Hi Daniele,
This sounds like inappropriate sinus
tachycardiaArrhythmias
Multifocal atrial tachycardia
Paroxysmal supraventricular tachycardia (psvt)
Sick sinus syndrome
Ventricular tachycardia, but here are a few other tachycardias that can masquerade as IST. IST is notoriously difficult to treat with medications. It depends on how symptomatic he his. There is an ablation procedure that can modify the sinus
nodeLymph node biopsy
Swollen glands
Swollen lymph nodes in the groin
Swollen lymph nodes under arm, but the success rate is only 50-80%. Ablations are last resort therapy. There are a few other peole that follow the board with IST. I am sure they will weigh in about options.
IST can rarely cause decreased heart function from sustained elevated rates. This would be an indcation to attempt an ablation.
University medical centers are probably the best option, especially here in the US.
I hope this helps.
good luck and thanks for posting.
I'm curious as to what beta blocker he is on. Inderal would help with the tach, although 25mg per day seems like a low dose. A beta blocker might help reduce the frequency of his migraines, although it won't reduce any actual migraine pain.
In general, beta blockers are pretty safe meds when used as directed by a doctor.
There are lots of good posts in the archives here about sinus tachycardia. Check them out.
I'm not a medical professional, so your mileage may vary. Let his doctor take the lead on this, and try to calm down. Good Luck.
Thank you again!
Daniele
I too suffered with tachycardia as a young boy, teenager and man. Mine was diagnosed as sinus tachycardia, though anxiety , fright or a premature beat could trigger it like a switch, it always took a while to come back down. I used have heartrates in the 120s for days. My resting heartrate could vary bewteen 85-115bpm. I took inderal but had break throughs on inderal, atenolol completely controls my tachycardia with no break throughs . Some cardios debate whether I had IST, just anxiety tachycardia or maybe some PSVT. I have PVCs occasionally also, thats another plague though I rarely have them anymore. My grandmother had tachycardia all her life also, her resting heartrate was almost always over a 100 bpm. She died at 89 and her heart was still in good shape when she died, in fact the docs said her was very strong, she died of complications from a broken hip.I'm now 41 and my resting heartrate probably averages around 64 on atenolol. Wishing your son the best.
I know exactly what you mean. I too have been suffering from sinus tachycardia for years now. (BTW, I'm only 33) My heart rate would go up to 180 bpm for no apparent reason,not to ,mention the pac's and pvc's. Well after a slew of tests (echo's, stress-tests, holters, event monitors) the latest cardiologist says its SVT. (My dad has SVT and right bundle branch blockage) I'm on atenolol,only 12.5 twice a day because taking 25 twice a day dropped my heart rate down to 40 while I was awake! So far the atenolol works but my worst tachycardia happens when I'm asleep so I still get breakthrough tachycardia episodes with occassional night sweats. They tell me structurally there's nothing wrong and to just ignore it but some days that's easier said then done. Oh, I even get chest squeezing which now they tell me must be gerd because I'm too young to have blocked arteries! Best of luck to your son though. He's definitely not alone! Stress really aggravates mine too so I try to keep the stress to minimum. Hard to do with 3 kids under 7! Take care (:
I had a modified sinus node ablation in Boston at age 29. The fast rhythm came back quite quickly and I had a second and finally a third. I ended up needing a pacemaker. Since the pacemaker I have had terrible arrythmias all over the atrium. The worst being a-fib. I ended up shortly after the pacemaker and identification of the afib on coumadin, and eventually anti-arrythmics. After many years, and many drug trials, I had a complete AV node ablation, at age 37, 2 months ago. This means I will no longer feel the arrythmias from the upper chambers, but I am also 100% dependant on my pacemaker.
The bottom line:
Personally, if I were you I would do everything else before ablation. It sounds like he is just starting trials with meds. I went through several years of several meds. before I went forth with ablation. I tend to hear more from the people that end up getting pacemakers due to the ablation, but I would love to know an actual statistic on how many ablations it takes to reach either a normal rate or getting a pacemaker.
It sounds like it is a difficult situation for you, as communication is not great. If he can get himself to a good EP who is conservative and willing to go through courses of meds. prior to an ablation decision, he's on a good path. If you have more questions I would love to help. Just keep replying.
Good luck!
I meant to let you know that my dad who has SVT (supra-ventricular tachycardia) had it for over 20 years and was on beta-blockers until they no longer worked. He just this Christmas had an ablation which worked perfectly for him. My point is that my dad had the tachycardia for a long time, it didn't damage his heart at all and he only had the ablation because it was too much of a nuisance to go to the ER and bring the fast heart rate down since his meds stopped working. I hope this encourages you. I'm sure your son will get a proper work-up and like the other people who posted already said, they'll try playing around with beta blockers to see how he feels. I understand that it must be hard for your son to be only in his early 20's and facing long term medicine needs. Personally, I think atenolol (which has been around for a while and I've taken for a year now) works really well. How frustrating for you though to be far away! Best wishes to you and your son (:
How do you know when to worry about these rythum disturbences?
I also had IST with rapid rhythms in the 140-180's constantly. They attempted 4 sinus node modifications. The fast rhythm came back after the first 2 and then after the third I required a pacemaker. I am also very young at 27. I am glad they were so aggressive with treating me because I was developing an enlarged heart from the constantly fast rates. My suggestion would be to go to a very large institution that has a lot of experience with IST, like the CCF doc said. The best type of doctor for your son to see is an EP(electrophysiologist) because they deal specifically with electrical disturbances of the heart. They would give options for various types of medications to more invasive treatment like ablations. Good luck and I hope everything works out.
If you read more of this forum, you will find people that have to deal w/ a lot worse and are still alive and kicking. I know it's scary esp. since you are far away & it may feel like you can't help him, but this is a condition that could last for some years or could go away on it's own. Tell him to stay positive, listen to calming music esp before bed and tell him to pray alot. That has REALLY helped me. I hope this helps ;)
A pacer will not help IST. A pacemaker is to help keep the heart rate up not to lower it. For example, my own heart rate is 30 beats per minute without the pacemaker, but the pacer makes it beat at 80 beats per minute. Pacemakers won't help to lower fast heart rates. I wish they were able to do that(: It would make life a lot easier for people with tachcardias. A pacemaker is also pretty invasive. It's actually more invasive than ablations, because it is a foreign body implanted into your body with electrodes attached to your heart. So you run the risk of developing infections from it, and you have to go in for procedures to have it replaced every 5-10 yrs. But I'm very grateful for it. Life is better with it, than without it. Take care!
In 1982, there was one called "PASAR" was designed for tachy (SVT), Dr said was very effective but my beats overwrote so it wasn't effective for me. That time I haven't had brady yet.
From my feeling, when I have exercise, the pacer keep continue to pace at 70 (doing its job). My heart is doing its job and keep racing. End up like a "WAR" in my chest, machine gun and dropping bombs. My chest then become a battle field .....
Just let you all know, pacer also can use for control tachy as well. Take care.
Pika
http://www.sjm.com/devices/device.aspx?name=Contour%26%23153%3b+MD+ICD&location=in&type=6
Pika.
Emma