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Scimitar

I am a registered nurse but my 14 year old daughter has Scimitar Syndrome. The genetics team at UMMS did a genetic study and it revealed Scimitar is not hereditary. In fact they called it bad luck.

Prognosis varies with each child.

Please contact me if I can help in anyway


This discussion is related to Scimitar Syndrome.
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Have you considered writing this on the Rare Disease Forum?
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367994_tn?1304957193
Though the causes for Scimitar syndrome are ideopathic.  It appears it is not genetic, but if it prevails in the family the chances of a child born with the defect seem to be a factor.  With that information, it is difficult to rule out a genetic predisposition!  Any comment?
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I've only heard of one family where there were two cases. This is such a complicated syndrome!
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How do I do this?
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