Hi.
I actually posted this question in response to another post, but thought I would start a new one.
I was diagnosed with Neurally Mediated Hypotension about 6 years ago (I am now 25), after years of symptoms. I was put on Toporol xl (sp?) because my job, at the time, required standing in one spot.. which made me pass out. Once I quit that job, I stopped taking the medication and just avoided triggers (standing too long, heat, etc).
My NMH is now so bad that I get sick just from sitting upright, sometimes I feel like I'm going to pass out even while laying down, my heart is always pounding, I'm always lightheaded (sometimes my vision turns white when I'm walking), I'm constantly incredibly fatigued no matter how much I sleep, I have numbness when it gets bad enough, etc.. Basically, I feel awful almost all the time.
The reason I'm here is because I've actually been feeling very depressed lately. No one seems to believe what is going on with me or understand how bad I feel. I get the feeling that everyone close to me is sick of how "lazy" I am and think I'm making excuses, when really I am feeling so terrible. Has anyone else felt this way? I just don't know what to do or how to make anyone understand. I am already so frustrated at feeling this way, but for people to think I'm lazy or making it up just makes me feel so bad. Any suggestions?
Thank you.