Tetrorogy of Fallot with absent Pulmonary valve Syndrome

[jak999]

My daughter is suffering from Tetrorogy of Fallot with absent Pulmonary valve Syndrome, her age is two and half years.

Current status is that my daughter two times suffer from severe pneumonia, sometimes I observed sweating on her forehead, growth is not up to the mark. Her color is pink.

I will be thank full to you If you guide me regarding the disease, its consequences if not timely treated, treatment options and after surgery my daughter will live normal life?

[jak999]

Thank you sir............

[CCFHeartMD 12]

Your daughter has a congenital heart disease with many different variations.  I am not a pediatric cardiology specialist so my experience treating young children with uncorrected Tetralogy of Fallot (ToF) is very limited.  It is interesting that she is pink, which likely suggests a lack of crossing of blood from right side to the left (deoxygenated to oxygenated).  I take that to be a good sign.  However, without specific information about her exact heart defects, it would be difficult to predict when she would need surgery.  

[achillea]

I am not a doctor, and I regret that the physician who normally answers questions here has not responded to you yet.

However, I would like to ask you a question myself:

What did the doctors who gave you this diagnosis for your child tell you about the condition?