My child (female 14yrs old) has been monitored since she was in first grade for a questionable EKG. We see a pediatric heart specialist and he has always allowed her to play sports. This year when we had her annual checkup, nothing had changed and he talked to me about genetic testing for long qt (which is what she was being monitored for). She has never had any problems. He explained that it is something she would need to know later in life (at birth,etc) and we would know for sure. The test came back positive and now the whole outlook of life has changed.He says absolutly no sports...she loves her sports. Like I said...she was ok'd in the years past, so if nothing has changed, why does the bloodwork make it any different....Her dx is the same as someone who has had problems. So torn on what to do. I am praying for a miracle. There has to be something with todays modern technology. Any ideas, suggestions.
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