Hello,
I am a 23 year old
womanWomen's way who has been having PVC's since I was 16 years old. I was only lucky enough to have them recorded and diagnosed as of last August 2005. I have had a echo,
holterHolter monitor (24h) monitor, 2 stress tests, blood work and
ekgAtrioventricular block, ekg tracing
Ecg
Exercise stress test, all results
normalNormal saline flush except for PVC's. I have elevated
cholesterolCholesterol
Cholesterol and diet
Cholesterol producers
Cholesterol test
Coronary risk profile
High blood cholesterol and triglycerides since it is heridatary on my fathers side but it is just above
borderlineBorderline personality disorder right now, I am thin and eat very healthy. I have had 4 spurts of unrecorded events that felt like PVC's and tachycardia together (hr at 180+ during the events). This has me concerned. Also I have lately found a coorelation of PVC's with exercise, though I can get them at any time during the day, it just seems to happen with exercise lately. I also tend to have chest pain that can be a sharp pain right in the apex area of the left side of my chest or hard in the centre and feels like it spreads to the right and left sides of my chest. I also get intense upper back pain. My questions are:
1.)should it be a concern to me about the pvc's on exercise so much lately? could a pvc at that rate stop my heart or somthing worse?
2.)What do you think of my chest pain? It can be pretty intense and last 5-10 mins other times it's only for a second.
3.)during the very fast hr spurts (not diagnosed) where it feels like my heart is just going crazy and it feels like pvc's at the same time, is this symptoms typical of those who end up with v-fib?What is happening if it is just "normal"?
4.)I have seen a cardiologist and I am wondering is it nessacary or important that I see an electrophysiologist?
Thank You!!:)
Nurse Kagome
I've had PVCs averaging around 12-15 per minute with what the doctor called sinus tachycardia with PVCs documented on ECG with a heartrate of between 175-185 bpm if I remember correctly, I was 27 at the time , now 41 (male) It's the worse terrifying feeling one can have , having PVCs at such a high heartrate. I was told quite outright it was nothing to worry about , giving a pindolol(beta blocker) and sent home, the heartrate came down but the PVCs lasted averaging 6-12 a minute constantly for about 5-6 days , that was my first bad prolonged attack with PVCs. I've had PVCs with tachycardia at that rate about 10 times in my entire life from what I can remember , the first occuring around 16 years of age while riding my bike, I figure my rate was probably around 220 back then, thought I was a goner for sure. I now take atenolol, cozaar, and HCTZ for ultimate B/P control as I do have mild hypertension. I rarely have PVCs anymore or tachycardia. I think once you've been given a clean bill of health with your heart and had all the test required, though very frightening, these episodes posed very little to risk of SCD.I'm not a doctor, just sharing my personal experience, Hope you feel better soon and get relief from the anxiety it has caused you, I know it nearly destroyed me mentally if i would have allowed it to. Good luck.
Nurse Kagome
Like I said I've had PVCs & Tachycardia together about 10 times in my entire life from what i can remember , I could get them either while exercising or in a relaxed state such as just laying in bed or standing, usually they would be triggered by a huge PVC or what felt like a bunch of PVCs together.
I used get episodes of PVCs several a minute lasting from weeks to months at a time then disappearing, but its been over 4 years since my last prolonged episode the longest I've gone since my first prolonged episode back in 92.
The doctor did mention that I might have a concealed accessory pathway( a form of what is called concealed WPW)but I dont have a short PR or no clean cut delta wave or widen QRS as in manifest WPW . I asked about an EP study. It was not recommended , but I could had one if I insisted, both the doc and I decided it was not worth the risk and the tachy is completely controlled with the atenolol.Best wishes.
As I said, your experience is remarkably common. To find out how many of us have run into it, and how we are dealing with it all, go to the "search" box, and type in PVCs. You will be amazed, and, I hope, reassured.
Nurse Kagome :(
It is getting harder and harder to keep up with my daughters soccer practices and games, horseback riding lesssons, basketball, etc...But I haven't missed one yet. I just feel like **** at all of them. Depression is getting harder to stave off but I am hopeful that having my gallbladder removed will help some. ??????? In the meantime I would love to have a little energy and feel better!
Just venting---so sorry!!!!! I guess I'm just a bit tired and down. Tomorrow will be better, I'm sure.
Wondering about what all the different symptoms are is the worst thing I personally do to myself regarding ectopic beats like PVC's. It is such a gross nasty unnatural feeling when you get them that it's just about impossible to adjust to or ever consider normal. And the minute you are used to one type of feeling of a PVC or PAC the next minute it feels different. So, it's hard to know whats new or what needs to be checked out. Anyone else have like four or five different feeling PVC's and get what feels like new sensations daily?? Haha. I certianly do.
Nurse Kagome
Just thought I'd let you know that I get the very fast heart beat with PVC's. It has been captured on a holter beating at 220 with pvc's. The doctors called it PAT. I, just like Tickertock(and he and I have discussed this) get it maybe once or twice a year. I don't think he has it anymore, however it sounds like the same thing. It happens after some type of skip (must be a pvc but it has a much longer pause than the normal pvc) then whammo - it beats at 220 with pvc's. The pause scares me more than the whacko fast beats. The longest episode was about 15 minutes. Usually they are much shorter. It happens out of the blue. I can't predict it. It woke me up from sleep once. I also am thin (106 lbs) and healthy. I take 1/4 of a 25mg of Tenormin. It seems to help. I do have those days where my heart just beats faster (like in the 90's) Sometimes I just take another 1/4 of the Tenormin. When it gets tachy like that it makes me feel like I've been running a marathan. I wouldn't worry too much. It really sounds like exactly what I get.
Take care
Jodie
During the attacks of tachy/pvc's I feel very lost, like I have soooooooooooo no control over it. I sit there like wtf is going to happen next? Panicy...sweating (cause my hr is so high I guess). It makes me weary afterwards and fearful of it happening again. Just the thought of it scares me. What I feel most icky about lately though is the fact I get PVC's on exercise now. It normally never happened before...only afterwards. I was told not to worry and I have read things agreeing with that but also things that say it's bad. Anyone got any knowledge 'bout that?
Btw, when do the Dr's normally post their responces?
Thanks all!
Nurse Kagome
maybe the pain was a coincedience??
Nurse kagome
Heart Hiccup and Dmil241, thank you for your responces. This condition too often makes me feel alone, astranged from fam/friends, worrisom, and just annoyed with myself and it. Hearing all of your comments really has helped me so much over the past 6mths.
I thank you all and I hope more of you will post your experiences regarding this topic, I look forward to reading them:)
Nurse Kagome
Fast forward from January til now. STILL FEEL THE SAME. Last month went to an EP who agreed to put me on a 14 day loop monitor. Overall results says NORMAL SINUS RHYTHEM WITH SUPRAVENTRICULAR PREMATURE BEATS. When I hit the record button, sometimes it showed PVC or PAC sometimes it showed NSR and sometimes it showed SINUS TACHYCARDIA. Highest HR was 155. I was over 100 alot on the monitor but don't recall what I was doing at those times cause they told me the record button would log it symptoms and activity (light, moderate, heavy). But there were some occasions that I wrote the time and day down thinking I could match it up with the report. But on the report, it only gives the day...not the time...so I don't know what I was doing to cause the high HR. The report shows ST ALOT but yet, the report says NORMAL RESULTS.
Of course, a week after going off the monitor I had a BAD episode. All this time, it would be so quick that by the time I checked my pulse, the feeling was gone and my pulse felt fine. THIS TIME...The feeling (going down a hill, hollow feeling in chest and neck) came over and over, checked my pulse and felt the beat..beat............beat...........beat..beat..beat. SCARED ME but also relieved me cause I knew it. I KNEW IT FOR MONTHS THAT THIS WAS WHAT I WAS FEELING and I was constantly told otherwise.
So now...my only question...this bad episode NOT CAUGHT on monitor...could this be some other type of arrhythmia or is this just a PVC or PAC run? Any help or advice would be truly appreciated.
Jodie
she told me today to accept my palps and make nice with them or it will only cause anguish for me. i agreed...as of today they are my buddies. i have had alot already and brushed them off on her advice. i have been examined far more than i have needed she said and she's right about it all! :)
she also told me that alot ALOT of pt's who have pvc's on exercise will find them decrease or stop altogether after a pt accepts their diagnosis. that would be nice :)
thanks so much for your posting, it means alot to me
Nurse Kagome