Aa
A
A
Close
Avatar universal
Just another person to talk too.
This discussion is related to Scimitar Syndrome.


My son Broady was born with Scimitar Snydrome. We spent 8 days in the NICU at Maggie and are still going to the docotor's and Children's every month. Along with the scimitar he has a vein that dosen't reconnect to his heart so his breathing is extremely high. I was just wondering what i am looking for in the future. Did you have allot of problems growing up? He is 6 months now, if you look at him you see nothing wront. Will he be able to play sports or run? Any help would be sooooo helpfull.

Keep in touch
***@****

Traci
Cancel
2 Answers
Page 1 of 1
Avatar universal
I'm a 16 year old with Scimitar Syndrome, and it's never really impacted on my life. I can't run around as long as the other kids (but that's just mostly because I'm lazy) but it doesn't really matter. I do find myself becoming slightly short of breath when I talk fast/get excited, but it's nothing major.
And, this might be weird, but I've heard a lot of people have surgery when they have Scimitar Syndrome. Why? I've never had it, and I seem to be fine.
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
My daughter was born with TOF and scimitar syndrome is part of the anormality.  She is 4 months old and has undergone 3 caths, and open heart surgery to fix her problems. She also has congenital scoliosis and it's something that we can only monitor at the time to make sure it doesn't affect any of her organs, since she is too small to do any corrective surgeries.   She has  It is very scary to think what the future may hold for her.   Anyone grow up with TOF?  What have you experienced?  Where you able to live a "normal" life?
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Top Heart Disease Answerers
159619 tn?1318997813
Blank
erijon
Salt Lake City, UT
Avatar f tn
Blank
achillea
CA
11548417 tn?1440481484
Blank
Ger57
Netherlands
Avatar m tn
Blank
Occupant
IL
Avatar m tn
Blank
tacolino
Ireland
144586 tn?1284669764
Blank
caregiver222
Blank
BloodPressure Tracker
Monitor Your Blood Pressure
Start Tracking Now
Blank
HeartRhythm Tracker
Track your Heart Condition
Start Tracking Now
Recent Activity
4522800 tn?1459192030
Blank
VICourageous Knock-Knock..Anybody Home?? Comment
14 hrs ago
4522800 tn?1459192030
Blank
VICourageous commented on stilltrying1965's status
14 hrs ago
1236893 tn?1408490528
Blank
50-Year Cover-Up
18 hrs ago by gymdandee
Heart Disease Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1463449675
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Heart Disease Answerers
159619 tn?1318997813
Blank
erijon
Salt Lake City, UT
Avatar f tn
Blank
achillea
CA
11548417 tn?1440481484
Blank
Ger57
Netherlands
Avatar m tn
Blank
Occupant
IL
Avatar m tn
Blank
tacolino
Ireland
144586 tn?1284669764
Blank
caregiver222