my almost 11-year-old son was diagnosed last week with SVT. he is otherwise very healthy and incredibly active... his first episode was last week and a pretty intense one that lasted over an hour... and unfortunately it happened at the end of baseball practice and he's a shy one who didn't want any attention drawn to him so didn't say a word till he got home ~45 minutes later. Since then he has had 4 smaller episodes, of which the last two he was able to help end by vagal maneuvers...
we are comfortable with all that we have learned. he has had two EKGs (both uneventful) and one trip to the ER today. we are waiting to see a cardiologist.
we have yet to get an idea of how fast his heart rate has been during an episode and the Children's Hospital ER docs suggested we call 911 during the next episode b/c they can hook him up to an EKG and get a reading. Of course I understand the EKG will tell more than just his heart rate... but I have to be honest and say that I am acutely aware of $$ right now. Is a 911 call necessary?? Or wait for the cardiologist appt. when they give him the Holter monitor?? The school staff is unable to check his heart rate or assess any medical conditions. They can only observe & report.
Would it be silly to buy a couple personal finger heart rate monitors to keep one with me and one at school so we can get a better idea/understanding... also give my son a little sense of 'control' so he feels like he is actively doing something vs. sitting, waiting, watching all the bustle about him... Or am I just a mom who is worried about her babe and looking to buy unnecessary items!? ;-) Would you buy one? Two (one for school & home)?
Thanks so much! Truly appreciate your support as we transition into this latest stage!
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