented on photo
11 hrs ago
Avatar_f_tn
Blank
aauntamy uploaded a new photo
11 hrs ago
1236893_tn?1408490528
Blank
Foods You’re Throwing Away Every Ti...
14 hrs ago by gymdandee
Heart Disease Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank