Hi there!I am a 23 year old
womanWomen's way who has been having pvc's pac's and bouts of
tachycardiaArrhythmias
Multifocal atrial tachycardia
Paroxysmal supraventricular tachycardia (psvt)
Sick sinus syndrome
Ventricular tachycardia since I was 16 years old.
NormalNormal saline flush ekgAtrioventricular block, ekg tracing
Ecg
Exercise stress test,
holterHolter monitor (24h), stress test, echo, x-ray and blood results.I had a
holterHolter monitor (24h) done a couple weeks ago where I had only one pvc/8 pac's show up but the part that has me baffled is that everytime I recorded on the holter as feeling a palp sensation the doctor said it actually matched up to a regular sinus rhythum??? What is going on here? It is soooo strange to me that I felt a flip-flop beat and it was a normal heart beat? I have never heard of this. I have been documented previously as feeling the pvc's(holter). So, my questions are:
-any idea or theory as to what is going on when I feel the palp that "isn't there"??
-how can I tell this normal rhythm beat from a pvc to know when I should seek help (i.e. if I get a bunch of these in a row or I get them during an intense workout...?)
-the doctor is getting me to do another stress test this monday to see if he can see the beat I have been feeling during exercise.I feel a little anxious about it since getting those beats on exertion scare me. Why are pvc's above 150 bpm dangerous? I am a nurse so please explain this all in a physiological way so I can really understand whats happening:)
-my pvcs(or whatever these things are.Can't tell the difference) have been torturing me over the last four weeks.I really feel like my heart won't return to normal during couplets and bad spurts.Can you explain to me why I should not fear SCD? I feel so sick when having palps.
-what is different in athelete with SCD?Thanks
I for one think you have to be careful of the conflicting articles one may read on the net or otherwise, some of the medical professionals have very conflicting views themselves, I would trust someone who has a vast amount and knowledge in a specialized dealing with these aggravating arrhytmias, Its a good question though, I hope the answer puts your mind at ease.
Nurse Kagome
I hope the doctor answers all the questions in a very informative way...I'm curious about the human body and enjoy to learn new things.
Nurse Kagome
In the past 20-25 years there is a much better understanding and general agreement of PVCs and arrhythmias among the medical professionals and the vast amount of people with them have nothing to fear but the fear of them and they feeling of dread they bring, I'm going 42 and had them all my life, though I rarely have them anymore, though this morning I had a few good thumps but I'm amazed at able I'm able to almost ignore them and just keep going before I would have been vigilant waiting on the next ones for days to come. I know how they can scare you, but you can also learned to overcome your fear of them also, it has taken me nearly all my 41 years to comes to terms with my anxiety over these PVCs and rapid heartbeats and not let them get the upper hand. Good luck.
Your 42 and had these your whole life? Wow...did you honestly truley feel like you were gonna die like forsure? at times? I do. It's a struggle all of the time. Sometimes I feel just so gross and sick and others times so good. Do you drink? I used to but now I don't, it causes too many pvc's. I want to cause a sociable was always fun, I feel at my age I am like an old person...pretty crapy huh? Other friends view me as athletic, strong, healthiest person they know...but I see myself differently. I think I'm sick cause of these stupid things bothering me so much. I wonder how can something so "harmless" make me feel so bad and like I'm in such danger?? I dunno. What do you feel about it all?
Nurse Kagome
Yes I had PVCs from time I can remember though when younger(childhood to teens) my main problem was a heartrate on the high side of normal or little higher of which I was very aware of. I never had episodes of frequent PVCs til around 26/27, then they would come in episodes every few months to years and last in 1000s daily from weeks to months , longest was 5-6 months from Oct. 2001 to April 2002, since then no prolonged attacks.
I used get them when I drank alcohol, I laid off it for about 2 years sometime ago , but up to last night I had 3 glasses of rum & gingerale(probably what caused a few thumps this morning :-), but to be honest not even drinking alcohol sames to trigger them much anymore though I could pinpoint that as being a trigger for PVC & tachycardia combined. I drink in moderation though, though sometime I don't have a drink for weeks.Maybe its because of the atenolol & cozaar for palpitation HTN that the palps are controlled.
Many a day when I would wake with them, I thought I would never outlive the day that's how bad they made me feel sometime, but I always made it through, I tried never to let them cripple me.
I worked in the healthcare profession( I'd rather not say what my job was)) myself for nearly 20 years so I know a bit about that side of it. I have seen both doctors & nurses that also had PVCs, as the matter of fact a lot of nurses I knew seemed to be bothered by palpitations( I wonder why?)!
Well I almost bought this reassurance - but not quite - I pushed hard to see an EP who agreed to do MRI - what did they find you ask?...ARVD/C
I don't wanna scare you PVC'ers but remember your gut instinct can be more accurate than normal ECG/halters and echos. Note that PVCs greater than 1000/day on 24 halter is one of the dx criteria for ARVD/C so PVC'ers with more that that (I was 32,000) should be concerned until MRI rules out ARVD - especially if you PVC onset is relatively abrupt with no explanation - Echos are useless unless you are an advanced case!!!! (I had 3 negative echos). I have no family hx of ARVD or SD - I was a case out of the blue - I could be you.
I have had PVC's and PAC's since 1996. They came on during my 3 pregnancy. It is common during pregnancy. But I think once a pathway is created it is always there. At first (after the baby and postpartum) they were very speratic. Sometimes months or years went by and I hardly noticed them. Then suddenly they came on like wild fire. Which brought me to the holter monitor and to the cardiologist frequently. Both showed normal and only a few PVC's.
But early in 2001 they came on continuously for 2 months. I was definetly in the 1000's or more per day. I went to the ER and they documented them. Pretty much every other beat. It was a point when I could not deal with them and I was sure I would die. But as the weeks went by I managed without medication. And one day just a suddenly as they started they dissappeared and then they were like they were before. Occassionly.....So it is weird how they start. I never had an MRI during that time, but I would suspect that I did not have anything serious. Now they seem to be here and there per month. I feel them probably every month several times.
They seem to have a mind of their own. I sometimes feel anxious and that definetly brings them on, but other times I feel perfectly normal and they are there. I do get runs of NSAT which I have had checked out and they say that is nothing to worry about. So I just take it one day at a time and try to stay calm always, and I never get upset about stupid things as I just think they will effect my health more than anything. I do now just recently take 12.5 mg of Atenol as they say that will help the Tachyardia. I think it has or at least it feel as if it has helped.
Just wanted to post. That was more like a $1.00 then 2cents. :)
Thanks.
Applehorse. ide just like to express to you that i personally found your post to be kinda irresponsible. People in this forum are suffering. Many from health related anxiety, And i think you might have really scared some people.... AVRD is difficult to diagnose just because it sometimes doesnt show up on an echo, but if your pvc's are persistant enough (as yours where 32000 is a HUGE number) a doctor will prescribe an MRI test. If your doctor didnt think you needed the test, you wouldnt have gotten one.Your intuition didnt diagnose you. You got excellent quality care,as im sure everyone in this forum has :) and your doctor treated you exactly by the book and that is why he found your true condition
Ide just really like to continue to see people on here helping other people. Sharing experiences is a part of what this forum is for :) ide personally just like to see it be a little more helpful than hurtful, but then again im only one person :)
Just want to say I completely agree with everything you wrote in your comment. I fully understand the anxiety and torture these PVCs and ectopic beats cause though, after many years I myself is just learning hope to cope with them and finally ignoring them, but like an alcoholic, I'm well aware I could "fall off the wagon" again :-).In the maintime I'll just try and share my personal experience with PVCs and hope its helps in some way. Have a nice day.
Everone - to those of you who feel my post (based on reality) is irrisponsible - I do not understand why you just want to get cuddles from this forum - just warm fuzzies. If so you should start a new forum called "Suppot Forum for Benign PVCs Only" What is it? you can't handle when someone with a real problem posts. Irrisponsible my post is not, it is real and the reassuarnce I get from Docs now (changed from the fuzzy type) is that they are not mistaken about my illness. As for intuition it WAS my intuition that pushed my heath care and finally after much self advocacy and Dr shopping I and nobody else ensured that a MRI would be done - my own cardiologist did not see the need for it so I would not call that excellent health care. Yes I was treated by the book - the book says in most cases - PVCs, normal echo, normal ECG, normal stress = no problem. Now you see the book can be wrong. Personally if I had read a post like mine pre-diagnosis I would have fould it alot more infomrative that the endless reams of "PVCs are lovely" - I could have arranged my personal life more strategically if I had considered a maligniant possibility - but unfortunately I was 90% brainwashed that I had no problem. the 10% led me to PUSH the drs to find the Dx (which of course they would find by the book eventually sometine in the future when I develop ECG abnormalities). I hope this post helps to inspire people who have the courage to stare down the naysayers and advocate from themselves to get quality medical investigations when they instintictively know (as we all know our own bodies better that any dr ever will) that there must be someting that they are overlooking. I wish you all the best.
It is my understanding that ARVD/C is actually underdiagnosed and can be very difficult to do at times.Good luck and the Best to you.
What is at the root of health anxiety? If it is not personally controllable, then outside counseling would seem to be the only thing that might help because the reassurance given here is never actually accepted. A counselor may be able to help people train themselves to interrupt, or stop the negative thinking.
There are very many people trying to access this forum everyday. Many of them have been diagnosed with substantial conditions and, for one reason or another, need medical advice. It would be good if they could post once in a while.
Maybe they should declare a PVC free week :-D
Kind Regards,
:)Nurse Kagome
Nurse Kagome
Nurse Kagome