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My 28 year old daughter was diagnosed with IST in Oct, 2006. She had a resting heart rate of 130-140 bpm. When she walked, it went up to 180 bpm. She became totally disabled.
She had 2 ablations that were uncessful and seemed to make the problem worse.
We went to St. Luke's Hospital in Milwaukee Wisconsin and Dr. Sra did a total ablation of the sinus nodeLymph node biopsy Swollen glands Swollen lymph nodes in the groin Swollen lymph nodes under arm using epicardial ablation. He also needed to go inside to ablate.
She no longer has a working sinus nodeLymph node biopsy Swollen glands Swollen lymph nodes in the groin Swollen lymph nodes under arm and her AV nodeLymph node biopsy Swollen glands Swollen lymph nodes in the groin Swollen lymph nodes under arm took over the pacing of her heart. Her resting heart rate is now between 65 to 70 BPM and her walking HR is in the 80's range.
This procedure is like a miracle. It has been 2 weeks and so far so good.
The doctor said that some day her rate may drop and if it does, all she will need is a pacemaker. It also may never happen.
This is fine considering she had lost her normalNormal saline flush life before the Epicardial Ablation of the entire sinus nodeLymph node biopsy Swollen glands Swollen lymph nodes in the groin Swollen lymph nodes under arm. This was NOT a modification of the sinus node. Her sinus node is totally non-functioning.
I just wanted people with Inappropriate Sinus Tachycardia to realize that this is a cure/option for their problem.
My daughter tried all medications and they only lowered her blood pressure and not her heart rate.
Anyone with IST needs to check into having this procedure.
Living for years with this problem is unimaginable. I can not believe any doctor would even consider having a patient to live like this. Also, very few doctors in the country do this procedure. We flew to Milwaukee, Wisconsin for treatment.
My daughter can now resume a normal life.
I am 20 yrs old and I have had IST for two years now. I am currently on an extremely high dose of medication (so high I have to get it from a specialty pharmacy). My doctor recently recommended this proceedure, but I am a little skeptical. Could you provide me with a little info on it.
Sick Sinus Syndrome needs a pacemaker, how come an unfunction Sinus node don't need a pacemaker and still got heart beats? Well, EP can ablate the Sinus node for SSS. It is better than insert a pacemaker. Unless she had 2 Sinus nodes. Otherwise where her heart beats come from? I hope she is not living with the wave beats. I'm curious. I need someone to explain that for me. Thank you.