Aa
A
A
Close
Avatar universal
HLHS without Fontan
My grandson is almost three years old and has HLHS.  He had the Norwood procedure at 4 days and the Glenn at 5 months and thrived through both of them.  He went for a cath in August to determine when the Fontan would be done and they said everything looked good for him to come back in March and they would schedule his surgery for April.  His appointment was today and we got devastating news, they said his heart is too weak for the Fontan.  My questions is are there any other options and if not how much longer can we expect him to live?
Cancel
1 Answers
Page 1 of 1
367994 tn?1304957193
You have questions that can be better answered with pediatric forum.  There are members who have experienced a experienced similar circumstances.  A heart transplant may be the best option.
  Thanks for your question.  I wish you and your family well going forward.  Take care,

Ken
  http://www.medhelp.org/forums/Pediatric-Cardiology/show/302
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Your Answer
Avatar universal
Answer
Do you know how to answer? Tap here to leave your answer...
Answer
Answer
Post Answer
A
A
Top Heart Disease Answerers
159619 tn?1318997813
Blank
Salt Lake City, UT
11548417 tn?1440481484
Blank
Netherlands
144586 tn?1284669764
Blank
Avatar universal
Blank
Avatar universal
Blank
Ireland
Blank
BloodPressure Tracker
Monitor Your Blood Pressure
Start Tracking Now
Blank
HeartRhythm Tracker
Track your Heart Condition
Start Tracking Now
Heart Disease Community Resources