I am a 120lb 45 yr. old
womanWomen's way, perimenopausal, healthy, active. Was hospitalized at 1 a.m. one night with SEVERE chest pain and
pressurePressure ulcer that was felt front and back and into the left
shoulder shoulders intensive treatment
Shoulder arthroscopy
Shoulder pain,
neckCervical spondylosis
Head and neck glands
Herpes zoster (shingles) on the neck and cheek
Irritated seborrheic kerotosis - neck
Lymph tissue in the head and neck.
Melanoma - neck
Neck lump
Neck pain
Neck pulse
Neck x-ray
Oral cancer and jaw. Heart rate was 128 at rest.
NitroNitro td patch-a
Nitro-bid
Nitro-dur didn't do anything,
morphineMorphine
Morphine sulfate
Morphine sulfate sr didn't help pain. Was given blood thinners and beta blockers which finally slowed rate and eased pain some. Chest was sore for days and still doesn't always feel right. ALL tests ( blood enzymes, ekg's, stress tests, cat scan and x-rays) are O.K.
What can this be? One doctor thought I might have strained a muscle in the chest that spasmed. I was lifting heavy things that week ( I often do) and 5 days prior to this I seemed to have pinched a nerve under the left shoulder blade which still hurts.
Is coronary artery spasm a possibility here? Cholesterol has always been high but triglycerides 46. Doctors don't really have an answer. Since the pain was SO SEVERE and scary ( I was giving end-of-life decisions to my husband on the way to the hospital) I'd like to make sure it doesn't happen again!
I forgot to mention, I was also short of breath. B/P was o.k. Mine is usually on the low side.
I think I would also consider the possiblity of coronary artery spasm - which often occurs during sleep and can cause extreme pain - if a spasm caused a temporary and/or incomplete blockage your tests could still be normal despite severe pain.
Of course, this is just my layperson's opinion. Best wishes to you. Andie
Your monitor results look very good as far as I can tell. That thread was closed or I would have commented earlier. Ventricular ectopics are PVCs - which you had 25 single PVCs and one pair (which I assume means a couplet of two PVCs back to back without a regular beat in between). I think this is normal, benign, finding and that most people in the general population would, at times, have this number of PVCs.
Superventricular ectopics originate in the atria (ex. PACs) and you had 66 of these. I think you had 12 single PACs and 1 pair - perfectly benign and normal. You also had 50 superventricular (atrial) ectopics that occured in runs - with one run lasting for 22 beats. I think that this is equivalent to a couple very, very, short episodes of superventricular tachycardia (SVT) which is also benign and not worth worrying about. People can have episodes of SVT that go on for hours at a time and it is still benign as long as it is not causing other symptoms like shortness of breath or fainting.
As far as your symptom log matching up to the report, I'm not sure how much the person who interpretes the computer's report from your monitor is going to go back and look at your written log to try to match events up with symptoms. Especially with a benign, healthy report like you have - it probably just isn't worth their time. The bottom line for the person looking at the report would be: "Is there anything here that is concerning or that requires follow-up". In your case, the answer is "no", so they probably just leave it at that.
I think your report is very reassuring - most people would be content to drop the issue and let it go and think "great, my heart is fine and the variations in my rhythm are well within normal, healthy limits" But, I understand that you feel the need to have a definitive explanation for your "big ones" (which I'm guessing are due to the same events that have already been recorded on your monitor, but for whatever reason you experience them more intensely at times). A 30 day, looping event monitor is probably the only way you're going to know for sure what the "big ones" are. I don't think your doctor feels the NEED to know because, based on the monitor results and your whole health picture, she or he is confident that your heart is fine. Maybe YOU think you need to have a definitive answer - I am very much like that - I THINK I want to know everything 100% - but just by saying that, I see the absurdity in my way of thinking. We really don't know anything 100%, and health issues much less so. So, bottom line is "I don't know" - I just try to do what gives me peace of mind. Best wishes, Andie
Just wanted to chime in about the costachondritis. I've had it for about 10 years and made several trips to the ER thinking it was my heart. It is such a nuisance and pain, literally! Mine feels like a horrible cramp right in the middle of my chest where your ribs meet the sternum and is worse if I move or twist my body, especially if I squeeze my shoulder blades back. Stress and lack of good sleep makes mine 10 times worse too. Definitely explore that avenue as I was sure it had to be my heart and was stunned when the doctor told me about costochondritis. Mainly it's an inflammation of the cartilage that connects your ribs and can flare up anytime. Look it up, it's very interesting. Best wishes (:
My doctor seemed suprised I even mentioned the event monitor or that I even knew what it was. I told him I know that people can have something wrong that only gets picked up after weeks of being on one. He said based on all findings thus far, he didnt agree. He told me to wait it out, he thinks this is all going to go away, to take the Klonopin and see him in 6 weeks. 6 WEEKS????? Wow. I hope I can hold out that long. If I get a big one in the meantime, I dont know if I should go running back to him or convince myself...ITS NOT THE HEART...LET IT GO! I KNOW and event monitor will give me peace of mind, but doesnt seem like I will get that any time soon.
I want to thank you so much for all your time with your responses. I have been having to hold this all in from my family and friends cause when all the tests keep coming back okay and I STILL insisted SOMETHING IS WRONG...they were yelling at me and telling me I wasnt thinking logically. That I was letting this change me and affect my life.
I wanted to ask you though, 1) when I feel the small ones, I never feel a skip in my pulse. Only the BIG ONES, any ideas? Would I ALWAYS feel a skipped/pause in pulse with these beats? and 2)do you think these things will go away? my doctor seems to think they will, I think either because he thinks something else (like gastro) is causing it or that this is anxiety related and once I calm down they will go away.
Perhaps this website, with its animations, will help you understand what's going on:
http://science.howstuffworks.com/heart4.htm
Will the PVCs or weird feelings go away when you're less tense or whatever? Maybe, maybe not, but I can tell you that when you're less anxious, you will be less aware of them, and you will feel more comfortable.
TOTAL BEATS 111810
0.02% WERE VENTRICULAR
0.O5% WERE SUPERVENTRICULAR
0.0% WERE PACED BEATS
MEAN HEART RATE 79
MAX HEART RATE AT 8:45PM WAS 145
MIN HEART RATE AT 7:43AM WAS 47
VENTRICULAR ECTOPIC TOTAL 25, SINGLE 21, PAIR 2
SUPERVETNTRICULAR ECTOPIC TOTAL 66, SINGLE 12, PAIR 2
BEATS IN RUN 50, LONGEST RUN 22, @6:08AM - RATE 91
COMMENTS:
NSR, RARE PAC
Doesnt specify if my symptoms matched the holter. Doctor said he didnt think these results explained everything I am feeling. I said then I want an event monitor. He declined. At least til I try Klonopin for a few weeks. I KNOW ITS NOT GASTRO like he wants to follow thru with in the meantime. So I find that to be a dead end.
PVCs and PACs are very unpredictable in their occurance and frequency. I had a ton of them for about six months - now I only notice a few each day. Sometimes I go for weeks without noticing any. The best thing you can do is eliminate all caffine, chocolate, get plenty of rest, and reduce stress. There are probably other lifestyle changes that will help, but these are what works for me. Andie
OK, I think I see. Based on your Holter results, your doc must have agreed that you occasionally have ectopic beats, right? By the way, a "normal" Holter reading can certainly include bunches of strange beats. Some kinds are bad, and others are not, and the difference is pretty easy for a doc to see. I think what he's saying is that your ectopy is not the bad type.
What seems a little odd to me--and what bothers you--is that he doesn't seem to believe that you are actually feeling the odd heartbeats. Maybe he's just trying to reassure you that there's nothing wrong with your heart, but this is a strange way to go about it. Has he said what he thinks is causing your sensations? Gas bubbles? You could try to pin him down on that. Ask him flat out: "Am I having ectopic beats? Is it possible that I am feeling them?" "If not, WHAT do you think I am perceiving?"
As to the weird "hollow" feeling you describe, I get that, too. In my case, it's associated with the longish pause just before I feel the big thump of a pvc, and I suspect that it's related to the firing of the vagus nerve, which has connections both with the heart and with a person's emotional state. A fearful person is going to be more sensitive to this kind of feeling, and you are clearly sensitive to what is happening in your body.
When you are less anxious (and I'm not at all sure that Klonopin is the best thing for long-term anxiety management), you will find that these sensations will be less intense, and may even fade, even if the extra beats are still there. The chances are that they will occur again in your life, because although doctors can try prescribing a few medications like beta blockers, the medications themselves have side effects, sometimes worse than the condition itself. Lots of people hope that OTC substances like vitamins, minerals, and herbs will help PVCs, but there no evidence to that effect. Most of us with twitchy hearts just have to learn to live with them--or else waste our lives worrying.
My Holter said RARE PAC. No mention of PVC's. I question the ventricular and supraventricular ectopic beats what were on my holter, and he said that is where the beat originates from, was within normal range, everyone gets them. I figured they had to be PVC's coming from the ventricular..yet the diagnosis was PAC. So I am now thinking the PVC just wasnt picked up. I did ask him if my symptoms were coming from these beats and he said "doubt it" which frustrated me to no end. I remember sitting in his office baffled wanting to scream WELL MATCH IT UP TO MY EVENT LOG FOR GOD SAKES. And I did ask him that and he said, if something gave up a red flag, the cardiologists would have marked it or something like that. I mean, you can get so intimidated in a doctor's office. You think you sound like a complete hypocondriac so you (at least I) walk out of there just frustrated. I have a nurse who works in my office building, showed her the results, she said they seemed good and I should feel good, I told her everything going on and she said ask for the event monitor, I told her he said no. She said she thought if there was anything really wrong, it would have showed SOMETHING with or without bad symptoms, but she did agree some things are so infrequent, it takes a longer monitor to capture it. She also said, "the diagnosis was PAC...so be glad...you dont want PVC, they are bad". GREAT. I JUST DIDNT NEED TO HEAR THAT.
So here I am, not drinking coffee, soda, alcohol...not going on amusment park rides, or swimming, so afraid quick movements and twisting and turning will bring them on. Here I am thinking I have these symptomatic PAC and PVC (cause as my doc puts it WE ALL GET IT just most people dont feel them) and for all I know maybe i DONT have these things. Maybe this is something else. I know in my heart...the event monitor is the only way I will be completely assured. I went to the gastro like he told me and HE said these beats can cause my symptoms and said the tests he can do to see if its gastro are invasive and does not want to do just yet cause he is not sure they are warranted. I COMPLETELY AGREE.
Have you read the thread above this one where someone lists the ten steps that people with PVCs go through - if not, please do - its great - and so true. I'm going out of town for a few days - be back Sunday. Try to do something fun today - Andie
What post are you referring to about the 10 steps? Cant find it. And also, would these hearbeats explain the constart upper chest sorensess and unable to catch a deep breath? My doc tells me no which is anothe reason why I think he keeps telling me its something else doing this.
Also, you say this:
"So here I am, not drinking coffee, soda, alcohol...not going on amusment park rides, or swimming, so afraid quick movements and twisting and turning will bring them on."
When your heart is tossing off extra, goofy beats, it makes sense not to do things that might be expected to make it worse, so, yeah, cutting back on caffeine and alcohol are reasonable. However, avoiding amusement park rides, swimming, and quick movements are not good choices. The chances are that your odd beats will DIMINISH with activity, not increase. The heart loves and needs exercise, maybe expecially when it's a nervous heart.
I worry that you may be flirting with a condition called agorophobia, which causes people to avoid situations which they associate with their symptoms. Eventually, they can wind up virtually housebound. A real disadvantage of living this way is that not only does it not help at all, but in treating your body as if you have a grave illness, you give yourself even more time to dwell on your symptoms.
It's because of this that I mentioned that I didn't think Klonopin was the best thing for you. I suspect you would do better with long-term medication for chronic anxiety or panic. If you haven't yet seen a nice psychiatrist who deals with these conditions, I suggest you do so. If you're anything like me, you may want to try one of the SSRIs, as well. Talk therapy for anxiety has helped several people here, but don't be frightened to try these drugs, because when you find the right one, it can be a godsend in giving you back a normal life.
I dont know how long I need to be on the Klonopin. I am on the losest dose. .5mg twice a day. Doctor says he things once my body and mind calm down, this will all go away. I always have a "what if" thought in my head about them missing something...and have had my moments of what if the techs who ran my tests werent experienced enough and didnt do it right, yes, i sank that low. I cant tell its low when I mentioned that to people and the look on their faces was all i needed.
I havent had a BIG one...since April 28 and 30. All since have been small ones...I dont know if that means I am getting better or that one is yet to come. The big ones never came every day.
I think I read your holter report said 66 events in 24 hours, but it didn't capture any of the "big" ones you feel that make you uncomfortable.
Just to give you a comparison, which I hope might make you feel better, my last holter recorded 1220PVCs/hr, so about 20,000/day, estimated at 20% of my heart rate. I get lots of "big" ones. But they are no more serious than the ones that happen all day long that I'm not aware of. The nurse at the doctor's office can't feel them when she takes my pulse. And I struggle to "feel" all of them myself, but I'm past the point of checking all the time. You'll get there too. Every once in a while I'll catch myself watching, or listening again, it's human nature, but finding activities to distract yourself of that nasty habit will be your godsend.
Goodluck with it all, keep reading, lots of people here who can help just by reading their stories and knowing they are still here.