Hypoplastic Right Heart Syndrome

Hello,
   Our child was just diagnosed, 15 weeks pregnant, with hypoplastic right heart syndrome.  I am having a hard time finding any information about it because it is much more rare than the hypoplastic left heart syndrome.  I have read that treatment for both conditions is the same, but I cannot find any information about survivability rates, are they the same for both conditions?  And what are they typically?   Thank you for your help

[MLHofSA]

My son, currently 2 yrs old, has hypoplastic right heart (among other heart defects).  And you are right...there is little to no info available as it is much less common than left hearts.  But a cardiologist did comment once that if you had a choice between having a hypoplastic left or right, he'd go with the right.  But he pointed out that the only drawback to that is there are fewer doctors with right-heart experience.
Here are a few links I know of:
http://www.hypoplasticrighthearts.org/welcome.html
http://www.childrenheartinstitute.org/educate/defects/hypor1.htm

I'd also recommend finding if there is a chapter of Mended Little Hearts (www.mendedlittlehearts.org) in your area - or some kind of support group.  My wife and I helped start a chapter in our area (San Antonio) this past August. (http://mlhofsa.schendelsworld.com/).

Hope this helps!

[ohjewel75]

My sister had this and she lived to be past 28 years of age and had many other complications so you should be just fine...Good Luck...

Jules

[sami1213]

Last stroke June 8 2009  MRI of Heart shows nothing, but yet she has had multiple strokes, and now one of the repercussions, is siezures. If any body has experienced this please contact me at ***@****

[nytweety13]

my son was diagnosed with Hypoplastic Right Heart Syndrome when I was 5 months pregnant I was very scared my OBGYN sujested an abortion but I got a second opinion and I do not regret it eventhough is hard to see your child go through open heart surgery twice. My little man is now 4 yrs old and had his last surgery and he is a very happy, loving and active little boy and no one would ever guess all he has been through OR that he has anycondition. I love my son and would go through it all again to have him with me he is worth all the sleepless nights and all the hospital sleepovers he is my little angel and has a great purpose in life.

[Jkel]

Agreed. Dd had her first surgery and soon to have her second. She's so beautiful and precious. I get stopped all the time because how perfect she looks. I wouldn't trade her for anything. I am expecting good outcomes. Dr. Pizarro of nemours. At Alfred I DuPont is a great surgeon. There is hope! God is the giver or life and only He can take it away. I know she'll be alright!