I began taking fecainide a year ago for a-fib, they put me on 50mg twice daily. I find that being stressed out will bring on an episode. I can stay in a-fib for 6-12 hours even after taking up to 100 mg of fecainide. I am 57 yo and relatively healthy. A-fib has changed my life. My dr. says I am not a candidate for ablation because my episodes are not severe enough...so I continue to take the fecainide.
I was hospitalized with my first Afib event a month ago.
After 20 hours of 'Afibbing", with an IV of heparin and digoxcin (sp?), I converted to normal sinus rhythmn. Am now on 100 mg., b.i.d., of flecainide, metatoprollol 25 mg. b.i.d., and coumadin 2.5mg. once daily.
I have experienced rather severe dizzy periods, crying jags, lower leg discomfort, and "tugging" feelings over my heart area. I do not like these side effects, especially since my cardiologist said that flecainide had "hardly any side effects to speak of." Also, shortness of breath and always being tired are two more of the undesirable feelilngs taking this drug. Don't know what to blame this all on - the flecainide or all the drugs taken together. I am 65 years old and went from taking nothing but a vitamin and EFA supplements to this fiasco!
I was put on a daily dose of 25 miligrams of atenolol for svt after an episode in er when had to be injected with adenosine. Anyone have experience with atenolol for this? My episodes of svt have increased in the last 2 months--maybe 5 or 6 attacks, when previously it was 1 or 2 per year. I am 63. My cardiologist didn't mention the pocket pill.
Hi,
I suffered from A/F suffered TIA,s then major stroke I had ablation all was ok for three weeks then heart was fluttering and beating fast I then had angiogram heart and vains were ok so I was put on My warferin Sotalol and Flecainide Im now like a zombie suffer from regular sickness feeling dizzy and almost fainting but recover right away feel like drunk all the time balance is terrible My JP and Cardiolagist dont seem to hear what im saying they just look at me examine me and dont give me any reason for this illness they just do not grasp the fact that it is the tablets causing this " I was ok before Tablets so what ever can I do now I have no quality in my life I cant go out so is there any cure for me ( I SURE HOPE SO ) But where can I get it ?
Do you believe the ablation caused an increase in your pvcs? How many are you getting a day?
Unfortunately, I had an ablation with only partial success. My tachycardia is improved but my pvc's are worse. But, I would do it again for the hope of a cure.
Best wishes!!
The only real option for me is the ablation. I just want to be svt free so i can go back to living a normal life and start a family! I know everyone says it's not life threatening but it's stopping me from doing every day things. I wish i could take a "pill" that had no side effects and was 100% safe and 100% effective in controling the svt...but i guess that is not ever going to happen (well not yet anyway)
At one time, I was on flecainide and then rhythmol for pvcs. When I found out I would have to take it for the rest of my life, I talked to my doctor about the likelihood of a successful ablation. I was multifocal so she explained that it could take more than one procedure, but I think b/c I was so symptomatic they were pretty confident about ablating the foci.
Like collegegirl said, ablation offered a "cure" whereas, in my case, the meds were a "bandaid." Also, I didn't like the side of effects of the meds and decided to try and get at the problem via an ablation.
Don't be afraid (look who's calling the kettle black...LOL) of the ablation. Ask LOTS of questions and be sure to tell everyone in your path that you are anxious over the procedure. I hope you receive the same quality of care that I received. Everyone was wonderful and I have VERY little recollection of any discomfort. Prior to each procedure I was given versed and fentynl and it was as if I was asleep.....zzzzzz
take care and keep us posted
because the drug is a treatment, and the ablation is a cure.. Alot of people dont want to take a drug forever, and certain drugs lose their effectiveness over time..
The ablation is a one time procedure, that in specific cases of svt, have a 98% success rate of a cure... Medication is not fulproof, people have breakthrough episodes, but if the problem is no longer there, you cant have a breakthrough :) The instance of the svt returning after the ablation is around 2%...
Are you still wanting the ablation? or are you considering trying medical therapy for awhile first?? both are definatly viable options.
Thanks, I'll definitely let you know how it goes with the Flecainide. The thing that i don't understand is if it is an effective drug to stop svt then why do so many people have the ablation? Why not simply take the Flecainide when the svt starts??
My ablation is in June and i'm petrified but hopeful!
Interesting on using Flecainide as a "pill in the pocket." I haven't heard of using that particular med on a PRN basis. I was given flecainide for frequent pvcs a few years ago. I was admitted to the hospital and put on the telemetry floor for 3 days when I started the RX. The doctor felt pretty confident with the medication, but I lived kind of far from the hospital, so she felt it was better to start the med while hospitalized. It worked wonders for my pvcs!! Let us know how it works on as "as needed" basis...
My cardiologist also said it was a safe choice in a structurally normal heart.
I'm not sure about the adenosine....
Good luck!! When is your ablation?
Thanks. I too can sometimes convert by burping! sounds funny but its true! I don't know what the connection is but i aslo find i need to burp when i have a few pvcs too. Weird?
I took just 2 pills and had to stop it. It made my arrhythmia worse. Sometimes these drugs work for a while and then become ineffective. Because of its pro-arrhythmia I had to stop it. Likewise with rythmol. There are diferent categories of anti-arrhytmia drugs each with its own plusses and minuses.
No, I have never taken that drug. Just keep in mind, though, that you have to take the pill, and then wait for it to be absorbed before it can work as an anti-arrhythmic. Did your doctor give you any idea how long it would take to work? Some drugs are more readily absorbed than others, and it may depend on how empty your stomach is when you take it. Since you do seem to have a lot of anxiety ;-), you need to ask yourself if you can wait as long as it takes, or if you'd rather go to the ER instead. If I recall correctly, you have only had one episode where you had to get the Adenosine? There are a number of techniques that work *sometimes* to stop an SVT attack relatively quickly. Unfortunately none of them worked for me! I had a patient once who swore by drinking a carbonated beverage as the burping made her convert! Sometimes I just spontaneously converted after 30 min. or so, and thus didn't have to go to the ER. Just some of my thoughts!
There have been several papers in the New England Journal of Medicine describing studies showing that the flecainide "pill-in-the-pocket" is very effective. This appoach is generally well tolerated in patients with structurally normal hearts. If you have CAD for example, this would be a no-no.
The thinking about flecainide has changed during the last few years, My cardio once gave me the option of starting flecainide (for daily dosing) in the hospital to control my afib. He felt back then that a 3-day hospital observation was absolutely needed because of the flecainide proarrhythmia effect (which usually shows in the first 48 hours).
Yes, I have taken it for A-fib. I took 4 at one time and it worked. Within a couple of hrs. I was out of a-fib. susie