Greetings, in the presence of the Lord.
In April of '02 my right leg swelled to
twiceTwice-a-day it's
normalNormal saline flush size. I can't describe the pain. I spent the rest of the day in a wheelchair. Several test were performed and doctors could never diagnose the problem. In Feb. '03 I experienced the same problem with my left arm. I was off work 2.5 months. Over the next year the pain got severe, eventually moving to my
neckCervical spondylosis
Head and neck glands
Herpes zoster (shingles) on the neck and cheek
Irritated seborrheic kerotosis - neck
Lymph tissue in the head and neck.
Melanoma - neck
Neck lump
Neck pain
Neck pulse
Neck x-ray
Oral cancer,
shoulders shoulders intensive treatment
Shoulder arthroscopy
Shoulder pain, back, and chest. I began having difficulty breathing in the morning and sleeping at night. I saw over 13 doctors and not one could find the problem.
In May of this year my therapist ordered an MRI, which revealed axillary
venousDeep venous thrombosis
Deep venous thrombosis, iliofemoral
Intravenous
Intravenous pyelogram
Intravenous pyelogram (ivp)
Pulmonary arteriovenous fistula
Pulmonary embolus
Stasis dermatitis and ulcers
Varicose vein therapy
Venous blood clot
Venous insufficiency prominece. A CT done in June showed evidence of a Right-Sided
AorticAbdominal aortic aneurysm
Aortic aneurysm
Aortic angiography
Aortic arch syndrome
Aortic dissection
Aortic insufficiency
Aortic rupture, chest x-ray
Aortic stenosis
Hypertrophic cardiomyopathy
Thoracic aortic aneurysm Arch. A CTA done in July confirmed this, along with NO evidence of a Left Subclavian Artery. It did not show up on the CT or the CTA. Doctors have not been able to get a pulse or blood pressure in my left arm for over a year. I also have arrhythmia.
I am constantly in pain, especially in the shoulder/neck and back areas. I can't hold my arms up. I have problems carrying items, and performing basic household chores, such as sweeping, folding clothes, etc... Doctors have recommended bypass surgery, which is a bit scary to think about. I'm 28 years old. I've also been told that my case is so rare. Doctors are in awe that I never had problems before now.
1. Without the bypass, what could be the long-term effects?
2. Could there be any connection between my leg problems and the diagnosis?
3. Can you give me any additional information about the diagnosis?