My son Broady was born with Scimitar Snydrome. We spent 8 days in the NICU at Maggie and are still going to the docotor's and Children's every month. Along with the scimitar he has a vein that dosen't reconnect to his heart so his breathing is extremely high. I was just wondering what i am looking for in the future. Did you have allot of problems growing up? He is 6 months now, if you look at him you see nothing wront. Will he be able to play sports or run? Any help would be sooooo helpfull.
I'm a 16 year old with Scimitar Syndrome, and it's never really impacted on my life. I can't run around as long as the other kids (but that's just mostly because I'm lazy) but it doesn't really matter. I do find myself becoming slightly short of breath when I talk fast/get excited, but it's nothing major.
And, this might be weird, but I've heard a lot of people have surgery when they have Scimitar Syndrome. Why? I've never had it, and I seem to be fine.
My daughter was born with TOF and scimitar syndrome is part of the anormality. She is 4 months old and has undergone 3 caths, and open heart surgery to fix her problems. She also has congenital scoliosis and it's something that we can only monitor at the time to make sure it doesn't affect any of her organs, since she is too small to do any corrective surgeries. She has It is very scary to think what the future may hold for her. Anyone grow up with TOF? What have you experienced? Where you able to live a "normal" life?
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.