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Avatar universal

My 2 cents worth

After reading fintilthree's comments I would like to add my own.  When I was dx with MS 6 years ago the first neruro told me I had a bad migraine and to go home and take an asprin (I had double vision at the time)- I went to see another neuro who gave me all the tests and gave me the dx of MS - bit of big difference huh? Now when he told me this I went into major details of how and why etc and the "why me" syndrome because I wanted information on how this had happened to me. You may well be thinking what has this got to do with the heart forum well after reading all the postings and digging through the internet and all the usual stuff, I just want to know why - just like we all do so why after 42 years on this planet have I just now started to feel thousands of pvc's a day - why?  All the tests are fine, echo's, blood, holter. In my opinion I think to try and find out why this has all suddenly started is totally natural, we have cario's who say "your ok their benign" well sometimes that just does not cut it - and you need more information. If it's to do with an electrical wiring problem why has it just started off now - where was it before - what has set it off??  The questions go on and on, and we get nowhere - but at the end of the day I guess we have to put our faith in the cardio's and if they don't know the answers - well we have to accept it.  It's frightening, it's debilliating and it's a change of life - for me anyway.  My body can no longer tolerate any form of stimulants, wine, tea, coffee, bending over, playing with my 4 year old etc. Trust the doc's - they know.
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61536 tn?1340698163
Cardiologists dismiss these easily because there is overwhelming proof that they are benign and harmless in the absence of structural or ischemic disease.  To them, it's a no brainer, and offering reassurance is easy.

For us, it's another matter.  We wonder what they missed, why the sudden increased happen, what monster is lurking.  We make ourselves sick with worry, stop enjoying our lives, miss out on our children's lives and become a mess of anxiety.

In this case, we have to trust.  The heart is a scary thing for many, we know we only have one.  Protecting it is probably hard-wired into us and this we worry a good deal when something doesn't feel right.  

That said, in my years of coming here, starting out as a terrified sufferer nearly crippled with anxiety over these things...I've come to be a person who has (mostly) conquered the fear and put some faith in my doctor (and the wonderful ones that give freely of their time and knowledge here) where these are concerned.  We all need to give over some of the "control" so to speak if we want to enjoy our lives.  

There's always that wonderful quote, that the only thing to fear is fear itself.
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97628 tn?1204462033
Even the topic area is inaccurate. People with benign PVCs do not have a "heart condition". If that were the case, EVERYONE on the planet would have a "heart condition".

Your heart is not the most important organ, the brain is. It runs the whole show, including the regulation of your heart rate.

This forum is becoming quite disturbing.

College Girl- Quick medical question. Is there an element of agoraphobia involved in hypochondriasis as well?

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Avatar universal
How many pac's or pvc's do you get a day??  Have you tried mg supplement - and maybe "fine" you need something to calm you down too as you sound very agitated- have no doubt in your minds I know exactly what your going through.  To trust the doc's is the only thing that we can do - and maybe learn to trust them.  Have you both got good cardio's that you can trust - I have been to 4 and finally found one that I could relate to.  He was very kind to me, but still he had no answers.  We HAVE to lead our lives to the best of out ability -for our famillies sake and I learnt that when I was dx with MS the best advice I was ever given was "to put your best foot forward"  What will be will be.
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Avatar universal
That was very wise.. I know "They wont hurt you" just doesnt make you feel better sometimes.. If docs could tell you anything more, they WOULD... I know its hard for everyone to keep this in mind, but try.. This is only debilitating if you let it be!..Its much more a war in the mind than one in the heart, and luckily there are many treatments out there to help people cope, if you're willing to try.
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Avatar universal
I agree with everything you wrote.  I am 35 years old with three beautiful children (3,5,8 mos) and I feel as if my whole life has been taken away from me, taken away from me in the sense that I am so physically limited now b/c of what sets them off. I guess it doesn't matter if I die from it anyway because I am not living anyway, not living happy and active like I was 9 months ago.
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Avatar universal
it depends on the situation, but for arguments sake im just gonna assume you mean the situations here in the forum, and im compelled to give you a resounding YES to that question.  Im not a psychiatrist, but hypothetically, what you can see happening in that situation, is someone suffering from health related anxiety, or hypochondria, developing agoraphobia to try and compensate and relieve the anxiety they are already feeling due to the hypochondria.. Kind of like how people with OCD might wash their hands over and over again.. They are obsessed with the germs they might have on their hands, so they obsessivly wash their hands to try and relieve the anxiety, but at the same time are developing a new problem that is connected to the old problem... Theres also another aspect to agoraphobia that fits this situation, and that would be the hypersensativity to ones body.. Like you see some people commenting about how one PVC will send their heart rate sky rocketing, but more often than not, it isnt the pvc thats sent the heart rate up , its the  anxiety connected to the pvc..

Good eye!! not alot of people connect the two!! alot of people assume agoraphobia is strictly associated with panic disorder, but panic disorder hides in alot of places.
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Avatar universal
Hey you guys.  I can say a resounding yes also. I'm a freakin agoraphobic, hypochondriac, OCD-ing, panic attackin' nutball all rolled into one! But in my defense, I wasn't always this way! Just since these crappy beats started.  
Good night all!

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Avatar universal
Not surprising at all! Finding out about a previously unknown medical issue, or the sudden sickness or loss of a loved one typically tiggers things like this. Just remember, you can get all that under control AND live with the pvc's, even though it may not seem like it right now.
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Avatar universal
i so agree..and i think it is only natural to want answers as with any other disease or condition, one should never be expected to just lay back and "take it". the heart is the most vital organ! it represents the driving force not only physically, but also mentally, emotionly and spiritually as well, it's no surprise that with arythmias and pacs/pvcs that it totally @#$%^@'s with your mind! i can't live my life without it always in the back of my mind..am i gonna get an svt episode today? or be driving on the freeway and have one ( actually theses days i avoid the freeway as much as possible)..whens the next loooong run of pvc/pac gonna hit me out of nowhere. i wake up in the middle of the night sick to my stomach with anxiety about it, or wake up in an episode,,,i have no peace of mind anymore, even though i've been told i'm "ok", theres always that little doubt facter anyway...am i going to live to watch my kids grow up? I'm leary of excercise,traveling,celebrating( no alcohol for me!)..i can't even be with my husband without the element of anxiety that that too may bring one on....this condition truly is debilitating  on a multitude of levels
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