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Heart Disease (Expert Forum)
MINIMALLY INVASIVE REPAIR OF A SINUS VENOSUS ASD
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MINIMALLY INVASIVE REPAIR OF A SINUS VENOSUS ASD
by KJBF14, Apr 22, 2006 12:00AM
Hi,
I was recently diagnosed with a Sinus Venosus ASD.
I was never aware I had this condition. Found during a regular Echo exam. TEE performed to verify diagnosis. No other symptoms except shortness of breathe due to extreme exertional exercise. I can still play sports without any problems and Dr.s says its okay to stay active. Right side of heart moderately enlarged.
All cardiologists & surgeons I have seen recommend I close defect but they vary on immediacy of surgery.
I do not want to have the traditional OHS unless absolutely necessary.
I am open to minimally invasive closure. Apparently closing a sinus venosus ASD using this method is very complex.
Is this true?
Is it impossible or just difficult to perform i.e. requires a highly skilled surgeon.
Does Cleveland Clinic have surgeons with experience repairing this defect using this method?
Thanks
I was recently diagnosed with a Sinus Venosus ASD.
I was never aware I had this condition. Found during a regular Echo exam. TEE performed to verify diagnosis. No other symptoms except shortness of breathe due to extreme exertional exercise. I can still play sports without any problems and Dr.s says its okay to stay active. Right side of heart moderately enlarged.
All cardiologists & surgeons I have seen recommend I close defect but they vary on immediacy of surgery.
I do not want to have the traditional OHS unless absolutely necessary.
I am open to minimally invasive closure. Apparently closing a sinus venosus ASD using this method is very complex.
Is this true?
Is it impossible or just difficult to perform i.e. requires a highly skilled surgeon.
Does Cleveland Clinic have surgeons with experience repairing this defect using this method?
Thanks
Doctor's Answer
by CCF-M.D.-MJM, Apr 22, 2006 12:00AM
Hello,
sorry to hear about your recent diagnosis. These are very rare congential heart defects.
I do not want to have the traditional OHS unless absolutely necessary.
I am open to minimally invasive closure. Apparently closing a sinus venosus ASD using this method is very complex.
Is this true?
I have no experience with closing these defects. I know the surgeons here fix them but I am not sure what approach they use and the risk difference between traditional open heart surg. and minimally invasive procedures.
Is it impossible or just difficult to perform i.e. requires a highly skilled surgeon. Does Cleveland Clinic have surgeons with experience repairing this defect using this method?
It probably depends on the anatomy, but again, I have no experience with these procedures. I would call the cleveland clinic on a weekday 9-5 pm 216-444-2200 and ask to speak with the cardiothoracic surgery scheduling office. Ask them who does the sinsus of venosus closures at the cleveland clinic. You can also ask them if they can do it mininimally invasive.
I am not sure that I helped you very much here. The best thing to do is call the number I gave you and talk to the surgeons office directly. They would likely need to see you in clinic to make any definite conclusions.
good luck and thanks for posting.
sorry to hear about your recent diagnosis. These are very rare congential heart defects.
I do not want to have the traditional OHS unless absolutely necessary.
I am open to minimally invasive closure. Apparently closing a sinus venosus ASD using this method is very complex.
Is this true?
I have no experience with closing these defects. I know the surgeons here fix them but I am not sure what approach they use and the risk difference between traditional open heart surg. and minimally invasive procedures.
Is it impossible or just difficult to perform i.e. requires a highly skilled surgeon. Does Cleveland Clinic have surgeons with experience repairing this defect using this method?
It probably depends on the anatomy, but again, I have no experience with these procedures. I would call the cleveland clinic on a weekday 9-5 pm 216-444-2200 and ask to speak with the cardiothoracic surgery scheduling office. Ask them who does the sinsus of venosus closures at the cleveland clinic. You can also ask them if they can do it mininimally invasive.
I am not sure that I helped you very much here. The best thing to do is call the number I gave you and talk to the surgeons office directly. They would likely need to see you in clinic to make any definite conclusions.
good luck and thanks for posting.
Member Comments (2)
by Carolina03, Apr 22, 2006 12:00AM
Hi, you may want to ask your question at ValveReplacement.com, too. Although the forum focuses on valve surgery, I've seen questions on all types of congenital defects and heart surgeries. You won't have advice from doctors but rather people who are facing or have faced surgery. C
by shemaila, Feb 24, 2009 12:00AM
A related discussion, large sinus venosus defect was started.
