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Heart Disease  (Expert Forum)
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Snycopy
Answered by
Cleveland - OH
This forum is for questions and support regarding heart issues such as: Angina, Angioplasty, Arrhythmia, Bypass Surgery, Cardiomyopathy, Coronary Artery Disease, Defibrillator, Heart Attack, Heart Disease, High Blood Pressure, Mitral Valve Prolapse, Pacemaker, PAD, Stenosis, Stress Tests.

Snycopy

by laddie880, Nov 05, 2009 12:23PM
My 19 year old daughter was diagnosed with neurocardiogenic syncopy in April of 2008.  Since she has been treated with Fluorinef (.3), Zoloft.  She has begun to have high blood pressure and now is fainting every day or so.  They have weaned her to .1 Fluorinef at this point.  The cardiologist has said it is not their problem, to see the neurologist.  The neurologist is concerned and is sending us to another cardiologist.  However, in the interim, the fainting is a problem in our minds.  Should we be concerned?  Is the high blood pressure just a rebound from a bottom out BP that is rebounding?  No one wants to be responsible.

by Cleveland Clinic, Nov 08, 2009 09:57PM
Well it is a combined problem between the autonomic nervous system and the heart. It is usually treated with florinef, salt tablets and sometimes pacemakers. It can be debilitating but there are not a lot of options for treatments. I suggest that you seek an expert in this field, such as a tertiary care center such as ours. We have a dedicated syncope clinic which is manned by two experts ( one an electrophysiologist and another a neurologist) and together they can help most patients.
This is not usually a life threatening disorder, but as I stated above can be very debilitating.
Member Comments (3)

by Jenn0030, Nov 09, 2009 06:00PM
To: laddie880
There is a forum (dysautonomia) that you might want to use to find some additional resources.  I have NCS and it can be a very frustrating road unless you have doctors that understand the disease well.  If I can help in any way or if you have questions...ask.

Jenn

by Lisa33167, Nov 11, 2009 09:15AM
I also have NCS mixed with OI and heart problems.  Luckily my cardiologist & neurologist work together and listen to what the other says, which helps with treatment.

I would def be checked out by a neuro just to be sure of other problems that Dysautonomia can cause. A pacemaker is a very good option, but making sure your daughter has the right amount of salt, fluids and protein is essential also or she'll end up like many of us - still fainting and all of the other things that go with these conditions.

Even then, it really can be debilitating.

I would love to go to a large clinic such as Cleveland, but they're out of my network and $12,000 deductible and beyond my means, if your ins allows, that would be a great option to try.
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