Heart Disease Community
Neurally Mediated Hypotension. No one understands.
About This Community:

This patient support community is for discussions relating to angina, angioplasty, arrhythmia, bypass surgery, cardiomyopathy, coronary artery disease, defibrillator, heart attack, heart disease, mitral valve, pacemaker, PAD, stenosis, and stress tests.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Neurally Mediated Hypotension. No one understands.

Hi.

I actually posted this question in response to another post, but thought I would start a new one.

I was diagnosed with Neurally Mediated Hypotension about 6 years ago (I am now 25), after years of symptoms. I was put on Toporol xl (sp?) because my job, at the time, required standing in one spot.. which made me pass out. Once I quit that job, I stopped taking the medication and just avoided triggers (standing too long, heat, etc).
My NMH is now so bad that I get sick just from sitting upright, sometimes I feel like I'm going to pass out even while laying down, my heart is always pounding, I'm always lightheaded (sometimes my vision turns white when I'm walking), I'm constantly incredibly fatigued no matter how much I sleep, I have numbness when it gets bad enough, etc.. Basically, I feel awful almost all the time.
The reason I'm here is because I've actually been feeling very depressed lately. No one seems to believe what is going on with me or understand how bad I feel. I get the feeling that everyone close to me is sick of how "lazy" I am and think I'm making excuses, when really I am feeling so terrible. Has anyone else felt this way? I just don't know what to do or how to make anyone understand. I am already so frustrated at feeling this way, but for people to think I'm lazy or making it up just makes me feel so bad. Any suggestions?
Thank you.
Related Discussions
2 Comments Post a Comment
Blank
Avatar_f_tn
Have you saeen a doctor about all of this and have you started taking your medicine again? Sometimes (and I'm not saying this is you) when people complain how lousy they feel and don't do anything to correct the problem, people don't want to hear about how they feel. See you doctor.
Blank
712042_tn?1254572809
I agree with grendslori's response. I also want to comment that the art of medicine is just that. At best we can only rely on the science and technology of medicine. In the age of such great breakthroughs and wonderful knowledge about the human body and what things help, medications ( short and long term), surgery, managing our own personal health problems and understanding what our body is trying to tell us still leaves many of us without an answer or a label. My suggestion to you is to return to a trusted doctor, keep a journal of your symptoms and start fresh until you are able to better manage your health; it may be the best result you get. People around me could easily call me lazy as looking at me they cannot see my health problem. But I know how I feel and what happens. You'll feel vindicated once you are confident in managing your situation. Best wishes. Joan.
Blank
Post a Comment
To
Top Heart Disease Answerers
976897_tn?1379171202
Blank
ed34
watford, United Kingdom
159619_tn?1318997813
Blank
erijon
Salt Lake City, UT
63984_tn?1385441539
Blank
Flycaster305
97303, OR
212161_tn?1391090750
Blank
heartfluttersflyawayplz
hoschton, GA
Avatar_m_tn
Blank
Occupant
IL
612551_tn?1247839157
Blank
Jerry_NJ
NJ
MedHelp Health Answers
Blank
BloodPressure Tracker
Monitor Your Blood Pressure
Start Tracking Now
Blank
HeartRhythm Tracker
Track your Heart Condition
Start Tracking Now
Recent Activity
1755089_tn?1376057155
Blank
drewlevas uploaded new photos
2 hrs ago
1236893_tn?1408490528
Blank
gymdandee commented on New GMO
Aug 28
Avatar_n_tn
Blank
Healthtips commented on When Your Cold Is Not...
Aug 28
Heart Disease Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
Top Heart Disease Answerers
976897_tn?1379171202
Blank
ed34
watford, United Kingdom
159619_tn?1318997813
Blank
erijon
Salt Lake City, UT
63984_tn?1385441539
Blank
Flycaster305
97303, OR
212161_tn?1391090750
Blank
heartfluttersflyawayplz
hoschton, GA
Avatar_m_tn
Blank
Occupant
IL
612551_tn?1247839157
Blank
Jerry_NJ
NJ