Skipped Beats w/ Light-Headedness After WPW Ablation

[Jon79]

I am 27 years old and had an ablation done because I was diagnosed w/ WPW this past summer.  I had a form of tachycardia where I'd get runs of fast beats every so often, but it wasn't that frequent (nevertheless scary).  I had the procedure done in Jun-06 b/c I was told there was a small chance that people w/ WPW could die suddenly.  I didn't know that after the ablation I'd end up with a different, more unnerving problem.

I now have what I believe are "skipped beats", where I can feel my heart flutter in my chest, sometimes followed by a feeling of light-headedness (not sure why?).  This has been a problem since the ablation, and now, 10 mos. later, I'm having the skipped beats even more often.  At first I noticed it mostly during the cool-down period post exercise, but it also happened while inactive.  The post-exercise skipped beats remain today, but occurrences while inactive increased dramatically in the last few days from 3-5 a week to about 1x every couple mins.

I had an event monitor for a mo. previously & did a stress test (of course the skipped beats didn't happen during/after the test at all), and my EP says everything is "normal" and the skipped beats were "normal".  They weren't "normal" for me...I never had them before!

I've since worn a halter monitor for 24 hr. constant monitoring, & later another event monitor for a mo., with results yet to be heard.  Other than a few episodes, I don't predict them seeing anything other than what they consider "normal".  I was hoping they would subside w/ time, but I'm now getting more skipped beats than ever, immediately after I returned the monitor!  I'm not an emotional person, but any time you feel your heart beat irregularly it's not something you can just ignore like they tell you to, so it is an emotional challenge.

What options are there (if any) to decrease/eliminate the skipped beats I'm having post-ablation?  Also, why do I sometimes feel light-headed when they occur?  Is my BP dropping?

[yilak1]

Hi i have been diagnosed with wollf Parkinson white syndrome last year and had a ablation 6 months ago and said it was successful but now i am having these skipped beat for a second or so weekly before my ablation but now i am getting some skipped beat daily and this worry me as soon as you get them doctors tell me to not worry that this is common and not dangerous but when you feel it it is unpleasant and worrying for you.

and also when i sit down i still have the skipped beat when i suddenly stand up i have this breathlessness and palpitation and then lightheaded does anyone have this with wpw or without wpw? if anyone has this can you tell me about this.  

i know how it feels out there people living with this the sensation of a sudden flip flop. and palpitation i want know that is this ectopic heartbeat or atrial fibrillation.

if you want to speak about your feeling and thought you can speak to me and message me from my account and leave your email so we can chat.

[Zooly79]

Hi , I'm a 37 year old woman and I too was diagnosed with WPW after giving birth to my 3rd child I woke up unwell and all I thought was my iron levels have dropped again although it was different anyway I had the ablation done hours of being in the ER last February 2016. IVe had skipped beats ever since I got out of bed and took my first walk at the hospital the doctor reassured me and told me this has nothing to do with the ablation and I was like that but didn't  know. I am very aware of my heart always have but never did I feel this skipped beat maybe once when my husband was checking my pulse and we laughed about it ( he is a surgeon). But like you said exactly in the cooling down period Ibut also a lot of times when im in the shower doing my hair , carrying my baby every day stuff . I noticed that if I am distracted I wont feel every single one . But for the past couple of days its all I think of and they have increased so much lately for no reason and to tell u the trig I still panic because it was a traumatic experience for me all I thought of was my kids. Anyway. I had 24 hour halter done 3 times and it did record the ventricular ectopic beats and again the dr wasn't worried. I got 400 skipped beats so he told me that if someone with a 1000 skipped beats had an ablation he would consider it a successful one if he got 400 ! So like I try to convince my self we just have to get used to it and be thankful we are alive . I still get so anxious when a day like today for no apparent reason Im getting so many I try to be calm about it but I seem to make them more frequent and can't stop the tension in my stomach from the fright.  Good luck to Us! I hope I reassured you a bit.

[redsleek]

If anyone has any heart condition, I would definitely recommend getting checked out thoroughly by good experienced cardiologists - and doing your own research and understand the condition. Too much research is also debilitating because it takes over your life and gives you anxiety but each person can decide how much to do.

We can only do what is in our control and what we think is best at that time given the information and resources we have. The rest is fate and God.

[redsleek]

Hi,
I was diagnosed with WPW when I was 10 in India. Jumped off a bench while playing and my heart went into tachycardia. Went home, couldn't eat, felt sick and tired. Mom took me to hospital and several cardiologists and I was diagnosed. Over the years, I used to experience tachycardia while playing or when I am extremely fatigued but never had anxiety. My episodes actually dwindled as the years went by and I used to have may be 1 or 2 a year.
When I was 24 I moved to Colorado and I was healthy and active. I ran, worked out, played soccer, skied and hiked 14neers, played lots of sports, ate heavily, drank coffee and I noticed the more I built my stamina the less the episodes.
I didn't let my heart condition stop me. But looking back I think I took lot of risk because I could have ended with a dangerous form when I was high up in the mountains.

In last couple years my activity level went down. I have psoriasis which flared and put me into depression.
Then last year for no reason my heart started acting up and I ended up in ER 3 times.

After visiting cardiologists, they recommended ablation. I wanted to wait but I had to turn a plane around when I started getting weird heart sensation. Thats when I decided to get ablation done in Oct 2013.

I have gone through a lot of anxiety and depression post ablation and I experience skipped beats here and there.
These days June-July, I am getting a lot of skipped beats every time I walk or eat heavy. And it gets me depressed. My family doesn't understand which is the tough part.
I am also taking Beta blocker 25 mg every night. When I reduced the dose to 12.5mg, I got more so I went back up again.


I have resorted to yoga, meditation, morning and evening walks, continuing to eat healthy, vitamins, omega3 supplements. It hasn't helped my skipped beats but mentally it is making me stronger slowly. It makes me feel like I am doing something with my life rather than just sit around.

I have gone from being adventurous risk taker who could jump off a cliff (with parachute or cord) to evaluating every move I make.

I still do drink decaf latte once in a while!

[craigmartin755]

hello iam craig 21 I was also diagnosed with WPW Syndrome  i had the ablation last fri they kept me in that night and i had the same thing that i went in with they said it was just a panic attack but i was in soo mutch pain then a week later i am having the same agen but not as bad i went to hospital they didnt know what to do so they sent me home is it normial to have this?

I have tried to phone dr anderson but not gettin back in touch would any know whats goin on

[billnalagi]

Hi there, I was also diagnosed with WPW Syndrome and 6 months ago and had my ablation about 3 months ago.I'm still expiriencing some of the symptoms though,mostly when i participate in sport activities. I'll run for about 5 minutes and I get really bad chest pains fast heartbeats.Afterwards I feel really lightheaded and dizzy.just would like if you expirienced the same things.and its really good and encouraging to know that you are still well 8 years after your ablation.
thanx
Bill

[starstruck158]

Hi I have had an ablation for wpw and I have palpitations afterwards also. I use to ride roller coasters before I knew I had wpw and now I am kind of nervous to ride them. I was wondering if any of you guys have been on one I really wanna know because I want to ride one again.

[Dimitrios91]

send me email here basically:P

[Dimitrios91]

dimitris-***@**** is my email..I give you my email for adding you in my msn and tank live with this "problem".i had wpw as well..i did ablation and after 8 years now i stil have these extra beats or what is that called..It would be nice if we can share this same problem together..Thank you

[Aguila2011]

I was 21 when I had my ablation in Seville, Spain. Great Doc! Right after Ablation still in hospital i had these skipped beats or sometimes I would call them extra beats, cant really describe the difference. Anyway, all these eventually dissapeared, my doc put me on atenolol 25mg, small dose 'cos he said that i was hyperkinetic, so atenolol would help to keep down. I was on this for about 10 years until got pregnant. I had these skipped beats very rarely and in occassions like a mini arrythmia, only like 3 secs, my doc always told me that this was what it used to trigger the wpw and that i was cured, he always repeats this. As i said I got pregnant and i was living in UK, so docs here took atenolol away, they said i didnt needed, I was fine for long time until now that my son is 3, i have these skipped beats or extra beats for like every day since he is been 18 months and docs say that everything is normal on tests, i have even called the great doc who did my ablation and told me i  have to relax, sleep a lot and do some walking. I am going crazy, 'cos it is really uncomfortable, it happens like everyday, all day sometimes, today i had not had any and I am happy. sometimes i think i get them but i dont even realise cos i am so used to them, i am just scared that this can trigger something else. At least i know there are more people experiencing this. Hopefully we can all help each other.tks

[alhinai]

I am a 20 years old , I was diag. with WPW 2 weeks ago and did ablation last week. I didn't have any problems till one day I fainted when i was shopping in Sainsburys. Luckily a nurse was shopping with her little son and saw me.She saved my life (did CPR for 5 min untill the ambulance arrived). I was told that my heart stopped for 3 minutes and had 2 electric shocks in the ambulance...

... An advice If u where diag. with WPW then DO the ABLATION, but be4 that choose the right Dr.

You might not find an angel to save u next time!

[MISTY415]

I WAS DIAG. WITH WPW 3 YEARS AGO I AM 26 YEARS OLD. I WOULDNT REALLY HAVE PROBLEMS. UNTIL1 DAY I FAINTED AT WORK . THEY RUSHED ME TO THE HOSPITAL AND FOUND OUT I HAD WPW. DR RESH DID THE ABLATION, AND I HAVE HAD EPIOSODES OF PAPITATIONS AND SEVERE DIZZINESS.LIKE I AM GOING TO FAINT . ALL OF MY TEST  RESULTS COME UP NORMAL FROM THE CARDIOLOGIST. THE DR. TOLD ME THAT I WAS BORN WITH IT AND THAT MY HEART HAS TO GET USE TO NOT BEATING AS FAST, AND THAT IT WILL GET BETTER IN TIME. AND IT HAS ALOT. I DRINK CHAMOMILA TEA AND IT HELPS. ANOTHER THING IS TO LIMIT YOUR CAFFEINE INTAKE.    ( I HAVE BEEN TO THE DOCTORS ALOT WHEN IT 1ST HAPPENED I THOUGHT THE SKIN GREW BACK OR SOMETHING ELSE WAS WRONG WITH MY HEART, AND THEY TOLD ME I HAD ANXIETY. I THEN TOLD THE DOCTOR YEAH I DO WHEN YOUR HEART IS RACNG AND YOU HAVE A HARD TIME BREATHING IT DOES SCARE YOU ITS NORMAL TO HAVE ANXIETY, IF I DIDNT THERE WOULD BE SOMETHING WRONG

[herbc]

I have WPW, large delta waves in II and III.  When I was first diagnosed they used drug therapy.....Beta blockers don't work, but Norpace/disopyramide works great.  It's tough to tolerate, though, if you have an active lifestyle.

What I've found that works very well without bad effects is Magnesium Aspartate, Orotate, or a hybrid made by KAL called Magnesium Asporotate.  I take about 600mg three times a day.  

Anyone can write me at chcollins at yahoo

[bookert11]

Is anyone out there living with wpw without any treatment? if so how is it going for you? thanks!

[luvboxers]

I know how you guys feel and it really sucks at times.  I was 19 when I had sudden heart racing that went on for days.  I was told it was panic attacks.  Six years later after my son was born, I had skipped heartbeats constantly.  It drove me nuts!  the weirdest thing about it was that I couldn't sneeze if I wanted to.  Everytime I would feel it coming on and get right there, my heart would skip and nothing.  That finally went away and then there was the heart racing thing again.  Just a steady 110 to 120 for hours.  Dr said slight tachycardia.  If I lay a certain way my heart will skip or beat fast.  I'll feel light headed.  Doctors have their theories but I don't think they even know for sure.  My only advice would be if you have to have any type of heart surgery, research and find the best doctor possible.  Make sure they are the best of the best.  

[Leslie613]

I had my second ablation for WPW almost a year and a half ago, and I still have the skipped beats too!  And my doctor is a nice guy, but he just doesn't get how emotionally devastating it is for people with this sort of issue (hence joining an online forum for emotional support.)  At least you've started to exercise again, I used to run all the time but now I'm completely paranoid to do it because it always makes the skipped beats worse.  I hope you start to feel better:)

[guitarpicker]

my doc told me to have a ablation in 2002 so I did,, rapid heart beat,, she called it a abnormal electrical pathway,, well I hav'nt had the 180 rate heart beat anymore but at the same time she put me on lopressor or metoprolol 50 mg twice a day, keep in mind this is the same drug they used to bring my heart rate down the first time it jumped to 180 so like everybody else I put up with the pvc's and every year that goes by it gets worse I was 49 when I had the ablation and now I am 55 and my doc still has me on the lopressor,,, my pvc's come when I go down a bumpie road in the car ,, they come in the hot summer months when I drink a cold drink and it don't matter the drink its the cold that sets it off ,, if I rest my left arm on a table to long here come the pvc's,, sometime they last all day sometime they last a hour ,, they put me in a bad mood ... position is a factor with my pvc's ,, everybody has a little pressure stress from day to day,, this also bring them on, anyway I'am tired of it ,, at 55 the erge for sex is not what it was when you are 40 so when the erge is there you want to talk about somthing that is a turn off is to have a bunch of pvc's when your getting ready to have sex, it may be a problem in the heart but believe me when this happens its a pain in @ss

[DaDog]

I am currently 30 and also had WPW and the ablation when I was 18.  Now 12 years later I am having the same "skipped" beats that you are experiencing.  It is nice to know that others are having the same problem as me.  I don't have health insurance, and I have a wife, a 17 month old son and another on the way in May.  Having a family really puts your health at the forefront of your mind.  Thanks for asking the question, I just wish doctors would talk to people without having to charge them for an office visit :(

[PikaPika88]

To the WPWers, after the ablation, do you still have wpw (showed on the EKG)?  

Jon79, I got the symptoms almost same as you.  But mine one turns up after 20 years of ablation.  Dr said is A-Fib.  He is expecting I'll get it but not that early.  May be it is the side effect of Ablation but not in the documentry yet.  Ask your cardio, he'll tell you the truth.  They probably will tell after you had the ablation but not before.  I also get told the scares will cause trouble too.  Of course when over certain years.  Also the treadmill stress test will turn up those symptoms easily.  I went through many tests.  All come back normal.  I know how awuful it is.  I believe, if it is happened in their chest, they don't like it too or they are unable to tolerate too.

I am still having wpw but no palpitation after the ablation.  I had my His bundle ablated and I have a pacemaker.  I am now depending on the pathway conduction, not AV node.  The pacemaker is just for the insurance or in case (I didn't use it much).

Take care.

[Smiley2000]

60-80 bpm in sinus rhythm is completely normal.  100 and above is seen as Tachycardia.  My normal heartrate is 80-90 and when I get PSVT "attacks" it races to 180 and then I stress it into 200!

In my case the Ablation did not work, because the Electro-Cardiologist could not fix the entire problem.  A normal person has 1 sinus node, I had 3 and he was able to Ablate only the 1.  I still have 1 extra node and my normal sinus node.  If I want him to fix my arrthythmia problem, I must get pacemaker implant and I am not going to do that.  I am 32 years old.

[bookert11]

my heartbeat isnt even really that fast on average its abt 65 or 68 bpm and every so often it might go up to 75 bpm. It kinda scares me though when im hearing of people who has this condition and their heart races to over 200 bpm

[bookert11]

repn314 at yahoo.com lol sorry messed it up.

[bookert11]

thank you!! smiley2000, So from ur experience do u think that the ablation was worth it? (eg.***@****)

[Smiley2000]

I had Ablation done (Nov. 2007) to control PSVT (paramoxal supra ventrical tachycardia) and arrthythmias (extra systoles/miss beats) and after mapping and Ablation was done, I still get PSVT and arrthythmias.  The PSVT is scarry, but not dangerous and the extra systoles/miss beats is annoying, but also not dangerous.  Something some of us just have to live with.  I also get dizzy, tired and my throat feels as if it is closing.