I was just wondering when HCM is usually diagnosed in people. My grandpa died of HCM in 2002 and My sisters, mom and I have been checked every couple of years with echos to make sure we don't show signs of the disease. How long will I have to do this and is there ever a point where the doctors can say that I'm not going to have/ get it?
If you are all grown up and show no signs of HCM, chances are you probably won't inheret this disease. That does not mean that you will NOT get it, so you are better off redoing echos every few years. Usually when this disease is a genetic form, everyone tested will show some signs of the disease. The worst prognosis is given when it is discovered during the infancy/childhood years due to the fact that children are growing so rapidly; the heart walls grow thicker during growth spurts. HCM can be sporadicas well and that could be the case with your grandfather.
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