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Heart Disease  (Expert Forum)
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Too many PVCs?
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Too many PVCs?

by PAT65, Feb 01, 2003 12:00AM
Hello- I have been reading the forum and have also reviewed some archive topics, so I want to be sure I am understanding what is being said regarding PVCs correctly. From what I read if your heart is structually normal and have no previous heart history e.g. heart attacks than the number or kind of PVCs are basically of no concern. Is this correct? I will give you some of my test results. By 24hr holter I had 7,487 isolated PVCs. 1,176 couplets, and 174 bigeminal episodes.According to my echo report I had 60% EF, trivial if any MVP, mild mitral insufficiency,mild tricuspid insufficiency and trace pulmonic insuffficiency, aortic valve was OK. The Drs didn't seem concerned about any of these findings. I had a normal routine treadmill. So here are my questions. 1.According to what I have been reading, even though I have that many PVCs I still shouldn't worry? 2.Over a period of a few months it seems I have started having more couplets, triplets, and even a couple 6-9 beat runs, How can I be sure the PVCs I have will not deteriorate into something more ominious? 3.My EF was 60%. Is that OK? and does it fluctuate or stay about the same?  it seems I had an Echo one other time and my EF was higher than that. 4. How often should I repeat these tests in followup?  PS. I am a 37yo female.

by CCF-M.D.-RCJ, Feb 02, 2003 12:00AM
Pat65,

Thanks for the questions.

(1) I calculate that you had approximately 6-7 PVC/min on your holter.  This is a pretty high number, but there is no evidence that this will impact your long-term mortality given the other information you have provided.  It may impact your quality-of-life, however, if you feel them and are concerned about them.

(2) You cannot be sure.  Life is dangerous and we all accept some risks with everything we do, and every decsion we make.  Even if you developed VT, you would likely tolerate it just fine given your age, normal EF, and lack of other medical problems.  Some medicines can suppress the PVCs, but these carry risks as well.  Choosing the right medical therapy for you depends on a host of issues, and does not lend itself easily to the internet medium.  I will refer you to our discussion on 1/1/03 for further treatment options.

(3) The EF is an "eye-ball" number, and so will fluctuate considerably from reviewer to reviewer.

(4) The repetition of follow-up would depend on any new or worsening symptoms.

Hope that helps.
Member Comments (44)

by Momto3, Feb 01, 2003 12:00AM
Hi Pat,
I have been dealing with PVCs for 20+ years.  Holter monitor said 22,000 PVCs with couplets, triplets (only a handful), frequent bigeminy. I do have MVP with moderate regurgitation, but it is not a problem according to recent tests. During a follow up echo last month, my ejection fraction appeared to have dropped.  The doctor said that it is RARE but it has been reported that VERY FREQUENT PVCs can negatively impact the EF.  I am in the process of trying a new medicine to control them.  Then I'll go for another echo to see if the medicine allowed the rhythm to straighten out and correct the EF.  Have you heard that VERY FREQUENT PVCs can cause this type of change.  It is my understanding that it is rare, but it seems worth looking into.  
Good Luck to you : )

by Barbara, Feb 01, 2003 12:00AM
I too have had pvc's for many, many, years.  The last two years have been a nightmare.  When I read how many you both have, I cannot believe it.  While going to Florida last week, I was listening to a doctor on the radio.  He said you should never feel your heart beat, and if you do there is something wrong.  I feel my heart every time it skips.  Enough to pick me right up off my seat and push the panic button.  I've had every test, including uper GI series which showed gastrointestional reflux.  I still say they come from the stomach.  No doctor agrees with me.  Take care.

by CLM, Feb 01, 2003 12:00AM
Hi ladies,  let me chime in here as a VERY frequent pvc-er.  I  also have 8,000+ pvcs in a 24 hour period on bad days, with plenty of couplets, triplets, and (at least) one 6 beat VT run.  My EP says "you are at no more risk of a cardiac event than anyone else your age (37, female)"  Isn't that a stunner?!  I want that carved in stone and hung over my front door!!!  In any case, they are miserable to live with and I am seriously considering an ablation (maybe for my 40th birthday?  a special treat just for me, ha ha).  These are not well controlled by atenolol, that is for sure.  Any suggestions from those of you with THIS many?  What medication if any seems to work?  Any other ideas about how we can cope?  I will be very interested in the Dr.'s response.  For the record, the last echo indicated an EF of 70 -75 so that is not (yet?) a problem for me.   My bad days are more frequent and for the past few months I have only had 5 or 6 days "off" between weeks of days with noticable, frequent and insanely annoying pvcs...  Definite triggers for me personally:  stress and hormones.  I will be reading reply posts with great interest.

by briane, Feb 01, 2003 12:00AM
I have pvc's and pac's also.  They have gotten more frequent here lately.  When I have mine sometimes I'll have pain with it or tightening feelings in my chest area.  I also have periods where my heart races.  My doctor doesn't seem concerned about these.  I made a trip back to the cardiologist and he didn't seem concerned.  I mentioned the pain with them, but didn't get a chance to mention the tightening before he got paged and left.  He upped my dose of atenolol.  If that doesn't work for these I'm curious to know what else may be suggested.  Atenolol works for slowing your heart down when its racing.  God Bless!

by Risen, Feb 02, 2003 12:00AM
Hi all..... I too am experiancing arrhythmias of several different kinds. Until I found this site I really had believed I must be the only on who had these nasty scary irregular beats of different kinds and intensities. Makes no difference what I am doing, standing, sitting, sleeping and other postural positions. They hit with a vengence, some hard and painful and others not painful. I was on many meds over the past many years and some seem to help to some degree but eventually quit working. The latest one was rythmol (propofonol) and when I had an acute MI the rythmol through my heart into the dreaded "SDS" (sudden death syndrome) arrhythmia that was the scariest I have ever experianced. It didnt stop for about an hour untill the ER doc injected lydocane in my IV. I plead for you all in support and contact to help me realize I am NOT alone. I am in contact with 3 new friends from this site and I would like to hear from more. Thank you all so much! GaryM    ***@****       gman@(LNI).net
I am 54, dont smoke or drink since at least 25 years ago......
                                                         ^

by PAT65, Feb 02, 2003 12:00AM
To: Other frequent PVCers
Thank you for all your responses. Its great to know there are others who are dealing with the same PVC problem as I am. Did any of your problems just increase over the years or come on suddenly? Mine just started suddenly one day and I have dealt with them ever since. I would be curious to know what meds you are taking that might help the PVCs. I have tried atenolol and toprol XL without a lot of success. I have thought about ablation but the Drs. here on this forum as well as my own cardiologist seem a little hesitant. They said I should try many drug trials first and then only procede after careful evaluation. I guess my biggest concern is that I will have a big run of VT resulting from frequent PVCs someday.

by Ianna, Feb 02, 2003 12:00AM
To: Risen
Hi Risen,

The MI is that an infarct?
And the SDS 'Sudden-Death-Syndrome' arrythmia, how does that feel?
Sounds horrible!
-
Bey - Ianna*

by Risen, Feb 02, 2003 12:00AM
To: Ianna
MI is an infarct. AWAFUL !!  But the SDS was horrible, a total loss of the heart as an effective pump. I was very blessed because the ER doc was able to convert it back to normal. I would like to chat with you through email if it would be ok with you. Let me know either way, ok?   Gary M

by Momto3, Feb 02, 2003 12:00AM
Hello again!!
I'm the one with 20,000+ in a 24-hour period.  Fortunately, I do not feel all of them!! The ones that get my attention are the ones that come in patterns (bigeminy, trigeminy, couplets, runs, etc).  THOSE I NOTICE.  Funny, the PVCs first showed up on a routine exam when I first became pregnant (over 20 years ago).  I spent about 10-12 years on Inderal to keep them "quiet."  Over that period of time, sometimes I was on it every day, other times I took it as needed.  The docs all felt that it was a good drug to keep me comfortable.  Anyway, about 4 1/2 years ago, I went to the doctor because the PVCs seemed to be increasing.  My regular doctor sent me to an EP specialist.  I have been seeing her ever since.  She spent an hour with me on my first visit and went over everything I wanted to know about PVCs.  I decided to go off the medicine and go it alone....Well, that worked for quite awhile, and I could take a 20mg Inderal as needed (rare).  I learned to live with the extra beats and recognized that they were not indicative of a pending problem.  Long story short....they peaked again this past fall and when I went for my annual follow-up echo, the EF was at 40%.  Doctor ruled out my MVP as the instigator because the EF improved when I did the stress test. She said that was a good sign it was not the MVP causing EF drop.  When I had the test, it was next to impossible to get good images because of bigeminy.  I was admitted to the hospital to try Flecaide.  It was the doctor's hope that the medicine would tame down the beats and we could get more accurate pictures.  Beats calmed down, but EF is still 45%.  Next step is to redo the echo in a couple of months to see if the arrythmia was the cause of the EF problem.  I guess that it is rare, but it DOES occur.  Anyone else hear of this?

by rick1234, Feb 02, 2003 12:00AM
Ok, I am trying to gather as much data as I can from folks suffering from these dreaded things. I have talked to many people who suffer from these and have come up with some conclusions but I'd like to ask those here for their experiences also.

Since these are benign, it is unlikely we are going to see a drug company fund research. Even if they did, it wouldn't get rid of them but rather mask the symptoms and cause more side effects than the PVC's themselves.

We know this much. PVC's can be caused by:

1. Caffeine
2. Stress
3. Alcohol
4. MSG (and foods that comtain MSG)
5. GERD
6. Esophagus problems.

Some people also claim that by moving their bodies in certain positions can change the severity of these. Many docs believe that far more people have these but just aren't lucky enough to be in tuned to their bodies like you and me. From the research I've done, I'm leaning more to GERD, acid reflux and esophogus issues as a cause. Some I've talked to (myself included), have noticed incredible periods of stress where we didn't notice these. Others have told me they consume caffeine and did't notice them. Many have stated that eating certain foods causes them to flare up worse. Ok, if all of this is true, then the esophagus route may hold some validity. I have talked to a few docs that say there cannot be any relationbship but I think you can never say never (especially when they really don't know the cause)

Does anyone here that suffers with these either have acid reflux or esophagus issues? I think that caffeine, alcohol, stress CAN be causes BUT not all on their own. I think many stress out and get anxious when these occur which just feeds into them more and makes the situation even worse. Logically, we know they are benign and just a nuisance but when you are experiencing them, logic sometimes flies out the window.

by the way, here is the definition of esophagus:

"a muscular tube that in humans is about nine inches (23 centimeters) long and passes from the pharynx down the neck between the trachea and the spinal column and behind the left bronchus where it pierces the diaphragm slightly to the left of the middle line and joins the cardiac end of the stomach"

Notice the word "cardiac"?

All responses will be welcome!

Rick

by heartbeat, Feb 02, 2003 12:00AM
Hello Pat, Momto3 and Chris;
You all write about "Couplets." I had a Treadmill Stress Test not too long ago and on the report it says "2 couplets were seen."  What are couplets?  Can anyone tell me?

I do get "Skips" daily but I did not feel any during the test!
Ever since I found this board I do not get so scared anymore when I get these skips or my heart races up to 140 bpm for about 5 - 10 minutes.  I can see lots of you folks have a lot more problems than I and you still around and kicking!
Laura

by Momto3, Feb 02, 2003 12:00AM
To: Laura
Hi Laura!!
Couplets are two PVCs in a row.  Triplets are three in a row.  On the other hand, bigeminy is when every 2nd beat is a PVC. Trigeminy/Quadrigeminy is when every 3rd/4th beat is a PVC. Hope that helps : )

by PAT65, Feb 02, 2003 12:00AM
To: heartbeat
Hi. As you have probably read I have plenty of couplets, triplets, etc. Couplets are 2 PVCs together without a normal beat in between, and of course triplets would be three beats together. By the way, has antbody out there experienced PVCs for years and been treated for them only to have them seemingly dissapear one day? That happened to my mother who was treated for PVCs with Quinidine but now she seems to be free of them. Thats what I am hoping for!

by jdd, Feb 02, 2003 12:00AM
To: momto3
Your comment about frequent PVC's lowering EF is very interesting... For several years I suffered from frequent PAC's to the point where I was constantly experiencing palpitations.  I went in for an ECHO which showed an EF of only 30.  I am currently on 150 my/day Toprol-XL and 10 mg Lisinopril.  I know experience very few PAC's.  My ECHO 3 weeks ago showed an EF of 54.  The doctors are confused and not sure what to think.  Do you know of any literature/other info supporting severe palpitations as a factor that decreases EF?

by Momto3, Feb 02, 2003 12:00AM
To: Pat65
Disappeared?  How wonderful for your mother!  What's the secret?  Like you, I have my share of these "events."  I'm taking Flecainide and they are quieted down, but still lurking. For really annoying breakthroughs, I still take 20mg Inderal.   I have tried Tenormin in the past...did not agree with me.  Mine seem to quiet down for periods of time, and then reappear. How long has your mom been "free" of them?

by mikki1967, Feb 02, 2003 12:00AM
Hi,

I've never posted here before, but I read the forum often.  I can't get on to ask the doctor.  I have many PVC,s and I have many questions.  Is there a support forum for people who suffer with PVC's?  They are really hard to live with sometimes, and I'd love to talk to other people who have them.

I was also just wondering if any of you have other symptoms, like sweating all the time, or heat intolerance?  I allready had my thyroid checked and it's not that.  I had a 24hr monitor and it did show a lot of PVC's.  Also, when I do over-heat, my PVC's are much worse.

No matter how many times my doctor says they are benign, they still scare me.

Thanks for listening!

Mikki

by alexa's mom, Feb 02, 2003 12:00AM
Hi, I'm 23 years old and like many of you suffer from nasty PVC's. My question is what is "EF"? I go for a stress test on Tuesday, will they be able to tell me what my EF is? When it is low is it bad? If PVC's cause this to be low, how can PVC's be benign? I'm soooooo confused about all of this and want answers. Also can anyone tell me about the stress test, how long does it take, do I have to run to the point where I'm out of breath etc.... I'm very nervous and scared about it. I tell people I'm stressed out about my stress test and they just laugh!

Thanks in advance,
Michelle

by alexa's mom, Feb 02, 2003 12:00AM
To: Mikki
Hi Mikki, I've been trying to find a support group on the net but haven't had much luck. I would feel much better if I could talk to people that are experiencing the same thing as I am, especially when I'm having a bad PVC day. Up until now I've basically kept this constant fear to myself. I didn't want people to worry about me or treat me differently. It scares the hell out of me when my heart starts to act up. You were talking about other symptoms..... well the only other symptom I have is dizziness. I've felt "off balance" for the last 2 weeks. Also sometimes my stomach feels bubbly when my heart starts to skip.
If you happen to find a support forum let me know.

Michelle

by Momto3, Feb 02, 2003 12:00AM
To: jdd
WOW!!  That is exactly what I am talking about!  My EF dropped form 55 to 40-45 and the doctor is trying to determine whether or not the PVCs are the culprit.  She found one study which poses the question.  My PVCs have been crazy for the last several months...Now, with the new RX they are manageable.  But, as with any medicine there are side effects and risks....When I go back in a couple of months, we are going to redo the echo and if the EF is back up I can opt to stay on the medicine or consider an ablation, though that does not appear to be her first choice.  If the EF is still compromised, then I go on an Ace Inhibitor, like lisinopril. Sound familiar?  WOWWOWWW...I'm still amazed that you have had this happen.  What does your doc think?  What area of the country are you in?  I am in Cleveland and am fortunate enough to have a fabulous EP.  She is with a major medical center here...and the Cleveland Clinic is within easy reach.  The only literature I have come across is a study form Japan (http://circj.jstage.jst.go.jp/cgi-bin/rs.cgi?SID=141149936f2e4bb8171c0c44a27303e3).  I don't know if you will be able to access that site, but the article is titled "A Case of Cardiomyopathy Induced by Premature Ventricular Complexes" by Hirokazu Shiraishi (Circulation Journal Vol. 66 (2002), No. 11 1065-1067.  I'm still looking around for any other feedback or studies....Thanks for sharing your story!

by Momto3, Feb 02, 2003 12:00AM
To: alexas mom
EF is short for ejection fraction.  It refers to the amount of blood contracted from the ventricle.  Normal is said to be 55-65.  I do not know if the stress test will measure EF, but if they do an echo also, you will be able to find out.  The stress test is not bad.  You will be asked to walk quickly (I have never had to run) and try to achieve your target heart rate.  I am generally only on there for about 10 minutes.  Of course, I'm twice your age : )  Good luck.....It is not bad....Not painful or invasive, just a little tiring.

by dartmouth03, Feb 02, 2003 12:00AM
To: SUPPORT GROUP
Hi everyone...i've been reading the posts on here since around October and they've been a great help at times and at other times have led me to unnecessary worry.  i also have been struggling with these strawberries as i like to call them since august.  i've actually had them since i was a teen, and now i'm 23...but only in the past six months have i really began to perseverate on them.  anyhow, i read that many of you guys had been inquiring about a support group and i found one through yahoo which i believe is the only one on the net.  here is the link...it helps to read others posts, etc.....http://groups.yahoo.com/group/PeoplewithPVCs/
hope everyone gets some relief....and try to take solace in the fact that the doctors consider these benign, no matter how distressing they may be.

by wmac, Feb 03, 2003 12:00AM
To: rick1234
I agree with your idea of other connections with these pvc's.
Read on mvp, its seems as though everyone with pvc's has a mvp problelm also. Now to the esophagus issue i have esophagal spams and My cardi said certian foods really could effect the heart due the fact the esophagus lies right next to heart. I quit caffaine, chocolate and smoking all at once because of pvc's.
My cardi said caffaine and chocolate dont bother most people and that it would be okay have them but i said no way. I find one of the BIGGEST things is lack of sleep, if i dont get enough rest i get alot of them the next day. Im a night owl so that has now changed.I dont want to go on meds. masking the symptoms and getting ten other problems not worth it to me! Good luck

by obiwan001, Feb 03, 2003 12:00AM
To: wmac and rick
Ditto your post on potential causes.  I don't have mvp, but I have had both easy and "nasty" pvcs, over 16 years, sometimes for weeks on end.  I wonder what age has to do with them, too.  The only reassuring thing, is that so many of us are in the "family" together.  God Bless.  Obi.

by jdd, Feb 03, 2003 12:00AM
To: Momto3
I am from near St. Louis, MO and am only 21 years old.  My doctor said he believes the increase in EF is from my medication, but when I went in for a second opinion from a different doctor he said that if anything the 150 mg of Toprol would depress my EF, and that he doesnt' think I ever had a true cardiomyopathy.  He ran a bunch more blood tests but isn't sure what to think about the sudden improvement.  I am very relieved that I (probably) do not have DCM, but would like to find out why my EF was 30!!!

by alexa's mom, Feb 03, 2003 12:00AM
Does anyone believe or know if lack of magnesium can cause PVC's? I read somewhere that it has a lot to do with functioning of MUSCLES including the heart but when I asked my doctor about it he said it was not necessary to test because it has more to do with brain function. Also does anyone experience MUSCLE twitches. Sometimes I wonder if PVC's + MUSCLE twitches = magnesium deficiency!!!

Anyone care to shed some light!

Thanks,
Michelle

by dartmouth03, Feb 03, 2003 12:00AM
To: michelle
hi michelle...i do know that a lack of mag. can cause more pvcs and other arrythmias. i also get fasiculations (muscle twitches) all over my body, and at times actually get them in my chest and confuse them with my heartbeat.

by alexa's mom, Feb 03, 2003 12:00AM
To: Dartmouth
Thanks so much for your reply. I too get them all over my body, from my eyelids to my toes. I know what you mean by the ones in the chest. It does feel like your heart is beating weird. Would it be wise to try out a magnesium supplement? I'm glad someone else has the twitches too, I feel like a freak when I tell other people and they're like "huh"?!!!

Michelle

by Bacse, Feb 03, 2003 12:00AM
I have just looked for (and found, obviously) this website.  These PVC's are driving me nuts.  Exceedingly uncomfortable.  But my cardiologist disregards them completely.  My heart rate is high because I am always short of breath.  My EF is <30.  My pulse rate is about 120 and I skip at least every 6th beat.  But it isn't regular - - Skip one, beat twice; skip one, beat four times; skip two, beat, skip, beat twice, skip.  You get the idea.  I sit here and start panting for air.  And I don't know what to do about it.

BTW, I had an MI in 1992 - a major portion of the R. coronary slammed shut following a spasm caused by a medication.  It remains shut.  I had an ICD implanted a year ago because I seem to be prone to "sudden death".

Any ideas???

by dartmouth03, Feb 03, 2003 12:00AM
To: Michelle
I totally understand about other people's lack of understanding...some people just aren't as intune with their bodies as we are i guess.  i think trying a magnesium supplement wouldn't be a bad idea.  i personally am one of those people that hates pills and doesn't take anything.  however, my doctors, uncle who is a doc, etc. all say to try magnesium (usually taken with calcium) supplements and hawthorn berry for the pvcs/arrhythmias.  i get like 10 or so skipped beats a day...on my holters once showed 4 pvcs (one of which was a couplet so that counts for 2) and 9 pacs, and the other showed 50 pvcs and 4 couplets, and another showed 0 pvcs and 4 pacs, etc - so i figure i can try and cope with them without taking supplements right now.  but the bottom line is, no matter how many you get, each one is distressing and can ruin a persons day/mood.  the supplements are worth a shot though.  another thing that helps is to make sure you drink lots of water.  my cardiologist said that some of his patients just start drinking lots of water and the pvcs are reduced in number dramatically.

by h82bl8, Feb 03, 2003 12:00AM
I have been having PVC's since 1973.  The first one I noticed was while sitting in a college classroom.  Scared the **** out of me.  Like many of you, I thought I was alone.

Today for the first time, I went into Google and searched PVC's.  I found this site.  I'm really glad.

My Pvc's seem to be worst after I eat.  When I feel bloated.  Someone raised the issue of acid reflux - maybe there is a connection to the stomach.

by Jade12, Feb 03, 2003 12:00AM
Hi all,
I also experience PVCs and palpitations quite often throughout the day. Have done an ECG which showed bigeminy. Still waiting on the results from a recent Holter and echo. I am a 22 year old healthy female. Exactly how many PVCs a day I do not yet know, but I'd expect it in the thousands (since I am often in bigeminy or trigeminy for hours at a time). Tho from reading this forum I understand that the number of PVCs isn't important as long as your heart is structurally fine.

I was just wondering if anyone else has chest pain accompanied by shortness of breath? For the past 3 days I've been having chest pains on and off. I'm not too concerned about it as I've had chest pain before, just not for so many consecutive days and so frequently. The pain is localized into several specific points, and sometimes feels like stabbing. Have any of you experienced something similar? And if so, did your doctor say anything about it?

Finally, I'd like to thank you all for contributing to this forum. I've kept these symptoms a secret from my friends and family, and have found comfort in your shared experiences.

by Ianna, Feb 04, 2003 12:00AM
To: h82bl8
Yes, sometimes there is a connection to the stomach.
Look under archives on this site and search for questions and answers about this subject.
There are a lot of 'us' with PVC's-stomach related problems.
-
Good luck - ***Ianna***

by PAT65, Feb 04, 2003 12:00AM
To: momto3,chrismcg
Hi! You both mentioned having thousands of PVCs a day just like I  have. You also mentioned having short runs(VT) of PVCs. Do either one of your Drs. show any concern about this? Momto3, You mentioned that you see an EP doc at the Clevelan clinic, Do they seem concerned at all? I went for a followup appt. today just to my regular internist whom I respect very much and he said the short runs I have were not "normal" at all and he ordered an event monitor for me to wear for a month! It kind of has me concerned. Let me know what you guys have heard. Thanks!

by Ianna, Feb 04, 2003 12:00AM
To: Risen
Hi Gary,
-
I cannot chat with you, I'm sorry.
We can talk here on the board.
OK?
-
See you!
-
***Ianna***

by Momto3, Feb 04, 2003 12:00AM
To: Pat65
Hi Pat,
Yup, I have quite a few of the buggers.  My doctor became concerned in December when my most recent echo showed a falling ejection fraction.  However, I must point out that initially we were not sure if the EF reading was even accurate because during the test....you guess it....tons of PVCs.  Therefore, the picture quality and computer calculations may have been distorted.  So, in order to clarify the numbers, the doctor suggested I be admitted and try Flecainide to get control of the PVCs and then redo the echo for better images.  I did that and the echo showed 45% (first one showed 40%).  She was still somewhat concerned.  Apparently, she read a study where this frequency can CAUSE a decreased EF...YUK!!  Anyway, the plan is to stay on the antiarrythmic and have another echo in April.  If the EF is normal...then she believes that the study may have some real merit.  If the EF is not better, then I go on an ace-inhibitor.  My doctor is not at the Cleveland Clinic, but at another major hospital in the area.  However, in 2000 because she thought I probably needed MVP repair she sent me to the CCF for a TEE....She felt that THEY were the BEST for repairs...I have tremendous faith in her....I used to see an internest, but I much prefer the EP who deals with this stuff everday. Even when I had "benign" PVCs (before the EF problem), she saw me at least once per year to recheck, etc....Keep me posted!

by karie, Feb 04, 2003 12:00AM
So appreciate this board and all the PVC's posts....I have MVP and pvc's and Just purchased a book called Mitral Valve Prolapse Syndrome/Dysautonomia Survival Guide and found that the autonomic nervous system is a huge factor in our hearts function. My cardiologist had mentioned Dysautonomia at my last visit in regards to potassium levels, pvc's.
Hope to read More

by PAT65, Feb 04, 2003 12:00AM
To: momto3
Hi! Thanks for your comments. I did mention to my doc today about the decrease in EF related to PVCs and he said it could drop during the PVC which might explain why the low EF if you have many, many PVCs. I told him I had had a previous echo that showed 70-75% EF and this one was down to 60%. He said there was also a measure of different interpretations by different physicians. Who knows. By the way, Your Dr. sounds great, but at what point does she think an ablation might be warranted? My Dr. mentioned it today but I don't feel like all the other options have been  tried yet. I have heard only mixed reviews about ablations and I hope not to have to go that route. You had asked about my mother whos PVCs seem to have dissapeared. According to what she can remember,The PVCs she had were found by accident at a routine appt. She had a holter, stress test etc. They said she had more than 6 PVCs a minute and multiple PVCs on the stress test. Back then they started her on quinidine which helped. She took it for 10 years then her stress level dramatically decreased (retirement). She was able to wean off the quinidine and now about 12 years later she only has what she calls an occasional flutter. I hope to go that route!

by Momto3, Feb 04, 2003 12:00AM
To: Pat65
Hi again!!  Congrate to your mom!!  I hope we follow in her footsteps : )
As for my doctor, she is absolutely fabulous.  I have yet to find someone who actually took all the time I needed to reassure me and such. When I call to ask a question, SHE calls me back personally.  When I initially asked about the ablation, she told me it may work, but it has its risks (hmmmmm).  Anyway, she has since talked to a few of their group's "ablaters" (her words) and they said they felt they could successfully perform the procedure.  However, she would prefer to try the meds first.  Sounds like a good plan.  The PVCs are definitely bothersome, but I'm just not sure an ablation is the answer.  My doctor prefers non-invasive methods to getting control of this stuff.  I guess it may depend on the results of my echo in April. If you are in the Cleveland area, I would highly recommend her.  As I recall from my first appointment, she HAS PVCs so she GETS IT!!
So, did your doctor think that the PVC's (in these outrageous numbers) could cause the EF to drop??

by CLM, Feb 04, 2003 12:00AM
It will be very interesting to hear what your echo shows in April!  I hope you can find a way to post that so that we VERY frequent pvcers can learn about it.  

I wanted to respond to those asking about magnesium supplements.  My cardiologist "prescribed" four tablets of "Slo-Mag" a day (its combined with calcium) and I have been taking them for nearly six months.  Well, sad to say, it has not done a heck of a lot for me, as I am still getting -- at times-- 6++ pvcs per minute for hourse at a time, couplets, short runs of vt (only once a month or so, but it is not a fun feeling).  The only difference I can tell is that I don't really do bigeminy anymore since being on the magnesium.   What I have noticed is a very strong correlation to hormones:  ovulation in particular, but also pms-time.  At 37 I wonder if some perimenapause stuff is going on here.  Stress/adrenaline a factor and I am struggling to get that under control.  I really do think that "retirement" of some kind would in fact make my numbers go down, but there are times that it seems just like the "wrong time of the month."

by Ianna, Feb 05, 2003 12:00AM
To: ChrisMcG
Hi,

I have the same problems you have.
Only I AM menopausal. I am 57 years young....
It has got to do with hormones too I'm sure, beside stomach, esophagus-problems, stress, anxiety, sensitive nerves, etc etc.
I have the 'runs' of flutters too, and the PVC's. Sometimes palpitations.
Have had all the tests, everything is fine, slight MVP, little bit of high BP.
I take the beta-blocker Inderal. Feel ok with that med.
But the 'flutters'.
Don't know what they are, they never got them on the Holter.
You mention 'short runs of VT'.
It feels like my heart is shivering for 7 to 10 seconds, and I feel a very nasty surge going through my body, like 'I'm going to pass-out or die if my heart is not going back to normal very soon', it's very scary, and it is NOT a PVC, it is different and after 'the run' I feel a little shaky, as does my heart.
What exactly do YOU feel when you mention a short run of VT?
Is it dangerous? And indeed it is usually once a month.
The PVC's I can handle fairly well, but this feeling I really hate...
-
Let me know if you like (or anyone else?)
Thank you.
-
Bey  -  ***Ianna***

by Momto3, Feb 05, 2003 12:00AM
To: Chris and Ianna
I believe that hormones are involved!!  Two years ago when I started get the palps very frequently, I asked my OB/GYN about perimenopause?  I had the FSH test done and it came back normal.  Interestingly, when I asked my EP about it, she said she was in the middle of a study regarding just that subject, but funding got pulled...I plan to discuss it with her again in April. Although I get PVCs whenever, I had a terrible bout with them a couple of weeks ago...PMS!!!  As for the flutters, I can't that that is really what I feel.  I get a little off balance and feel a bit shaky when they are really acting up.  I also get that quivery feeling sometimes, though I'm told so far it's still PVCs.  When I was in the hospital in January, I went for another stress test to be sure the medicine did not send me into a NEW arrythmia pattern.  Anyway, the tech said, "Oh, you're the one with VT, right?"  I said, I don't think so, just LOTS of PVCs.  I mentioned that to my doc and she said, "Yes, you do have VT."  I was kinda surprised.  Apparently, it has something to do with runs of PVCs...and I get those!!!  Funny thing is until the EF dropped, they still weren't concerned other than making me comfortable....Since I visit this board often (at least daily), I will keep you posted after the echo. My doctor is very into research so she is very interested in what happens. I feel so blessed to have found her....Good luck to everyone!!  I'm always watching the boards so please keep me posted....Thanks!

by alexa's mom, Feb 05, 2003 12:00AM
To: Ianna
Your symptoms of the short run of VT sound like what I experience at times.  It feels like my heart quivers or vibrates for like 5 seconds....feels much different than a regular PVC.  I also compare it with the feeling you get when your chest is congested and you breath in and it's all gurgley in the area that caves in between those two rounded bones where your chest meets your neck.

I had a stress test yesterday which was all normal. My internist just told me to ignore these symptoms........kinda hard to do!!

Michelle

by PAT65, Feb 05, 2003 12:00AM
Hi Again! I mentioned this at another time but I noticed it does seem strange that a lot of people in their late 30s start having PVCs. I wonder why? Momto3, If you and your Dr. find a medicine that works please let me know. Like I said I do trust my Dr. but he's not a cardiologist and I don't feel like he has tried all the options or maybe he is not familiar with all there is out there. He was concerned when I told him I thought I had some VT so now I get to do an event monitor for a month! Do you guys think according to your drs. that he may be overeacting? PS. I do have a regular EP cardiologist but I can't get in to see him as quickly.
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