My nephew is now 3 years old, and was just diagnosed with Subaortic Membrane. My family just now began to notice that he has symptoms suggestive of the disease such as increased fatigue, getting short of breath very easily, even having his lips turning blue after jumping and dancing for a short time. My question is where can his parents find a listing of pediatric cardiovascular surgeons who have experience with treating this disease?
WELL MY SUGGESTION WOULD BE TO CHECK OUT THE STATE WHICH HE LIVES IN OR NEAR BY> WHEN CHRISTOPHER HAD TO HAVE SURGERY ON HIS HEART WE WERE GIVING 2 CHOICES OF PLACES I WENT ONLINE AND DID OUR RESEARCH WE CHOSE CHILDRENS HOSPITAL, BOSTON.
I THINK HIS PRIMARY DOCTOR SHOULD BE ABLE TO HELP ASK THE PCP WHO HE/SHE WOULD GO TO IF THEY HAD A CHILD WITH THIS
WHAT STATE IS YOUR NEPHEW IN MAYBE SOMEONE CAN HELP
I HOPE HE WILL BE OKAY
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