Well
I thought I would post an update. My daughter has been on Digoxin to regulate her heartrates. Her resting heartrates are going to the 130's and 140's at times. Thyroid problems ruled out. Leak in mitral valve but seems trivial. Heart murmur. Pain in chest due to tacycardia then brachacardia. Cannot put her on needed meds due to her bad asthma so Digoxin is what we have to work with. He claims it will be most worrisome if her rates continue to increase into 160's at rest.
Asthma meds were ruled out as causing any problem but we have completley taken her off of one at this time but her asthma has flared. Hmmmmmm....the worse of two evils? I don't know either. Thanks for being here so I can vent.
Take care all.
This is mt first time on this forum but was also concerned about the comment about frequent PVCs (15,000-20,000 day) being something I need to worry about. I probably have close to that many on some days. Like everyone else I have been told they are benign (after all the testing). Is this number really something I should be worrying about? I do feel every PVC I have and it drives me nuts! Anyone with some ideas please let me know.
This is a follow up to my last post. Since dx'd with PVC's my daughter has had increased tightening in her chest. The Ped. Cardiologist here said this could not be her heart as he checked her out thoroughly when she was admitted. I called his office three days straight trying to get them to see her again. I then scheduled at Cleveland Clinic Childrens Hospital with Ped. Cardiologist Dr. Rhodes for December 11. We saw her pulmonologist last week and her was upset that the cardiologist here would not see her again...so he called and got us in with the Associate Director of the Heart Center here (BTW...who is in the same office as the cardiologist we saw in the hospital who said the problems she continues to have, have nothing to do with her heart.
WELL...she is on a holter monitor for a month. She has a leak in her heart valve. He says that the tightening feeling she is having in her chest can happen when you have a fast heart rate and then directly followed by a too slow heart rate. He said that when those type of heart rates continually occur it can cause the feelings she is having. She has at times resting heart rates in the 120's followed by rates in the 60's.
We see him in a week to check on things.
He has not elaborated what the leak in her valve means..or if it is the cause of her changing heart rates or what?
Any of you have any insight to this?
Thanks for so much help.
just wondering if your daughter's arrythmia could be secondary to the medicine she takes for her asthma? Because of her age she may be aware of them now and is able to tell you of the feeling she gets whereas in the past she may have had them but not able to realize the strange feeling and tell you.Just a thought from another mother..... good luck
Can anyone follow up on the "PVCs are not a problem unless over 15000-20000 per day" comment? I have more than this, and am concerned about the implications of this statement.
Thanks.
I am sorry to hear that your Daughter is suffering from these things at such a young age. If you read through most of the Q&A on this Forum you will find that PVC's tend to be Benign in most people with an otherwise healthy heart. There are Drugs and Medical Procedures to control the PVC's, and as long as your Daughters Heart is healthy there is no reason to worry about these PVC's being dangerous.
Dear Murtsaday,
Sorry to hear about your daughter's medical problems. PVCs are premature ventricular contractions, which occur when the lower chambers of the heart contract earlier than they should. PVCs alone do not cause any specific problem unless they occur in great numbers(15,000 to 20,000 per day). In the adult population PVCs in the setting of a structurally normal heart do not affect one's long term outcome. However, your daughters case is complex because of her existing medical conditions. It is very likely that her PVCs are being triggered by her other ongoing medical conditions. It is likely that her doctors do not feel the PVCs are worrisome in this setting given their clinical approach. However, I would ask her cardiologist(pediatric) and pulmonologist(pediatric) about the long term implications of PVCs in this setting, which is the important question. Hope she feels better.
Thanks for your question,
CCF-MD-KE