Increasing fatigue with CHF

[Flycaster305]

Over the past fifteen years, I have had 10 heart stents inserted, several mild heart attacks, a pacemaker, and finally bypass surgery.  1.5 years after the bypass, it failed, and I experienced severe symptoms of CHF and was diagnosed with the same. My BNP level was 3,000+.  I had a high-risk stenting procedure from a trained Cardiologist from a teaching hospital, and my BNP level dropped to about 1000 and my energy level returned somewhat.  However, seven months later I am experiencing extreme fatigue again, and even walking 100 yards to the community mailbox exhausts me, and my lungs are once again filling with water, even though I'm taking 160mg of Lasix and two spiro tabs a day. My BNP levels are again very elevated in the thousands, but my doctors aren't overly concerned about that now. I'm taking beta blockers, Lisinopril, Plavix and aspirin.
Two years ago I could swim a mile a day at a relaxed pace or walk 3 -4 miles a day, so this is quite upsetting on many levels.  
I'm extremely reluctant to push the envelope, so to speak, as I haven't received much communication as of late.  I suspect no one knows what to do with me, and at the same time I don't want my butt lying in a hospital bed.  Given my hx, is it time just to accept the status quo, or should I become pro-active?

[CCFHeartMD27]

It sounds like you've been through a lot with your heart disease and heart failure symptoms.  Naturally, one should always be pro-active in one's medical care.  Even more so in situations like yours.  Your symptoms are very concerning, and even more so since they appear to be worsening.  I would recommend seeing a heart failure specialist at a tertiary referral center.  You should collect all of your records, imaging results (the actual films, not just reports) and be seen and evaluated by a heart failure specialist who can focus on your care.  

[Flycaster305]

Thank you.  I'll do as you suggested.